Posted by KathiR on Sep 25, 2020 10:06 am
In the meantime, very much still hoping this is not the ultimate diagnosis. We're all still anxious to hear the outcome of your laparoscopy and here for you whatever that might be.
Posted by Anga on Oct 1, 2020 5:55 am
I know this is great, given the current Covid status, that I am able to get this care at this unpredictable time. Still, I was stunned. I was hoping to plan weekend outings for each October weekend. I have things to clean, organize, and a kiddie in remote learning with some catching up to do already. Not to mention, fill in my family & friends. So the timeframe had me emotional for a solid 1-2 hours at the end of a work day, concentrating on the drive home.
Back to being grateful again. And thinking I desperately need a few days off to get things in order. I'll update work today and hopefully not compromise the whole day for me and monthly plan for them.
My husband appears to be hearing this for the first time, we just process differently. Now to ready for hospital stay. With Covid, no visitors afterwards. I'm not sure if I will be there 1 or 3 nights. They said no valuables.. How to function without any media, alone for (possibly) up to 5 days? I crochet, so some yarn perhaps, a book or two, Crocs, candies to get things working post-op. Beyond the basics, any suggestions?
KathiR Than you for the previous update, re OV dialogie group. My follow up is a month post-surgery, so will take it from there.
So glad I have somewhere to reach at in the early morning :)
Posted by Lacey_Moderator on Oct 1, 2020 9:49 am
This is great news! But it's understandable to feel a little surprised because you weren't expecting it so soon.
I hope you can take a few days between now and then so you feel ready!
Sounds like your packing list is great so far. I'm sure others will pop in with suggestions.
All the best!
Posted by KathiR on Oct 1, 2020 10:17 am
As for you husband, he sounds like mine a bit. It's not so much he doesn't process the information but more that he remains in a state of denial until he really needs to face up to what might lie ahead. Sometimes it's for his own self protection; other times he feels if he just dusts it off that I will be less concerned. That said, once I was diagnosed he sprang into action, took his cues from me, and has been the rock I needed to keep going. Keep him informed, let him know what you need from him and perhaps what you don't need. As much as we do, they need to feel some element of control. As much as it will be hard for you not being able to have him at your side through the surgery and recovery, it will be equally difficult for him.
I guess all the hospitals are different. Here in Kingston, my husband was allowed to be with me while I checked in and until they took me to surgery. Then the plan was to call him when I was in recovery so he could come back and meet me in my room, with the stuff I wanted to have on hand. Two weeks ago they were also allowed to visit but only once every two days. I think that's back to no visitors again. Of course nothing ever goes as planned. I had my laparascopy, the surgeon called him with the results, and since what they ended up doing was just taking lots of pictures and I managed the anesthetic so well they decided I could go home same day. So I just ended up in recovery longer, and then they called Wayne to come pick me up. An awesome surprise since we were prepared for me to be in at least 1 - 3 days like you.
In case you are checked in though....don't over pack. Yes, books, magazines, some knitting or whatever to while away the time. At KGH we are allowed to have our iPhones or iPads or laptops. I had mine loaded with the Netflix app. Wayne was going to bring me mine once I was in my room. So you might want to double check on that front. But no money, no jewellery, no wallets etc. Just your health card and any info on private insurance coverage if you have it. Crocks or footwear that's easy to slip into but also stable for walking. Bending over to put on shoes is impossible after any abdominal procedure. I always take a robe and never use it. Suffice with the hospital gown tied at the back and another over it tied at the front...unless you get chilled easily in which case a light robe is nice to have. Toothbrush, toothpaste, face cream if you use it. And I always have a big bottle of Evian or other spring water in my bag. I just find the hospital water tastes of chemicals. And it doesn't hurt to have some gum, or candies or chewy bars on hand.
We'll all be rooting for a positive outcome gal. One that takes you out of this community. But we're here if you need us every step of the way.
