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Emotional roller coaster
JanW3
12 Posts

Diagnosed about 3 weeks ago. I have no support people here in Timmons. I would like to chat with someone please. My surgery for breast removal is next Monday sept 13.

14 Replies
JanW3
12 Posts

I am afraid of all that’s. Taking place afterwards . I really have no one here to talk to nor what’s going on.it’s. All overwhelming

JanW3
12 Posts

I am not at any particular stage. Apparently is not spreadable at least that’s what I know. But really. Nothing can be sure until the surgery itself…I received a large envelope from the anathesiologist this past Wednesday. Up until this time I was ok let’s get her done. the Dr kept asking did I have questions and I replied no no. Little did I know once I started to read them Thursday morning about 3 a m. Then panic set in

Runner Girl
2044 Posts

Hi @JanW3

I am sorry you've received a cancer diagnosis, that you are doing this alone and that surgery is upcoming on Monday. I had a less than supportive partner during my diagnosis, treatment, etc. and our relationship ended and I moved as my treatment finished.

I was diagnosed with IDC, ER+ and HER2+ in May 2018 at 52, just a few months after my mom passed away (not from cancer). I had a lumpectomy and sentinel node biopsy, then 3 weeks later I ran my 11th half marathon - I'd been training for months. I had 6 rounds of chemo, 17 rounds of Herceptin (for the HER2+), 21 rounds of radiation, 2 years of tamoxifen and I've recently switched to Anastrozole, an aromatase inhibitor.

Since you're already booked for surgery my list of questions for your surgeon before surgery is probably no longer applicable. Here is my list of questions for after surgery, you can pick and choose which ones are right for your situation.

Here is a list of questions you might want to take with when you get your results from the surgeon:
• Is there enough information to recommend a treatment plan for me? If not, which tests or procedures will be needed? Will I need to see other doctors?
• What are my treatment plan options?
• What treatment plan do you recommend? Why?
• When do I need to make a treatment decision?
• Who will be part of my health care team, and what does each member do?
• Who will lead my overall treatment?
• What is the goal of each treatment? Is it to eliminate the cancer, help me feel better, or both?
• What can I do to get ready for treatment?
• If I am worried about managing the costs of cancer care, who can help me? Who can help me understand what aspects of my care are covered by my insurance?
• If I have questions or problems, who should I call?
• Do you communicate with your patients by email or with an electronic health record system?
• If have a strong family history of cancer, what is my chance of getting another cancer? How does that change my treatment options? Should I see a genetic counselor?
• Do you have a social worker I can speak with?
• What should I tell my employer, if anything, and what laws protect my rights as an employee?

You are not alone in this. I'm going to tag a few other ladies to comment: @JustJan @Mammabear @Buffythevampire

Runner Girl

Mammabear
188 Posts

thanks for tagging me. The beginning is very terrifying. So many unknowns. Easy to say ‘don’t panic' but I am pretty sure that ship sailed as it did with me.

We can be your support network. We are here for you. Don't hesitate to reach out with questions, fears, all of it.

Depending on the answers to RunnerGirls questions - the treatment plan will become clearer. They need to do surgery to see if it has spread to your lymph nodes and that will dictate the rest.

Cancer will teach you to wait.

Wait for a diagnosis

Wait for a test

Wait for a result

Wait for a treatment plan

Wait for treatment to start

Wait for it to end

Wait to see what side effects will be

Wait for the side effects to pass

Wait to hear you are in remission

Wait to feel normal

and for some of us with stage 4 - Wait for a cure

JustJan
933 Posts

@JanW3 I am sorry you have received a cancer diagnosis and I am sorry you have to do this alone. Do have a friend that you could lean on right now? Someone that you trust who could stay with you the first couple of days after surgery?

I did not have my breast removed but did have a lumpectomy. You will be sore and will have limited use of the arm on the side you had the breast removed. You may want to have some meals in the freezer that you can easily heat up in the microwave. Having some other easy to eat food and drinks in the fridge will make it easier for you. Taking your pain meds as directed and following the post op instructions that are given to you will definitely aid in your recovery.

We are here to support you, so know you really aren’t alone.

Do you have any specific questions we might be able to help you with?

Sending a virtual hug.

@JanW3 I had a bleeding nipple and went to my family Doctor who referred me to a breast specialist. In October 2018 I was diagnosed with DCIS following a lumpectomy. The Surgeon wanted to have an MRI done and a second larger tumor was found. This meant a mastectomy and I chose reconstruction. March 2019 I had my mastectomy and an expander was placed and had lymph nodes removed. This time I was diagnosed with triple positive IDC. Then I went through my chemo which included Herceptin. I didn't need radiation. My next surgery (after enough time had passed since my last chemo treatment) in July 2020 I had the expander removed and an implant placed on the left side and the right side was reduced/lifted.

I have experience with the recovery after a lumpectomy and a mastectomy. The lumpectomy is much easier to recover from. What I appreciated on the ride home from the mastectomy surgery was a velcro closure pillow that you put on the seat belt to add some cushion. I stayed with my mother after my surgeries and because of getting anesthesia it's a requirement to have someone with you for 24 hrs, I believe. Have button closure tops including pj's as you will have mobility issues with your arm that has the lymph nodes removed. You should be given exercises from your hospital that will help to regain the movement in your arm.

Any questions, don't hesitate to ask.

JMS
5 Posts
Hi janw3 I was diagnosed inMarch 2020 so had all my primary treatment in isolation. I have a teenager but sent him to live with family during my treatment. Chemo first then a mastectomy. I had a friend drive me home from surgery and had set things up so I didn't have to go up and down stairs, make meals etc. That and regular calls from family & friends helped. If you take your meds you'll sleep for most of the first few days but get up and move when you can.
Check on exercises because if you are going for radiation after you will need to lay on your back with your arm overhead.
All the best on Monday will be thinking of you. Is it okay to message you later in the week to check on you?
JanW3
12 Posts

Thank you you have been so helpful. And helped ease a lot of what I was feeling. I lost my partner of 28 years to breast cancer. I looked after her for nearly three years. i feel she is with me

JanW3
12 Posts

Thank you so much

JanW3
12 Posts

Thank you so much. You all have helped me

JanW3
12 Posts

Yes please keep in touch

JanW3
12 Posts

Anything you can share

JanW3
12 Posts

Yes please keep in touch.

@JanW3

I'm so glad you are making connections!

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Lacey

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