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Post Surgery PSA Results

Re: Post Surgery PSA Results

Posted by Lacey_adminCCS on Jun 11, 2019 10:31 am

Jackwb‍ 

Such an important thought! Glad you are okay and sorry that happened to you.

Thank you for sharing so others are aware.

Lacey

Re: Post Surgery PSA Results

Posted by Jackwb on Jun 12, 2019 8:37 am

WesT:

Hopefully there are no lasting negative effects.  On top of everything, it did not do what it was supposed to do?

 
Sadly, it didn't do what we had hoped it would. The one surprising side effect was muscle pain in my upper legs that lasted into the next day, especially when on the bike...felt like a cramp, I could still feel it two days later. I see that Viagra has fewer drug interactions...maybe give that a try some day...?

Re: Post Surgery PSA Results

Posted by WesT on Jun 12, 2019 10:51 am

Jackwb‍, the ultimate slap in the face, present you with issues and not do what it was supposed to do.....

Might I suggest to hold off until you meet with your urologist before trying the other drug.  Sigh!

Re: Post Surgery PSA Results

Posted by Charles on Jun 12, 2019 3:10 pm

Jack --

Yes, your doc dropped the ball on this.

If you got the ED drugs from the same pharmacy that sold you the other drugs:

. . . the pharmacist _also_ dropped the ball!

One of the things he _should_ do, is to check for side-effects of drug combinations, and warn you about them.

I'm glad you're OK.  Getting dizzy while riding a bike is frightening.

.     Charles

Re: Post Surgery PSA Results

Posted by Jackwb on Jun 12, 2019 4:19 pm

I wish I had got them from the pharmacy as they keep excellent records (I'm sensitive to a lot of stuff).

No, these were free samples 6 months post-op...sort of  like a trick or treat thing, sadly it wasn't a treat.

Re: Post Surgery PSA Results

Posted by WesT on Jun 26, 2019 1:00 pm

Jackwb‍ I am curious as to how your friend is making out?  Is his treatment progressing?

Re: Post Surgery PSA Results

Posted by Nervous Nelly on Jul 18, 2019 1:32 pm

Hi Wes, I am sure you have been given this information as well. I am new to all this. However after my husbands surgery his 3 month check up on Jan 5, 2019 and his first semi annual check up last Friday July 12, 2019 both rendered the exact same result 0.008 it was explained to us by his Dr. that this is the lowest reading the can give. And its considered cancer free. I am sure you know this as this post was last year, however we were feeling the same in Jan after that reading...but we were reassured that it is a cancer free diagnoses. I am happy that you received this reading...its a very hard thing to go threw. I cry a lot and I know he is currently cancer free. Its the unknown that makes us worry. I hope any readings you have had since this have been the same. Thinking of you.

Re: Post Surgery PSA Results

Posted by Jackwb on Jul 18, 2019 2:46 pm

WesT:
Jackwb‍ I am curious as to how your friend is making out?  Is his treatment progressing?

 
WesT‍ , not well since his last meeting with his urologist. To recap, he was told that his prostate cancer is extremely rare, aggressive, and advanced, the hormone resistant type. He was told that he is at Stage D2 (Stage IV M), that his cancer does not respond well to treatment and has the highest mortality rate of all prostate cancers. He was also told that this is not the type of prostate cancer that you die with but the kind you die from. But they're trying to do something.

Mentally he's a wreck, at 74 this was not good news, especially since both his parents died of cancer (dad-liver, mom-brain). He's not reacting well to hormone therapy, hot flashes and depression are now his friends. Last week he went to London to prepare for radiation therapy, had his second MRI and PET scans but they couldn't do the markers because no one told him that his bowels needed to be empty and not be pressing on his prostate.

He spent three days this week on milk of magnesia (why they didn't do an express enema like they did me I do not know) today he's back in London to set the target.

He starts radiation on July 24'th...5 days per week for 7 weeks which means that he has to stay there...Marriott has a plan with the hospital, $25/day including meals. It's more complicated as his wife has severe Alzheimer's and he is her sole caregiver. He's taking her with him but needs to make special arrangements to look after her while he's at the hospital.

His biggest problem? He's a drinker and has been told no alcohol during the radiation.