Posted by JustJan on Oct 2, 2020 9:13 am
This uncertainty will be behind you soon. Wishing you all the best!
Posted by Anga on Oct 3, 2020 8:06 pm
My hubby seems back to daily norm, probably as it's still a week away. Got my Covid screen today, and yarn the other day. I think the no visitor's (yez, Victoria hospital), is due to the uptick in numbers across the province. He cannot even step foot in. They said to hide my phone in my bag. Laundry will happen, good to know about the 10lbs-6weeks likeliness.
Will have a quiet family day tomorrow and with the kids off on Friday, they'll all come to drop me off. Hoping for a Sat release but obviously fine with whatever. I am looking forward to some down time with them afterwards, even if it's at a much slower pace. Now to keep our big dog away from me while healing. At least he stays clear of the upper floor, a safe space to to say.
This is exactly what I have been pushing for and now it's within reach.
Posted by Boby1511 on Oct 3, 2020 9:16 pm
hi there, glad things are moving along for you so quickly!
Socks, nice warm fuzzy guys (hospitals can be chilly)
Blanket (you will be dependant on nurse to get extra blankets or the heated blankets)
Pillows (hospitals seem to have a shortage)
Foam mattress cover (hospital beds are horrid!)
- it will fit right over top of that bed
- hospitals have the blow up mattress which they use and put over top of that mattress, but these are in high demand and short supply
- bring your own, I spent 4 weeks due to complications with surgery, those beds are rock hard
Long phone charger
Head phones (you may be sharing room and we all have different sleep cycles)
PJs (I like my own things there, brings comfort)
I moved right in. 🙂 Sleep is important to good recovery, be comfortable.
Sending you best wishes for swift and full recovery.
Posted by KathiR on Oct 4, 2020 10:38 am
Posted by Anga on Oct 12, 2020 7:17 am
I hope this Thanksgiving weekend finds you well. My surgery was scheduled for Fri. Oct. 09. The Recovery Room was full, ICU same, there was nowhere for me to go post-op, they cancelled my surgery 😔
I was already on IV, green light, swt to go. I heard, while in/out of sleep, that two others were going home. One was from out of town, had gotten a hotel for his spouse and the first night post-op. Y surgeon came to show me he was there, ready to go, apologized, and that the OR was closed.
I've been keeping busy with Thanksgiving but really, I feel lost. After a good momentum and quick plans to action, I've just had too much time to think now. It sounds like he will have his nurse call me this week to rebook.
With Covid starting to take river our hospitals, I'm worried I won't get back in until past the Nov-Dec timeframe we initially discussed. I guess it's back to work on Tuesday. So weird. And now my coworkers will know I am in limbo. Just weird. I've been so private about everything the last six months.
Anyhoo, sorry this is delayed but I did want to share. You have all been great, and really, some of the only people listening to my story so far. So thank you, again.
I hope to update this week with the new date.
Posted by KathiR on Oct 12, 2020 10:10 am
Now then, was this all fortuitous? Well we dashed to the Chelsea to pack up and check out. They were wonderful. Didn't even charge us for that day. Drove the 4 hours home and upon arrival noticed a bubble in the living room ceiling that was new. When I poked it, out gushed a torrent of water. It seems we'd sprung a slow leak in the pipes on the second floor and had we not come home then and, instead, had the surgery and left it another 5 days the entire house would have been destroyed. So sometimes things happen for a reason. Two days later they called with my reschedule date; a week out....and everything went off like clock work. In fact my 8 hour surgery ended up only 3 as they found much less to deal with than expected.
It's unfortunate when you get bumped. Unexpected emergencies or surgeries that end up more complicated and longer than expected take up surgical time.....delayed patient discharges clog up beds and rooms that are expected to be available. There's no control over that. I was at KGH the other day and talking to one of the surgeons about the impact of the new wave of Covid issues and she was saying she doesn't really see much if any delays in anything other than the really elective surgeries....cosmetics and things like that.
