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Post Surgery PSA Results

Re: Post Surgery PSA Results

Posted by Jackwb on Mar 21, 2020 10:58 am

We'll see how his wife handles it, the last time she was dropped off for a day, she cried for four hours and he had to take her home. He says that this time, she will not be coming home.

He's having pain issues from the TUIL, says it's much worse than the TURP. Rather than getting a Foley catheter, he uses a one time use kind...has to push it in, drain, then dispose. He has daily visits from the VON but they have run out of catheters so yesterday he bought 42.

Yes, we came back last Monday, about 3 weeks early. To compensate our landlord wants us to come down three weeks early next year. We may accept the offer but let my daughter use it until we come down. It was crazy down there, we had 450,000 people from all over the world down for Bike Week and the beaches were packed with the spring break kids. Last Saturday Volusia County had two cases, yesterday they had ten.

We found our first case up here yesterday, a lady who had returned from Minnesota. We're in voluntary isolation for another ten days but the border guard said that we can still go out but must stay away from people and not to socialize. If we develop a fever or symptoms then we have to go into voluntary quarantine and contact the Ontario public health authorities and the local doctor and hospital.

So far so good. Scary times.

Re: Post Surgery PSA Results

Posted by WesT on Mar 21, 2020 11:12 am

Jackwb‍ disposable catheters....  Eeek I get squeamish just thinking about trying to do that myself.... Does Costco sell those in bulk?


Have you been out on your bike since getting back?  Yesterday morning would have been nice for a ride.

Re: Post Surgery PSA Results

Posted by Jackwb on Mar 21, 2020 11:44 am

He buys them at the local drug store...

Yes, I've been out every day since we got back, did only an hour this morning, may do another after lunch. Very cold day today.

My issue now is that I'm scheduled for blood work in April wk 1 and two assessments later in April. I'm not sure that I can or want to go LifeLabs that week but the clinics will probably be closed...at least they should be.

Re: Post Surgery PSA Results

Posted by WesT on Mar 21, 2020 11:49 am

I was kind of joking since he bought so many...,😁  I should have used a smiley face but it really isn't very funny.

Good you have been out and about.  Yeah, yesterday I took the dogs out at 7:00 and it was 15 degrees, this morning -8.  Only in Canada I guess!

Should be easy to get an appointment next week at LifeLabs, assuming they are not doing virus testing.  If they are, I would stay home.

Re: Post Surgery PSA Results

Posted by Jackwb on Mar 22, 2020 8:35 am

I'm not sure if LifeLabs will be open, everything in town is shut down except for the grocery stores, the LCBO, and the gas stations. A few restaurants are doing take-out and you can't get through to the pizza places. All of the dentists, eye doctors and other businesses that require human to human contact are closed. Hope they make it through this.

Another 10 days in self-isolation and everything is still good but what worries me now is that we have a lot of snow birds in town and they're all starting to return. Florida went from about 100 cases 6 days ago to over 800 yesterday, and with a 10-14 day incubation period the effects of bike week and spring break are yet to seen...those hundreds of thousands of people went home to everywhere. 

Re: Post Surgery PSA Results

Posted by WesT on Mar 22, 2020 8:44 am

Yes indeed.  My wife is still in Florida returning on Thursday (if flights are still coming by then).  It seems the some American press outlets are not taking this as seriously as the rest of the world so they are not understanding the seriousness of this there.  

Re: Post Surgery PSA Results

Posted by Jackwb on Mar 22, 2020 10:26 am

Keep your fingers crossed. A friend flew on Delta from Rochester to Daytona last Wednesday, the flight was limited to 30 passengers and they had to wear masks and gloves.  Things are much worse now.

My daughter works at Queens Park and gets hourly updates on the confirmed cases in the U.S.. The numbers went from a few hundred to about 10,000 per day in a matter of a week or so. Wishing that your wife stays safe.

Re: Post Surgery PSA Results

Posted by Al_XB on Jun 2, 2020 10:27 am

Last Christmas chart. Ignore the 9.65 as it skews the trend line. In fact, I should have taken it out.