As an aside, my 81 year old cousin who had an early heart attack, then prostate cancer (radiation), then a stroke that paralyzed his entire left arm was diagnosed with bladder cancer last Friday. Oddly, he is the 6'th person I know that has bladder cancer after radiation for prostate cancer. A trend, you think?

Re: Post Surgery PSA Results

Posted by WesT on Jul 21, 2019 7:09 am

Nervous Nelly‍ the fear of return is always there.  I have been pretty good about not dwelling on it at this point.  Leading up to the test the anxiety returns but again I try not to focus on it too much.  I make an appointment ahead of time, go in and have the blood work taken and usually know the results by the end of the day.  It can be hard but I guess if I have a recurrence I will deal with it when (if) that happens.

Stay cool and enjoy the summer and don't focus on the next test until it arrives.

Re: Post Surgery PSA Results

Posted by WesT on Jul 21, 2019 7:25 am

Jackwb‍ that is unfortunate but at least treatment is proceeding this week.  Hopefully it will at least slow things down if not stop it.  The facility in London sounds like a good one.  My uncle is going there for a recent brain and lung cancer diagnosis.

I went for some tests a couple of months ago and I read through the instructions given to me to find there were things I was supposed to do leading up to the test that were not verbally stated to me. It can be hard to focus on the details and reading (and retaining) all the specifics when you are dealing with tough situations.  His sounds really tough.  I hope his treatment goes well.

Cancer in general seems to be becoming much more prevalent and common.  We are a society fixated on quick and convenient everything and quick and convenient can introduce things that cause cancer or any number of other conditions with humans long before the "research" into products (if there is any at all) can show the potential danger.  All the toxins and chemicals we are exposed to everyday that didn't even exist ten years ago.

As I said my uncle is dealing with newly found lung (stage 4) and brain cancer.  He is a colon cancer survivor and thought it was over, he had paid his dues.  Guess what, not a chance.  It is looking like cancer is the "new plague".  The closer we get to cures, the more cancer mutates and branches out it seems.

Jackwb‍ how are you doing at this point.  Did you recent issues with the drug interactions have any lingering effects?

Re: Post Surgery PSA Results

Posted by Jackwb on Jul 21, 2019 8:33 am

WesT‍ I'm doing OK but still having problems with my drugs...at my last assessment my GP reduced my metformin from 1500 mg to 500 mg/ day. This helped but I was forced to increase my activity and seriously alter my diet to keep my glucose under control. Seems to be working but I've lost 30 lb in the last 5 months.

It's interesting what happening out there...although my friend lost both his parents to cancer it wasn't genetically connected as he was adopted, however there is an environmental connection. His parents lived in a rural area just north of Toronto (it's now part of the urban sprawl) and used a well for all of their drinking water. In the late 70's, because of high health issues in the area the province tested the water and found that the ground water in the area had very high amounts of toxins. Further studies found that the area was used for toxic dump sites during WWII. Not only did his parents die of cancer in the  1980's but 6 of their neighbours died at about the same time.

My wife lost three cousins to cancer (breast, liver, brain)...they lived in Kirkland Lake where their dad blasted out a basement in the bedrock when he built their house. It later tested for very high amounts of radon gas. I guess that everything is toxic nowadays. Back in the day when they used to build geiger counters they had to use metal from ships that sank before the nuclear age...everything on the planet today has trace amounts of radiation. Not to say about how much radiation passes through our bodies 24/7...WiFi, cell, TV, satellite, GPS, etc., so I won't.


 

Re: Post Surgery PSA Results

Posted by WesT on Jul 21, 2019 12:23 pm

Jackwb‍ 30 pounds in 5 months?!?!?!?  Are you now below your ideal weight.  I want to lose 10-15 pounds and just when I start getting there something else takes over and can't stick to a diet that allows me to continue and I put it back on.  I really need to get into a regular exercise routine but....  As I mentioned a while ago, cycling in our neighbourhood is about as dangerous as it gets with all the moron drivers.

We lived in Kingston for 10 years in the late 80's and early 90's.  Where we bought our house in '91 was mostly older people that had worked at Alcan.  Most of them had Alzheimer's from the aluminum exposure.  There was an area near where I grew up that was a dump site for some nasties at a nearby factory, everyone knew to stay out of there.  Most plants wouldn't even grow there. 

After mankind is long gone it is going to take millions of years for the earth to rid itself of our "legacy".  Money is much more important so the common people pay the price!

