Myeloproliferative neoplasm

I should say, this is a rare disease that only affects 1.5 in 100,000 and is technically not a leukaemia rather a chronic “blood and bone marrow” Cancer. 

Hi Jholmes‍ - Lacey_adminCCS‍ tagged me on your other post but I figured it's just as well I respond over here! I don't have a blood cancer - I had colon cancer - but I'm 35 years old, married and I have 3 kids. Was diagnosed when my youngest was 9 months old this past April. Going through a cancer diagnosis with all the uncertainty at such a young age is A LOT. My cancer was caught early and I still have difficulty planning for the future and feel like I need to preface everything with "as long as I'm still ok". One coping strategy that worked for me is to focus on what I know to be true today, not what might be true tomorrow or in 1 year or 5 years or 40 years... Another thing that I kept telling myself while waiting for results is that whatever is there is already there, the only difference in knowing is that I can do something about it. 

Have you received any further test results or a firm diagnosis since you last posted? If you are up to it, let us know how you are doing. I'm still new to the forum and don't know who has experience with blood cancers but maybe Lacey_adminCCS‍ or Wendy Tea‍ can tag a few others who may be able to help/relate.

How is your wife coping? There is a caregiver forum on here and lots of info/support available for her as well. My husband often explains it to others that the cancer doesn't just affect the person who has it but the whole family (in different ways of course). The Cancer Society Peer Match program was cancelled but Wellspring has a peer support program as well (all telephone/virtual now) and other supports for those with cancer and their caregivers/family.

Sending you virtual hugs ❤

Jholmes‍  As suggested by alexisrj‍  I have done a member search and you are indeed a rare breed. The good news is you are posting in all the right places to find someone who can help us. I was not able to find anyone who matched your diagnosis.  Please try to keep your spirits up as Canadian doctors fight really hard to have successful outcomes.