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Let's Discuss...Chemotherapy

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What was your reaction to learning that Chemotherapy would be part of your treatment plan? What have been, or what are your biggest challenges with this treatment? Share 3 tips that helped you get through Chemotherapy.

For Caregivers: What tips do you have for other caregivers supporting someone through Chemotherapy treatment?



Mon1‍  Please know all those are routine scans. They are merely establishing a baseline before treatment begins. Good luck with your treatment.  It's a great idea to keep a journal of your side effects.  Write everything down so you can look back and notice the changes.  Best wishes 
Wendy Tea 
  • Posted Thu 21 May 2020 05:15 AM EDT
I just learned yesterday that I would have to have Chemo.  I am devastated and completely terrified.  I have been strong so far; I'm one week out after mastectomy with reconstruction, but no one thought I would even need anything further.  The tumor was twice as big as they thought and  2 out 4 of the Sentinel lymph nodes had cancer cells.  Now I am terrified because I have to have  PET Scan a CAT scan and a Bone scan and I feel like I just keep getting worse and worse news.  I don't feel strong anymore.  
  • Posted Thu 21 May 2020 12:55 AM EDT
Hi Mon1, 
My situation was different. I started with chemo then had a mastectomy then radiation. I found out around the time I was finishing my fifth round of chemo that I have a syndrome that predisposes me to breast cancer and other cancers. I was still shell shocked I think once I started chemo only because all I really knew was that I had to have it. 
I finished the chemo/immunotherapy this month and I’m terrified of the next cancer. I’m waiting for a prophylactic mastectomy and I’ve decided to remain flat, no reconstruction. I’m working with a therapist regarding my self esteem issues, I don’t know how things will turn out. I did lose my hair and it’s slowly growing back, it’s still short but growing in curly. I’ve always had straight hair. I look in the mirror now and I see my mom. I lost her just before I started radiation last December. 
Wouldn’t it be nice to control what happens in our bodies? Unfortunately that’s not the reality. I came to accept that I will do my part and follow my team’s directions, pray and do my best to keep my mind healthy. Sometimes though you do doubt what’s going on, but stay the course. You’ll get through it. And don’t be afraid to keep asking questions, and even the same question, until you’re satisfied with the answer. I did a lot of research on line, drugs and side effects, and I monitored just about everything. Get a thermometer, a journal, a water bottle...those are just a few things you’ll find helpful. After each round you’ll need to take your temperature when you feel hot/sick so the dr/emergency department has a record of them...when you go in, if you have to go in. I didn’t, and I’m grateful, and I was ready. My letter and my medical history including all the meds I’m currently on are on my fridge and my family knows to grab them if I can’t. We are stronger than we think. I look back at all I’ve been through since last April and I think others may have not be able to take it, either quit and let things happen as they may, or have fine worse. When you feel alone, come here, like I did tonight (I struggle with insomnia now) and you’ll find a kind, caring and compassionate community of people that are always willing to listen, and help if it’s needed. Because sometimes, all we need is to just be heard. 
I hope my contribution helped you, in any way. I received help when I asked so I’m paying it forward. 
All the best, take care. 
  • Posted Thu 21 May 2020 11:41 AM EDT

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