Hello @SpeedyStill. Thank you for sharing all that you have here. Your contribution here is very important, and may be helping others along the way. I think maybe it remains to be seen just how much in common your story has, with the stories of others; but I do know that several things you have written above do ring a bell for me. My wife & I can relate to the losing of community supports, as it seems that the longer a critical or terminal illness drags on, the more people stop coming around. I would guess that the reasons vary from person to person as to why this happens, but I know in the case of home care, so called, I was just told the other day that there is no room in the budget for "respite care" anymore. I am still in shock over that one, but the same seems to happen also with family and friends. The first year, all kinds of people would come around, but as time wore on, it has dwindled to almost no one coming around. I would like to comment more on this, but am really short on time, (and energy) so I would like to leave the following comment, if I may.
Every discussion needs different points of view. Thank you for yours. I do have on going discussions with my Doctors and Pharmacist about my medication regiment.
I had two things in mind when starting this discussion
1. To bring attention to the fact that no one other than your Doctors or Pharmacist should tell you what drugs you should be taking or that you are on too Many drugs.
2. I have lost the support needed from the community that I have depended on for years.
Therefore I reached out to this my new community Cancerconnection.
I have found that this is something that has really helped me, and like you said, perhaps all the little bits and pieces here, from all the others above, will give you something you really need at this time too:
I will love the light for it shows me the way; yet I will endure the darkness because it shows me the stars