Re: Post Surgery PSA Results

Posted by Jackwb on Jul 21, 2019 3:57 pm

WesT‍ having diabetes you learn to manage your carbs and staying active to burn the glucose that's stored in your liver to keep it out of your blood stream.  Just be careful not to do too much as the body will get energy directly from the fat before first converting it to glucose (causes DKA which can be fatal) ...after that it's easy, just burn more calories than you take in and you'll lose weight.  I'm targeting for another 15 lb, I lived like a slug for 6 months after surgery last year, put on a few pounds and didn't get back into my routine until January because of the early winter up here.

Jeez, stuff you learn as you get old...

Re: Post Surgery PSA Results

Posted by WesT on Jul 21, 2019 9:40 pm

Jackwb:

Jeez, stuff you learn as you get old...

Isn't that the truth!

Re: Post Surgery PSA Results

Posted by Al_XB on Jul 22, 2019 10:49 am

WesT:

Jackwb:

Jeez, stuff you learn as you get old...

Isn't that the truth!

 

The more we know, the more we know how little we know!  😉

Re: Post Surgery PSA Results

Posted by Jackwb on Aug 7, 2019 4:31 pm

WesT:
Jackwb‍ I am curious as to how your friend is making out?  Is his treatment progressing?

Hi, just an update on my friend.

He has totally fallen apart...that may be an understatement. All of us have to deal with our diagnosis, treatment, recovery, but he seems to be in a unique position. Firstly, he was told that his prostate cancer is at Stage D2, is highly resistant to any kind of treatment, the only thing they can do is hormone treatment and radiation, but they normally do not work as the cancer has spread and doesn't need testosterone. Early prognosis is that he has a 30% chance of now surviving 4 years. He decided to do the treatment anyway to try to prolong his life.

Living in a small town he gets radiated in London, ON, five days/week meaning that he has to live there and had to bring his wife who has severe Alzheimer's. This is his second week and it's been an experience. He is now his wife's sole PSW, has to bathe her, dress her, help her in the bathroom, etc. While being treated he needs the hospital to provide a person to look after her...they have been reluctant but are doing this. It's getting difficult for him now because the side effects from the radiation are beginning to set in, especially "the poops".

They come home on the weekends...only 5 more weeks to go.

Poor guy, and he can't drink until it's over.

Re: Post Surgery PSA Results

Posted by WesT on Aug 8, 2019 11:55 am

Jackwb‍ thanks for the update.

I feel for the guy.  At least he is getting the treatment and is almost half way through.  Hopefully it will work and he can move on with this experience and continue to help his wife.  At some point maybe she will realize or accept the fact that she will need to be in a facility that can accommodate her condition.  Her situation is hard on everyone around her and the frustration she must be dealing with......

I can't imagine going through your own cancer experience while dealing with a loved ones issues as well.

Re: Post Surgery PSA Results

Posted by Jackwb on Aug 8, 2019 4:32 pm

It's becoming a serious issue, I've been trying to visit him all summer but his wife refuses to let anyone in...she doesn't want anyone to know what's happening to her. He can't even tell her that he's been keeping me in the loop, afraid that he has told me of her condition.

It's a long story but essentially her mum had the same problem at an early age, had to be put in a home in her 60's and my friend's wife (she's my friend too, BTW, she's 69) has been terrified her entire life that the same thing would happen to her. It has as well as her older brother who has been in a home for the last four years.

On a happier note I had my surgery last week to remove a cyst from my back (pathology results next week), got my quarterly diabetes and BP assessment today (BP normal, glucose under control and my meds are being reduced and will be eliminated in 3 months). PSA is still zero.

I've also learned that having surgery is like doing tattoos...you can't have just one. Next year I'm being referred to another surgeon for breast reduction surgery...need to get rid of these boobs after six months on Lupron.

Re: Post Surgery PSA Results

Posted by WesT on Aug 11, 2019 2:47 pm

Jackwb‍ Understandable I guess.  When I was diagnosed with cancer I didn't tell anyone outside my inner circle.  I felt dirty, tainted, diseased and didn't want people to know.  Not sure why but that is sort of how I felt.  So I guess I can relate to her thought process.  Unfortunate regardless.

Good news about you though!  Not about the additional surgeries..... the results.