People write they are NED or that they have been cancer free for 2 years. How do they know this?
I am just finishing my first year in the cancer community. After being diagnosed with breast cancer last fall I had surgery (mastectomy), chemo and radiation and am now on Anastrozole for 5 years. At my follow up appointments with the surgeon, oncologist and radiologist I asked “What now?”. In each case I was told “Well you will get a mammogram on your remaining breast each year but you can certainly call if you notice any symptoms”. I pointed out that a mammogram had not caught the first cancer as i have dense breast tissue and it certainly wouldn’t find cancer in any other part of my body, so what about ultrasound or a CT scan or maybe an MRI? The response was that they don’t order any of those things unless I have another lump or some other sign that the cancer has come back.
I would like to know what kind of follow ups other breast cancer survivors are getting? Is this just a Manitoba issue ? I would love to say that I have no evidence of disease but how do I know that?