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New here

New here

Posted by Chris319 on Apr 18, 2020 7:55 am

Hi all, my name is Christine and I was diagnosed with Multiple myeloma early February of this year. I had a hysterectomy late February last year and spent 2 months at home recovering, after which I developed pain in my spine (April). It started out as just pain, but got worse. Near the summer, it was excruciating to say the least. I must have gone to my doctor a dozen times. I went for Xrays, bone density test, MRI, for him to tell me that I had 4 compression fractures in my spine at various levels. I thought, great...now what? He couldn't say. He prescribed pain medication, suggested massage therapy and/or physio therapy, which I did...for a while. But I wanted to know why and how I got those fractures.  I had not fallen, or had any accident, so I was perplexed as to why I had these fractures.  He couldn't say. He thought it was osteoporosis! I was only 49 years old! I thought it was ridiculous.  So, because I was so relentless at finding out why, he sent a requisition for a specialist, a rheumatologist. This was October I think. I got a call for an appointment late January this year. After speaking with the specialist, I think she knew right away what I had and sent me for some blood work. They got the results back fairly quickly and sent them to my family doctor, who then called me at work on a Wednesday to tell me the news. I have cancer. I couldn't believe it. I had a follow up appointment scheduled for that coming Monday, but the specialist called Thursday to say she's referring me to a hematologist and that she won't see me at the follow up, that I should wait to see the new doctor. Luckily, I got a call the following day to see the new doctor on the Monday. Everything went quickly after that. I have been in treatment since late February and will continue until June. I was supposed to go for stem cell transplant after, but with the pandemic, they will postpone it but will continue my treatments in the meantime.  My treatments are going really well and the myeloma cells are reducing considerably, which is why they are able to postpone my transplant.  Anyway, that's my story. I'm doing the best I can to survive. 

Re: New here

Posted by Peterpatch on Apr 18, 2020 8:57 am

Wow you have had a lot on your plate. It. Sounds like you are a good advocate for yourself on continually going to a Dr to find out what is wrong. I pray for courage and patience now that Covid-19 is slowing treatments down. Keep yourself safe.Wish you all the best.

Re: New here

Posted by Wendy Tea on Apr 18, 2020 9:43 am

Chris319‍ Welcome and thank you for sharing your story.  Others who read about your experience will be helped and will be able to navigate through their own journey because of your story. Please check out other parts of the site. There are interesting Groups worth checking out. Please tell me how I can help. 
Healing takes time and opportunity. Wendy Tea

Re: New here

Posted by Cynthia Mac on Apr 19, 2020 9:13 am

Hi, Chris319‍ , thanks for sharing your story. I’m sorry to hear it took you so long to get answers, but happy for you that your treatments are working for you.

I’m caregiver for my Dad who has metastatic lung cancer. He’s been in treatment since last July, and this whole covid thing has put a different spin on things for him. Dad has been responding well to his therapy, and, to protect him, the doctor has cancelled his next treatment (3 weeks from now) so it saves Dad two trips out of the house. He must think that there is more benefit to this than risk to my Dad.

I hope your medical team will get you back on track as soon as they can. Post in anytime if you have any questions or need to vent.
“When the root is deep, there is no reason to fear the wind.” - Japanese saying

Re: New here

Posted by Chris319 on Apr 23, 2020 4:06 pm

Wendy Tea:
Chris319‍ Welcome and thank you for sharing your story.  Others who read about your experience will be helped and will be able to navigate through their own journey because of your story. Please check out other parts of the site. There are interesting Groups worth checking out. Please tell me how I can help. 

Thanks Wendy!  Congratulations on beating cancer!  I'm well on my way to do the same. 😉 
 

Re: New here

Posted by EvaJ on May 3, 2020 1:04 pm

Hi. I am new here as well. I was diagnosed with Multiple Myeloma when I was the same age. My symptom was fatigue I was tired all the time no matter how much sleep I got. I did the chemotherapy treatments for about 6 months and then had the stem cell transplant. It was quite a ride. So far my numbers look great. I hope you get to have your stem cell transplant soon. Stay safe. 

Re: New here

Posted by Lianne_Moderator on May 5, 2020 1:28 pm

Chris319‍  and EvaJ‍ 

Welcome to you both and hope that you can both connect here.


Lianne