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Newbie!

Newbie!

Posted by TJAG on Jan 7, 2019 7:00 am

Diagnosed Jan 2 ( Happy New Year!with stage 4 thyroid cancer that has a large growth in airway spread to lymph nodes and throat and lungs. I’ve known that there was a blockage in my throat for almost a year and have had laryngitis ( paralysis of a vocal chord) for 6 months. Doctors missed it, specialist misdiagnosed it as acid reflux started coughing up blood at New Years went to emergency but released. Thankfully referred for a cat scan. I’m a 51 year old male that feels quite healthy despite only having 10% airway. I’m a pipe welder that loves my job and I’ve worked 60 hours a week every week for the last several years. I have a tremendous support group of family and friends and am now waiting on specific type of thyroid cancer and treatment plan. I have lots of questions and appreciate a forum to learn from. 

Re: Newbie!

Posted by ACH2015 on Jan 7, 2019 9:01 am

Hi TJAG‍ 

I am tagging Joni28‍ and Corrina‍ into this post. Both have identified as dealing with Thyroid Cancer themselves and may be able to answer some more specific questions.

The link below is the discussion page from the Thyroid Cancer page on this site. To access from the main site, click on Forums, then Cancer Types, then choose Thyroid Cancer from the menu.

https://cancerconnection.ca/discussions/viewcategory/78

This link is from the Canadian Cancer Society, has good general information about Thyroid Cancer.

http://www.cancer.ca/en/cancer-information/cancer-type/thyroid/thyroid-cancer/?region=on

Each of our situations will be different, and that means a treatment plan designed specifically for you. It's always suggested to write down any questions you have prior to the first consult, bring someone with you to help write down the answers, and grasp all that is going to be discussed. It can be overwhelming at first, and once the treatment plan is formulated, the process starts to move pretty quickly.

Its very good to hear you have a great support system. Don't be afraid to accept help as needed. Transportation, meals, company and keeping yourself as normal as possible will help with putting away those fears and concerns we all have with some positive distraction.We can't change what has happened, but we can manage the way we deal with it. That is what I learned, and have tried to work on as the experience has moved forward.

Keep well, and keep in touch with any questions or updates.

ACH2015 - Andy.
 

Re: Newbie!

Posted by Lacey_adminCCS on Jan 7, 2019 9:43 am

Welcome TJAG‍ 

Glad you found us. Talking with others about their experiences can really help you feel less alone.


Andy has given some great info. Please don't hesitate to post any questions or concerns you have. We are hear to listen and to support you.

When is your next appointment? What happens next?

Lacey

Re: Newbie!

Posted by TJAG on Jan 7, 2019 2:58 pm

Results of biopsy on Friday with treatment hopefully! Thanks guys!

Re: Newbie!

Posted by Corrina on Jan 10, 2019 8:24 pm

Hi there,
sorry to hear what u are going through .If u have any questions I would be happy to answer any !

Re: Newbie!

Posted by Lacey_adminCCS on Jan 11, 2019 12:29 pm

Corrina‍ - Thanks so much for offering your support. Where are you at with your experience?

TJAG‍ - Please let us know how it goes today. Thinking of you

Re: Newbie!

Posted by wds on Feb 3, 2019 2:14 pm

Hi TJAG‍ - my heart and prayers are with you. Its very aggravating that the doctors missed that, hopefully they can help you out now that they know about it. I've was diagnosed with thyroid cancer a couple years ago and treatment has helped, hoping and praying it will be the same for you. Please let us know if theres anything we can do to help you. My best wishes.

Re: Newbie!

Posted by Ivz on Jun 6, 2019 10:29 pm

Hi TJAG‍ 
I hope that you are well,
I guess yu and I have a bit similarities .Im just curious what is yur prognosis and which hospital do yu go to..
I had my both thyroid and half of my trachea out and lungs metastses,and did RAI 131 twice.and now waiting for my scan result...
i can answer questions that are related ro my case and my experience and would love to know other peoples prognosis as well .
thank you and more power
ivz

Re: Newbie!

Posted by TJAG on Jun 7, 2019 12:11 pm

Wow! You went  through the ringer! Sorry I am tardy on here. I lost my login. First of all, I highly recommend you get on RAI resistant thyroid cancer with distant metastasis on Facebook. Unbelievable resource. I was spared losing my trachea so far but they left some cancer up against it and RAI (200 dose) didn’t work so it might be in my future. Did you have a traych put in? Is it still in? My name is Todd. I connect with a similar diagnosed guy and it helps. I am in Kitchener area of Ontario. You?