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I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Kathy49 on Feb 14, 2020 11:17 am

Hi,  I'm a member and I posted in late 2018 and 2019 about my breast cancer.  They did a complete mastectomy and all seems to be fine.  As I have written in the title, I woke up at 4am in a puddle of fluid.  I will describe this - it might be gross or upsetting to some and if so, you can choose not to read it.
 

After that shock, I feel I was very badly treated yesterday at the Hospital.  Early yesterday morning at 4 am I woke up in a large puddle of fluid from the vagina.  There was about 1 ½ cups of it, moderately thick, slippery and light greenish.  There was so much that the bed was wet and it was dripping down my legs when I went to the bathroom to clean up.  At 9 am I called my doctor and he said to go to Hospital emergency, which I did.  They treated me like dirt.  They marked the triage only "Vaginal Discharge" so that put me as the last person they would see.  I waited 7 hours and the last hour of that was sitting on a narrow exam table naked from the waist down (in a gown) with no rails to hold onto and because I had a lot of pain and am disabled, I thought I was going to fall.  After ½ hour like that I called "Help?" and finally someone came and I said I'd been sitting there for ½ hour and they said "Oh well the doctor is busy".  I told them I was in a lot of pain and couldn't sit up for long.  After another ½ hour (1 hour total) I was furious and I put my clothes back on and walked out without having anything done.  All they were going to do was a simple vaginal swab and they couldn't even do that.  My doctor told me to go there to have an ultrasound and a swab.  I passed a doctor in the hall as I was leaving and told her about it and she said what I went through was awful and that department has a lot of problems and I should write a letter.  So I still don't know what caused what happened to me and now I'm worried I have uterine cancer or something, or ovarian cancer because the pain in my lower right side is much worse after it happened.

Has anyone else had this (large expulsion of liquid from the uterus/vagina?  My lower right side pain has been much worse since it happened and I can hardly walk, and this is why I'm wondering if there is something wrong with an organ on the lower right side, like the right ovary, right kidney, gall bladder etc.???

Last night into this morning Feb. 14 there was only a bit of discharge.  I've had this discharge (it was mostly clear, not light green as on Feb. 13) for about a year or more and every few months I told my doctor about it and that it was of a quantity that I had to wipe myself with a towel after urinating, to clean it all up.  I've also had this bad lower right side pain for about a year or more, sometimes it was so bad I couldn't stand up and the doctor gave me a muscle relaxant which helped a bit.  After the big discharge on Feb. 13 however now I'm thinking maybe it is not muscular at all but the pain is from an organ there (as I mentioned).  As I said, the pain is so bad that I can barely take a step forward (luckily I have a walker).

Does anyone have any comments please.  (I've made an appointment to see my doctor's nurse who will do a swab in the office and hopefully write a request for an urgent ultrasound - I'm not going back to that emergency department and be treated like that again.)

screen name Kathy49

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by ACH2015 on Feb 14, 2020 1:27 pm

Hi Kathy49‍ 

I saw your post and there are two very important things here:

First - you need to get your situation and symptoms assessed for diagnosis and treatment. You indicated that will happen at your doctor's office at your upcoming appointment. Is there another hospital you could attend should pain and discharge situation get worse or occur again? You are the best judge, but if you need medical assistance - the hospital is the place to seek immediate assistance.

Were you or are you able to get a sample of the fluid for testing? Do you have a small container of some type to get a sample if this occurs again prior to your consult? if you do, keep it in a zip lock bag in your fridge until your appointment.

You mentioned this has gone on for a year or more, and said you had also advised your doctor previously. Write down as much history of the discharge, pain and anything else you believe relevant to give at your upcoming appointment.

Next - The hospital. This link Contact us (contains the information re the hospital in question) needed to make your complaint about your experience. Open the link and click on the Comments page Hyper Link for direct patient relations contacts.  I'd recommend you do in order to bring this to the attention of the appropriate manager/administrator. This both for yourself, and preventing another experience from occurring down the road.

I can't speak to the possibilities about why or what the discharge is, and hope the suggestions and support helps you in moving forward.

Not your fault, the hospital was in the wrong. Please keep us in the loop as you move forward.

Keep well

ACH2015

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Aiefe on Feb 14, 2020 4:03 pm

I don't know where you live, but here in Manitoba we have CancerCare.  Once you have been diagnosed with cancer, you are able to contact them about any problems you are dealing with.  It is so much easier to deal with people who are aware of what you have been going through.  As to your question about the discharge.  Yes, I did have an experience like that once.  In fact it was that experience which led me to the ultra-sound which found my rectal cancer.  I don't know why your doctor wouldn't have looked into this when it first happened.  Tell him how upsetting it is to you and hopefully he will set up an appt. for an ultra-sound asap..  Good luck!

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Kathy49 on Feb 15, 2020 3:38 pm

Hi Aiefe,

Thanks for your reply.  May I ask..... if you were diagnosed with rectal cancer, did your discharge come from the vagina or the rectum?

Thanks.  Kathy49

Also TO ACH2015,  I sent you a reply but I don't see it here.  Did you receive it?  Thanks.  Kathy49

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by ACH2015 on Feb 15, 2020 3:56 pm

Hi Kathy49‍ , Kathy.

I didn't see a reply, perhaps it did not post correctly when you sent it.

I'm just hopeful my response was of assistance, and you are moving forward as best you can on both fronts.

Keep in touch and let us know how you make out.

ACH2015

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Kathy49 on Feb 15, 2020 10:11 pm

Hi ACH2015,

Thanks for your reply.  My doctor's nurse will do a vaginal swab of the cervix and will probably write a request for an Urgent Ultrasound.  After yesterday, I am still very upset and what with PTSD from being raped, events like this (where I'm treated badly" make me very depressed and I can hardly do anything all day.

