Posted by Jan5 on Dec 4, 2020 10:59 pm
Posted by Whitelilies on Dec 5, 2020 7:11 pm
Posted by Cynthia Mac on Dec 6, 2020 7:18 am
There is a section under “discussions” for “Cancer Types” and there is one for “Uterine”. There might be some information there that you could find, so I provide the link to this section below:
You will probably find some of the ladies Whitelilies Tagged in her post there, too, and if you want to reach out to them, you can magically do so by typing the @ symbol immediately before their name (like this: @Cynthia) After a few keystrokes, a drop down will appear of all the people who have names starting like that and you can pick the one you want.
Posted by Kathy49 on Dec 6, 2020 11:26 am
Oh, I didn't know I could make paragraphs here. Anyway, that is my story of having treatment after surgery which is (1) following my condition and the (2) treatment of the brachytherapy.
I hope you get well soon, and I'm sending my best wishes.
Posted by Cedar on Dec 6, 2020 11:44 am
I'm not sure if sharing my experience helps you in your decision, but maybe there are others who can weigh in as well. Wishing you well.
Posted by Boby1511 on Dec 7, 2020 3:04 am
I have uterine adenosarcoma with sacromatous overgrowth. 😉 It's a long name. Its a soft tissue sarcoma that originated in the uterus, so not exactly uterine cancer.
They took everything out tubes, ovaries, uterus, cervix, parts of the pooper, nips of other things.
I had a high grade large tumor. I am stage 4 with a recurrence and now terminal.
Have they discussed non-invasive surgery options?
Surgery was not an option for me. I was near death when they did emergency surgery.
It was quite painful and surgery was quite painful. But I have recovered (mostly) from surgery.
Toronto has non-invasive surgery options if caught early. There is a wait time to get in.
Perhaps get a second opinion?
Posted by Boby1511 on Dec 7, 2020 3:13 am
Did they mention a covid test? I have had several now. Every time in hospital they seem to give me another.
Maybe the home nurse care is exempt for the 2 weeks? Or if they are then maybe request a covid test?
Wishing you well on your treatments.
Posted by Kathy49 on Dec 7, 2020 1:27 pm
Posted by Cmfrank on Dec 8, 2020 1:17 pm
Posted by Boby1511 on Dec 9, 2020 10:59 pm
hi there, sorry to confuse.
Meant a covid test to help with the LHIN scheduling. You mentioned the quarantine after surgery.
You can get a covid test in hospital. I have had maybe 11 now. Every time I have had to go back in they have given me another.
Sometimes twice as they had the student nurse do one and they decided it wasn't far enough up the nose!
So I got discharged from one hospital to get admitted to another hospital. I got a covid test before leaving hospital A, results back, all negative, I get to hospital B (by Orange plane), and hospital B quarantines me till I get another covid test there! Was like 3 hours after hospital A! And anyone entering my room had to get in full dress while they quarantined me! Complete waste of resources given I already tested negative hours before!
Orange is air ambulance, they don't let you on the plane till your covid results are back same day. Complete waste of resources.
Wishing you well.
Posted by Jeg on Dec 15, 2020 10:49 am
This whole process and waiting time feels unbearable and with covid and hospitals near breaking point WHO knows when I might get the surgury. And then what will surgeon find?
I am terrified, have not told anyone except my husband (have 3 sons living at home) and I'm just wondering how to manage the anxiety, and what those with experience think of the timeframes?
Posted by Brighty on Dec 15, 2020 11:59 am
you might find it helpful to talk with the oncology social worker about your fears and feelings. as well,be in regular contact with your health care team. Thry may be able to give you something to combat the anxiety. I found oncology social worker so helpful as a caregiver. When you're ready to tell others ,embrace the support and love they will show you.. only tell when and if you are ready. People can surprise you with how much love and support they will show. You showed courage by posting and reaching out and I'm here to tell you you dont have to go through this alone. We will be here with you, all the way...and any more questions please dont hesitate to ask or call the info line at 1888 939 3333. Welcome!!!!
Posted by Tilly59 on Dec 15, 2020 1:45 pm
I had uterine cancer stage 4b. I was first diagnosed in December 2017. I had a full hysterectomy in January 2018, followed by 6 chemo and 25 radiation treatments. I should mention that I will be 60 years old this month, and I am overweight to a certain degree. I also have a number of additional medical conditions, including type 2 diabetes, asthma, and psoriasis. So my prognosis is not good. But I am going into my fourth year without the cancer being active. My recommendation is that you do what you think is best for you. And always press the doctors to answer your questions. Please take good care of yourself!!
Posted by Jeg on Dec 15, 2020 2:03 pm
I hope 2021 keeps you in the clear,
Posted by a3a on Dec 18, 2020 11:12 pm
I saw your post, and wanted to pop in and say hello.
I had a aggressive form of uterine carcinoma diagnosed last December. Fortunately it hadn't spread, so I had a radical hysterectomy followed by vaginal vault radiation. I was apprehensive initially about the radiation, but decided to put my trust in the specialists, as they know so much about treating cancer. It's almost a year later and I'm feeling very well. We have a new puppy, Barney, and are enjoying his antics, and appreciating each day.
Be good to yourself during this difficult time--I found napping was very beneficial. I found uplifting or funny books a source of comfort on days when I didn't feel like getting dressed right after the surgery. Word searches helped pass the time too.
Wishing you all the best, Ginny
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