My name is Jess and I started my diagnostic journey a few months after I married my wife. A routine blood test at my family doctor found me with high platelets and liver enzymes. I had an ultrasound and they found an enlarged liver. I visited a hematologist oncologist and was told that I have a mutation called JAK2 and that I likely have Essential Thrombocythemia, which is a blood cancer under the family of Myeloproliferative neoplasms.
Lately my blood tests have been changing and it is possibly that I now have myelofibrosis, which is a much more extreme and deadly cancer under the same family of diseases. I just turned 30 in May and am struggling while I await my bone marrow biopsy which will hopefully give me a more firm diagnosis.
Since I was recently married I find planning my life to be the most heartbreaking process considering that I may not have all the time I had originally thought.
Any tips for getting through the waiting game would be much appreciated.