I certainly don't want to go back to that Emergency Dept. at this point.  I had assumed that because my doctor is a part of the hospital team, I would at least be treated with respect.

When I got out of bed at 4 am with the liquid dripping down my legs etc. I did grab an empty clean jar and I put some of the fluid in it, I also put my wet panties in the bag with the sample.  No one ever asked to see those things even though I mentioned that I had them.

No one thought much about the discharge in the past year or more, including myself, because it didn't smell and wasn't coloured.  There was enough of it, even way back, that I had to use a towel almost every time I urinated in order to dry myself off.  But the doctor was kind of making a joke saying that if I were sexually active (I'm not) this slippery discharge would be wonderful to have as a lubricant.

I'm in the process of writing a letter to the hospital Chief of Staff, I can't find the name of the Director of Emergency, with all the details.  I was there alone, as I always am, and once again I didn't have the courage or presence of mind to use my iPhone to take photos of the clocks and where I was sitting, and how long I was in each area (time of arrival, time of movement to the next room etc) and a photo of the hard table so high and narrow.  I'm mad at myself for not taking photos.

I may also fill in the on-line complaint form and thanks so much for giving me that info.

I had hardly any discharge this morning, but that large amount yesterday definitely is not normal.  There is another hospital about 45 minutes away but that is a long distance for me.  I rarely leave the house any more.

Thanks so much for writing a long informative reply.

Kathy49

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Kathy49 on Feb 15, 2020 10:22 pm

Hi everyone,  after I had that slippery, semi-gelatinous, light green 1 ½ cup discharge out of my vagina at 4 am Feb. 13, I have an excrutiating pain in my lower right side.  It is so bad I can barely rise from sitting, and barely walk.

Can anyone tell me if lower right side pain might be a symptom of ovarian cancer, cervical cancer, uterine cancer, kidney disease, appendicitis and/or gall bladder disease???

I'm asking because I've had bad pain there for just about as long as I had the small quantity of clear, unscented discharge from my vagina, i.e. about a year and a half.

My doctor has been constantly telling me he thinks it is muscular pain and finally he prescribed muscle relaxants, but they really have done no good.  I also take about 10 mg of dilaudid (2 mg each pill) and it doesn't relieve the pain either.

I'm starting to think seriously that it is not muscular at all, but that the pain is being caused by an organ in my lower right side.  The fact that the pain is much worse after the discharge makes me think there might be disease in a part of my reproductive system (since the discharge came from my vagina) and the pain is so much worse.

and Yes I am going to call the tele-health number that was given to me here in this "thread".

Thanks.  Kathy49

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by jorola on Feb 15, 2020 11:14 pm

HI Kathy49‍ 
It is understandable your experience is very troubling for you.  I had somewhat of a similar experience. It ended up it was a cyst that burst. The symptoms you describe could be linked to a number of conditions and as I am no doctor I can't comment on what yours might be. Following up with a swab is a good start. I would see your dr. Preferably your obg/gyn if you have one. An ultrasound might be needed to see what is going on inside. Your dr can order that test.
All the best to you.
Live, Laugh, Love

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Kathy49 on Feb 16, 2020 9:36 am

Hi Jorola,  Thanks for your reply.  Did they confirm your cyst with an ultrasound?  or MRI?  Kathy49

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by jorola on Feb 16, 2020 11:15 am

Kathy49‍ they were able to tell from an internal exam.
Live, Laugh, Love

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Aiefe on Feb 16, 2020 12:58 pm

Hi Kathy - I'm Aiefe - you asked me about the fluid discharge I had from my rectal cancer.  My tumor was very low on the rectum and rather odd in that instead of growing outward, it grew inward into the wall of the vagina.  The wall of the vagina had a tear in it from the tumor and the fluid leaked out through the vagina.  I am not sure what it even was.  All was repaired during my surgery.

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Kathy49 on Feb 16, 2020 1:16 pm

Hi Aiefe,  Thanks for your reply.  It is very interesting.  I'm going to see the nurse at my doctor's office (the doctor is busy and can't see me) on Feb. 18 and she is supposed to do a cervical swab and inspect the area.  I'm hoping she will write a request for an urgent ultrasound, and I was thinking this morning that I want a consult with an internal medicine specialist also.  Or a ob/gyn, or both.  Thanks for writing.  Kathy49

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Jlo on Feb 16, 2020 4:21 pm

Hi Kathy49

i am sorry to hear of your symptoms and don't really have any suggestions for them.  You were asking about uterine cancer.  Mine presented with vaginal bleeding and then I spotted every day.  I was initially sent for an ultrasound and a polyp was detected along with the thickening of the lining.  I had some intestional cramping but it was not severe.  Some polyps are cancerous, others ars not.  I would keep bugging your doctor to get a solution or perhaps you can get another opinion.    

jlo

Re: I Woke Up at 4am In A Puddle Of Fluid- What Does This Mean?

Posted by Elsie13 on Jul 5, 2020 10:24 am

Kathy49‍  , I think this is the previous discussion you were looking for.   I was just looking at your July 4th post about the pulmonary embolisms. So sorry you have all this going on.   I think it's terrible the way the Emergency Department treated you (February) - Oh just some minor discharge. 

You mentioned that your brother is a doctor but not emotionally available. I wonder, if you are talking to him, kind of challenge him on a medical level...."Why did this happen?  Are my doctors doing the right thing?  What else could be done?"
In 2016: diagnosed with stage 2 ovarian cancer. Treatment: hysterectomy, chemo, radiation. Afterwards: No Evidence of Disease!