So disappointing and inconvenient though isn't it? Especially when everything seemed to be falling into place like clock work. Just remember, life is about glitches and bumps along the road. Be patient. I'm sure they'll reschedule you quickly. In the meantime you're showing great resilience this weekend gal...keep focusing on just enjoying this time with your family. We'll be looking for an update when you have more news. Big hugs in the meantime ❤
Posted by Elsie13 on Oct 13, 2020 6:01 pm
KathiR , what a fascinating story, going home and having water gushing through the ceiling!
Posted by Anga on Oct 13, 2020 7:56 pm
Imagine if you'd not gone home? 😳😳😳
Elsie13 I think my biggest concern was new wait times. BUT I got the call today & am rebooked for next Tuesday MORNING, whew!!! Bag is still packed by the door. A few quick edits and I am good to go!
Posted by JustJan on Oct 14, 2020 8:06 am
your surgery goes well on Tuesday and that your recovery goes smoothly. I know you will be well taken care of.
Posted by KathiR on Oct 14, 2020 1:35 pm
Posted by Lianne_Moderato on Oct 15, 2020 7:34 pm
Posted by Lianne_Moderato on Oct 19, 2020 1:02 pm
When you are up to it, stop by and give us an update.
Posted by KathiR on Oct 19, 2020 1:19 pm
Posted by Anga on Oct 25, 2020 9:23 am
rgery happened on Tuesday! I guess there was some blood loss, not enough for a transfusion to be needed. Started as laproscopic cystectomy. Finished as complete hysterectomy. They found the ovaries were "like glued" to the back of the uterus. It all came out together, so to avoid rupturing any cysts. Had to cut some more than initially thought, to action properly.
Hospital stay was probably what's to be expected. Sore, ups and downs, talking about pain meds and bm's a lot. I was in for 5 days and finally home yesterday afternoon.
What a happy day yesterday was. Sinplly being home was so comforting. My kids were so special and I was able to appreciate it all. Greeted with a hair bow by my youngest, to make everything easy and out of my face. We (SLOW) danced. My oldest knows how important hugging is to this Mama ☺ so she learned how, without squishing me or touching my tummy. My husband was great, tackling the FRESH food I have been so needing, and keeping our large puppy away. Snuggles and kitty video-watching as sky lit up this morning. Caffeine helping things along.
I have on meds, walking, staples clean. Some under-clavicle pain can still take my breath away by surprise. Hafta get a replacement Dr note, too much personal details for work 🙃 I am really looking forward to this slower pace and family time for the next four weeks. We'll see if
I can resume early, and go back after that. Not top priority today.
THANK YOU for being here again. I am glad to have a place to go. Follow up is mid-Nov. I am sure I'll be sharing thoughts leading up to that. Not there yet. One step at a time 💛👣
Posted by KathiR on Oct 25, 2020 9:42 am
It sounds like your recovery is going well so far. What a wonderful family you have. I can remember how helpful and gentle and caring my husband and son were when I came home from PMH. The worst was how able they are to make me laugh.....ouch ouch ouch sometimes, but laughter is often the greatest medicine.
Please so keep us posted and let us know anytime you need something...if only a willing ear. Big virtual hugs for now.....
Posted by Anga on Oct 25, 2020 8:22 pm
I am still dealing with sharp clavicle pain a few tines a day, tampers w my breathing. I've had 3 10 minute lasting ones. Guess still waiting on trapped gas to exit. Ouch!!
I will get pathology back at the mid-Nov follow up. I'm grateful for the division and just being able to focus on healing right now.
This has been such an eye opener in terms of Covid affecting surgery wait times. Things were on hold this spring/summer but then I found you guys and steered a more direct path! So glad I had the chance to take this spot NOW and not in some vague 2021 timeframe.
Hugs right back and will update again soon.
Thabk you for being here and making a difference.
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