I have been going through all of my year 1 tests and everything has been great. My CT scans on Thursday show nothing abnormal. Hurray. I celebrated with friends in my bubble.
Then on Friday I got an email saying there was a new test result on MyChart so I went to look at it.
The Thursday report only included the lower abdomen (colon cancer). All the cancer there is gone. However, this second Friday report included my lungs.
And there was the crash. Good thing I have good friends who helped me forget about it for a couple of hours. But I woke up Saturday morning crying. What if…? What do I need to do before I die? I had to get up after a good cry and get motivated.
Last year they found an 8 cm spot in my upper right lung. They told me at the time that most people have them and not to worry. They would check again in 6 months. So, 14 months later I finally get a second CT scan. The spot is no longer 8 cm. It is now 19 cm. it has grown 11 cm in 14 months! And I am being referred to the Ottawa Cancer Clinic for assessment and treatment.
I am very upset that I got this report on a Friday night at 5:32 pm. Everything is closed. No one to call. No doctor to call me about the results. In fact, my oncologist is on vacation.
First thing on Monday I called. Someone would get back to me…. …… ….. …..
First thing Tuesday I called and spoke with someone. Told them the story again. Someone would get back to me …. … Didn't have to wait. They called a couple of hours later.
The report was flagged as soon as it came it and was referred for follow-up. That will happen within 2 weeks. Meanwhile there is a good chance I have cancer… again.
The good news. It is still relatively small and is in the upper right lung. This makes it much easier to get out. It appears to be a solid mass rather than anything else. That too makes it easier to remove.
Chemo was so bad last year they had to stop and start; stitch from pills to infusions and still stop and start and finally give up. I have no idea how I will handle something else.
@Lillee Hello….I am so sorry, to hear of this update , for lack of a better word. Up, down, round, and round, we patients go……it is dizzying….
I am glad you reached out to them, for help, for an explanation, for support…..they/staff are busy too…..covid put another layer on top of current needs of patients……just so difficult…..I do hope, that you will get what is needed, and very soon…..and it is wonderful, that you have a close knit group of friends! For a big, group hug!
We are all, also, here, for you.
Hugs to Lillee
I have never smoked. None of my friends smoke. In fact I am allergic to it. My father was a very heavy smoker when I was a child. But I have always lived in large cities. Who really knows. I never expected colon cancer either and the only reason they found either of them was due to testing. I had no symptoms of either one of them
@Lillee Well that could seriously ruin your weekend. I’m so sorry. Here are a couple of thoughts, from one who has had stage 4 lung cancer for 2 years and is still feeling just fine.
I assume you mean 19 mm, not 19 cm. That would take up your whole lung! Mine was 30 mm, and I was told that the bigger it is, the more likely it is to be cancer. So before anybody cuts anything out, I assume they’re going to do a biopsy to see if it really is cancer? And, if it is, to see if it’s lung cancer, or metastasized colon cancer.
Another reason to have a biopsy is to check for biomarkers - there are a growing number of genetically specific treatments nowadays, which would just mean taking a pill a day (targeted therapy, which is what I’m on) or getting a shot every month or so (immunotherapy), depending on the particular mutation. A lot easier than chemo!
You are back in that frantic tests-and-consultations phase that we all hate. But you’ve been through it before, you can handle it. I’ll be thinking of you, worrying about you, and hoping that it turns out not to be cancer. Please let us know how it’s going and what’s happening.
what a shocker! sorry you had to find out that way; and with no support, what a shame.
with technology comes things that ‘they’ don't think about. I wonder if doctors really understand just how much anxiety us cancer patients have over these reports? I am going to ask my doctor for an after hours number should I ever need any of my reports clarified. I LOVE getting the direct results, but if the medical profession has decided this is the way they want information shared, they should be willing to support us.
good luck with your story going forward. let us know as things evolve. we are here to support.
yes from 8 mm to 19 mm. My daughter recommended asked about biomarkers. I never heard of them before. Thank you. I love options that might become possibilities.
the spot is 8 mm to 19 mm NOT cm. Still small enough for a resection
I spoke with my oncologist this morning. There will be no biopsy. I go for the PET scan, pulmonary and blood tests this Thursday and then they will schedule me for surgery to remove it. Then they will decide what to do with me based on whether it is cancer at all, it came from the colon cancer or is something new. So as soon as they can schedule me after the test I will be in there to remove it. And the previous blood tests showed no tumor markers and no lymph node enlargements
A biopsy is scheduled for Fri. July 16.They need to know what kind of cancer or if it is even cancer so they can decide what kind of surgery to do. If this is lung cancer they have to remove the surrounding tissue. If it is from the colon cancer they can simply remove it. Same if it is benign - just remove it.
No other tumors were found anywhere in my body. It has increased by another cm in the month since they found it. Still considered a slow growth cancer but I still want it out asap.
I didn't pay too much attention to these posts because I think of you as a brave colon cancer patient. This is definitely a twist in that path.
If I read the posts correctly today is surgery day. Best of luck. And take care as you rehabilitate. I wanted to take a moment to reiterate what @Kuching said. #LungCancer is much more treatable today than it was even three years ago when I was diagnosed.
If it does turn out to be lung cancer make sure you ask about biomarker testing. I suspect the reason that they skipped the biopsy step is because they knew it was coming out anyway. But make sure they don't skip the testing. There should be about eight biomarkers that they should be checking for but this isn't standardized across Canada yet. Each one has its own treatment.
Again good luck with the surgery and even though it was followed by bad news congratulations on sailing through the colon cancer treatment.
Brightly is this you talking about lung cancer ?
With disease we all need as much support as we can get. The medical system in Ont. really sucks right now and especially if you are waiting on a cancer diagnosis or update.
I hope I can help one person in one way. I was worried that you were now dealing with it.
Good to hear you aren’t !