4092b98956ba27db7847a2ee9e5dbcf5-huge-ps
 

Here's an update on my experience today for anyone following this or is curious. Due to Covid-19, my doctor called me by phone from his home to do my 6 month follow up. No getting ready, No waiting, no forms to fill in, no time spent travelling, no parking fees, no pollution, no rectal exam! Best follow up ever!  The bloodwork was done on 19 May 2020 (an hour wait with mask and gloves on, but at least the lab was open). The doc said the PSA was now 7.54. He said it does vary, and he’d be worried if it was above 11 or 12. He considered it relatively stable but wants to do an MRI or biopsy in a year (June 2021). He’ll do another follow up in 6 months (Dec) and see what it reveals. Blood work requisition will be sent in the mail with next appointment date.  Take care everyone. As B.C.'s Dr. Bonnie Henry says.. be kind, be calm and be safe. 

Here is a new graph which might be of interest due to the variability of the results. And I'm 72 if you were wondering.

441d4fbc952442b244ee34468af82a47-huge-20
The bottom numbers are in # of months

Re: Post Surgery PSA Results

Posted by WesT on Jun 2, 2020 3:29 pm

Al_XB‍ Yes there are things that can temporarily elevate your PSA so that is good that the one test seems to be an abnormality.  Good news then, I assume.

I rescheduled my next meeting with my urologist to June 30 (it was May 26th) and made an appointment for my test this morning.  I get the test on Monday and that should be enough time for him to get the results.  Still a little concerned about going in for the test but I am sure that they are taking all the precautions.  When I make an appointment the longest I have had to wait was about 7 minutes and I do still have masks and gloves to wear.  I am hoping that a lot of others have canceled or postponed their appointments so I don't have to sit in the waiting room at the doctors office on the 30th.  I should confirm that the appointment will take place in person and not over the phone.

Re: Post Surgery PSA Results

Posted by Jackwb on Jul 9, 2020 1:05 pm

Hi  WesT‍, hope all is well.

Just a quick update on my friend with the rare castration resistant prostate cancer. To recap he was diagnosed after a TURP last spring, was radiated last July, after three months his PSA was 1.8, then 2.3 three months later.

He had his PET scan last Friday, today he was told the results. Very aggressive cancer in three locations and now he's scheduled for five radiation treatments starting next week (last time he had 28 treatments to his prostate). His PSA is now 5.7 (the threshold after radiation is 0.2), he has prepaid funerals for both his wife and himself. Last year he was given a 30% chance of lasting three years.

A couple of months ago he was no longer able to look after his wife who has severe Alzheimer's's and she's now in a home. Sadly, she crashed and won't get out of bed and doesn't eat.

Cancer sucks.

Re: Post Surgery PSA Results

Posted by WesT on Jul 9, 2020 2:18 pm

Jackwb‍ sorry to hear, that is unfortunate for both of them.

Yes, cancer does suck.

On a positive note (for me) my PSA came back as 0 again and one more six month check in December and I am back on a 1 year test cycle again.

Are you still good?

Wes

Re: Post Surgery PSA Results

Posted by Jackwb on Jul 9, 2020 3:23 pm

WesT:

Are you still good?

Wes

 
My PSA came in at 0.013 back in April, I'm on a six month schedule, back in November. Tomorrow I turn 70 so it's not like there's much time anyway. You'll see when you're my age that time goes by much faster. I've learned that as we age, time is like a roll of toilet paper...it spins faster the closer you get to the end.

We're not going south this winter, not only is Florida out of control but comprehensive travel health insurance is now impossible to buy. Maybe head out to Victoria for a few months?

Re: Post Surgery PSA Results

Posted by WesT on Jul 9, 2020 3:30 pm

Jackwb‍ ah yes, I remember.  The three months has gone by quickly but still seems like a long time.

I hear you about Florida!  Right now you couldn't get me to go there for ANY reason, actually anywhere is the states for that matter.  I am sure glad we don't have a conservative government here or we would likely be in the same boat after seeing the idiot (out going) leader at Pearson the other day.  What a Trump clown.

Re: Post Surgery PSA Results

Posted by Jackwb on Jul 11, 2020 12:43 pm

Hello WesT

My friend called me to wish me a happy birthday and updated me as to what's going on with him. Nothing good, his prostate cancer is a very aggressive type and has spread to his bones and was told that there is no effective treatment for this type of cancer. Radiation to help with the pain if it becomes a problem, not much else. The prognosis is not good.

His wife has settled in at the LTC facility but is now having seizures. She's still in lockdown and he can visit her only through a window.

Re: Post Surgery PSA Results

Posted by WesT on Jul 11, 2020 12:58 pm

Jackwb‍ Happy 70th birthday!

Man that has to be hard for them both.  That makes me sad even though I have never met them.  I feel for him in the worst way.

Thanks for the update (I think 😟)