Good morning, I am wondering if anyone has had bad foot pain and joint pain right to shoulder on side lymph nodes taken from. I had my lumpectomy surgery Nov 1 2019 and many side effects. Ended up with double mastectomy. Chemo but no radiation, it’s been awhile ans after 1.5 years I wasn’t able to take the hormone suppressant so I had a hysterectomy. Anyway I am suffering dearly with pain mostly in my foot/heel/ankle. Going up my right side and into my joints. I can’t get to a doctor until next week but I’ve been having some strange things happening.some confusion such as not knowing how to open the fridge and other things I’d rather not mention. I am so tired of being in pain. If I have to travel for work and walk alot it takes me a full day just to try and recover from being so tired and to get my foot well enough to limp on. I haven’t injuried it but can my breast cancer be spreading in my body. I have the PALB2 gene mutation and cancer surrounds my family. My mental health is really suffering. I don’t want to sit in ER for 12-14 hrs and no other options. Family doctor appointment I’ve been waiting for 5 weeks now. One more week to go but I have to travel for work again and frig I am just scared. Random side effects like I had before are happening too. Anybody have any suggestions or words of wisdom. Today I am off and just feel like crying. I am not usually emotional so it’s getting to me.
@Dar73
I am sorry for all that you are going through. It sounds very challenging. I had a lumpectomy and axillary dissection many years ago. I still have the odd pain and tightening of the area but I think that is more due to the armpit surgery and the radiation. Never had it down as far as the feet on that side.
You have certainly waited a long time for your dr appointment. Glad you are getting in next week. I understand not wanting to sit in an emergency ward for hours on end but sometimes you will get diagnostic tests done right then and there so there can be a benefit to that long wait.
It is possible that it is not related to your cancer treatment at all. I hope you can get some answers and relief soon as I can sense by your post this is really difficult for you.
Let us know how your appointment goes if you are comfortable sharing.
Lianne
@Lianne_Moderator Thank you Lianne, I have been very stressed over this. It takes me a full day to recover just going for a long drive and a few errands. I am a hard worker so its making me feel weak. Constanstly limping around now and it hurts more up my right side right to my teeth now. My appointment is the 7th but i did just called my oncologist to see what he thinks. It's scary when you go to the fridge and not remember how to open it or when i go to the washroom i try to get undressed in front of the sink. Thank god nobody else was around both times. I am not taking any other mind alternating medications so I always get scared its cancer. I am not even 50 yet but there is so much cancer in my family its hard not to think this way. Thank you for your support :)
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@Dar73
oh Dar - sounds awful!
I would 2nd @lianne_moderator suggestion to just bite the bullet, and go to emergency. that kind of 24/7 pain changes a person.
I can speak from personal experience on this one: foot fractures are PAINFUL. I have walked/worked on a broken foot for almost 3 years now. foot fractures do not show on X-ray…..at least not right away. bone scan is the way to go, IMHO. (I am NOT a doctor.) sounds like you have been coping with this for too long.
can you get yourself a walking boot? they are clunky and a bit hard to get used to at first, but I tell ya, that has saved my bacon over the last few years. you don't need an RX for that, and it may alleviate some of your pain till you can get some answers!
do you still have any relationship with your cancer centre? maybe someone there could see you sooner??
I completely get you 100% about being worried. of course you are; I'm glad you came here and shared your story--to recognize that you need physical AND mental health care is very self aware. please let us know how things move along for you.
hugs from over here
su
#pain #posttreatmentpain #footpain #palb2gene #mentalhealthIShealth
@Dar73
I’m so very sorry to hear of your struggles, both physical and emotional. Chronic pain is a whole other kettle of fish and wears a person down.
I don’t have any words of wisdom other than whatever comfort measures work for you, use them! Soaks in a warm bath? Meditation, Massage? (Or would that hurt more?)
what about an air cast walking boot? Im just trying to think of anything that would help.
Does your work have an employee assistance program where you can call for support?
Try and hang in there for the “one more week”… you’re almost there!
I hope you get some relief and to the source of the problem.
Sue
@Skye2 thank you so much Skye2. One more work trip away and I am heading to the doctor tommorow evening. I don't know why but i aways feel foolish complaining about my symptoms. They are so random. But also bother me everyday. I am limping all the time now, I cant help it. Before I found out i had a tumour the size of a golf ball I was having all these weird random symptoms. But didnt think it was cancer because they biposied the same spot before and said it was nothing. My have been bad just thinking about this appointment and yesterday i had a full on panic attack (havent had one of those in years) Praying it is just me overreacting. Thank you for your thoughful words and suggestions.
@Dar73
Oh my… don’t ever feel foolish or bad or any other “negative” feeling because of symptoms/side effects/pain. You are the only one having this pain. It’s real and legitimate and you have every right to be worried, anxious, having difficulty walking and emotionally upset. Don’t let anyone minimize what you are going through.
The best way to think of this is- what would you say to your best friend if she were in your place? I’m sure you would be compassionate and caring, so don’t be too hard on yourself.
You are ALMOST there!!! Keep looking forward and remember you matter.❤️
Sue