Log in or Register to participate in these discussions

Juravinski or Princess Margaret? Your experience?

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Jul 31, 2018 7:12 am

nancy180‍ 
That is awesome that you were diagnosed on a Thursday and met with a team on Tuesday. Incredible really.

I had  core needle biopsy on July 13, got partial pathology results on July 19th, and I am STILL WAITING for the rest of the pathology results, 18 days later!!!  Too long!  My initial oncology appointment at Juravinski is not until August 9th.

I am not happy at all with all these delays.  From reporting the lump to my doctor to my appointment on August 9, it will have been nearly TWO MONTHS!  And I have metastatic breast cancer. This makes me very apprehensive, given I have a visible 3 X 4 cm tumor jutting out from my chest.  

I don't understand why everything has gone so slowly.  I looked up biopsy wait times in Ontario and 85 % of cases get full results within 14 days.  I feel like some error must have been made or they are doing the wrong tests or something because on my first pathology report it says "Lymphoma protocol.".  I don't have lyphoma!  The radiologist took TEN core samples which I feel is way too many to have taken for a metastatic breast cancer tumor. I am afraid he has ruptured the lymph node with the tumor and the cancer cells have now flooded my body.  

Amicas

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Jul 31, 2018 7:17 am

Feenix‍ 
I don't know anything right now.  I had assumed my treatments would be at Jurvinski in Hamilton.  

As I expressed in my post above, I am incredibly frustrated by the slow pace that everything is taking.  The wait time for the biopsy and the initial appointment,---both are WAY too long, and seem far outside of normal wait time parameters.  
It makes me incredibly frustrated and anxious. I will call my family doctor today and beg her to try to get a move-on with my pathology results because I am very much going to need those for the initial appointment with the oncologist.!!!
I am afraid they have already written me off as a hopeless case and thus are in no rush to see me.  I am worried they won't even provide treatment but will just tell me to go away and die someplace.  

take care,
Amicas

 

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Jul 31, 2018 8:13 am

Feenix‍ 
At Juravinski, did you first meet with the oncologist? Or did you meet with surgeon, radiologist , oncologist team all at the same time?
thanks
Good luck with your treatments.  Let me know how it goes, let's keep in touch.  I am either going to be stage 3 or 4, so I am very afraid.
take care,
Amicas

Re: Juravinski or Princess Margaret? Your experience?

Posted by MomofMat on Jul 31, 2018 4:53 pm

I have absolute faith in both hospitals. My son has been battling metastasis testicular cancer for 2 years. Juravinski saved his life! He has had 5 major surgeries. 4 of which have been at JCC, 1 at St.Joseph's. The care and kindness we received during the chemotherapy process, and surgeries was the best. This year our oncologist at Juravinski recommended my son to see a team at Princess Margaret. Only because they had done all they could, and felt another specialized team could help. Mathew has just finished a second stem cell transplant at Princess Margaret. The care there is aalso very well. Our specialist we don't get to see as much as we expected, but we are fully aware of hhow the system works. They all work as a team! ...I would support either hospital in a heart beat! I to believe that Princess Margaret is the best in Canada we have for specializing in cancer, and gir research. But I am also confident in Juravinski, as they themselves made the call for us to be sent to Toronto!  Good luck to you, and know your not alone! 
 

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Aug 1, 2018 9:05 am

MomofMat‍ 
I am so sorry your son has had to go through all of this. I actually used to work in the area of blood and bone marrow transplant.  I hope so much for you that this second transplant has a good outcome.  How is your son doing?

Thanks for your feedback.  It sounds like both Juravinski and Princess Margaret are good hospitals.

take care,, and sending healing thoughts to your dear son
Amicas

Re: Juravinski or Princess Margaret? Your experience?

Posted by Feenix on Aug 6, 2018 7:42 am

Amicas‍  My GP set up an appointment with my surgeon, who was the one who actually told me I had cancer.  He referred me to my oncologist, as I had to have chemo before surgery.  I just met with the radiation oncologist this week to talk about radiation after surgery.
Waiting is so hard, and super frustrating.  I completely understand your anxiety.  Even a few days waiting for results can seem like years.  It's hard to let go of the anxiety and fear for sure.
Good luck with your appointment!
Take Care
Feenix

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Aug 6, 2018 8:28 am

thanks Feenix‍ :)

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Aug 25, 2018 7:30 pm

Now that I have progressed further at Juravinski I will simply note these things:

- there is NO on-call physician for after-hours or weekends, you are on your own
- there is NO psychosocial support whatsoever - you can see a social worker one time, after that you are on your own
- as an out-patient they do NO physical exam of you at all-- I mean, listen to your lungs, check for edema etc,---you are on your own or must see your family doctor for that.  

I don't know if this is typical of cancer care in Ontario, or it is just the case at Juravinksi but
I AM NOT IMPRESSED.

Re: Juravinski or Princess Margaret? Your experience?

Posted by breastcancer61 on Aug 26, 2018 7:38 am

I had a bilateral mastectomy March 9/18 at PMH.  It all started great met the team they were all positive and helpful.  Two weeks after surgery I got a nasty infection and phoned my surgeon, they were on holidays and I was told to go to the emergency.  I had then massive draining and burping coming from wound and was told by the surgical nurse to use a bandiad !! Things just got worse, I received no help with  cording, frozen shoulder or lympodemia.  I am also waiting for a second referral to an-oncologist since April 5th.  It seems they just want to make money from the surgery and do not care about you after. 

Re: Juravinski or Princess Margaret? Your experience?

Posted by Amicas on Aug 30, 2018 9:25 pm

I'm sorry to hear that breastcancer61.  I hope things are better now.

Yes, Juravinski just doesn't offer a lot of resources, like a Lymphedema Clinic.  It's kind of mystifying.  

Do you mean that you asked for a second opinion? or do you mean a transfer to another cancer hospital?

Re: Juravinski or Princess Margaret? Your experience?

Posted by Boby1511 on Oct 3, 2020 1:32 pm

I liked Juravinski. Had my surgery there. A doctor from the "team" checked on my daily. Also my surgeon Dr J, came once daily to check me. So I had a min 2 visits a day.
I don't live in Hamilton, but Dr J in consultation with the sarcoma team recommended my chemo. Dr J also has returned my calls and provided a second opinion of my new tumor.
Dr J also offered to do my next surgery (if it was an option, no longer an option), so I didn't have to get it done locally. I think they would have botched it locally, not as much talent here.
I really think Dr J is one of those doctors that got into it to help people and hes at Juravinski. 
My local oncologist is nice, not a surgeon and no experience with sarcoma, but I still trust him, he seems genuine. 
There is no weekend help locally either, have to either call the cancer after hours line or go to emerge. And that cancer line just redirected me to emerge both times, they weren't much help. Course I'm still waiting on palliative care so maybe they will offer more.
Sending you all out best wishes for strength and peace.