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Oral Cancer

Oral Cancer

Posted by Morgan1951 on Feb 10, 2019 10:11 am

I've just signed up to this site and I'm not sure if I'm in the right spot to look for other people's experience with this type of cancer. 
Thanks

Re: Oral Cancer

Posted by cancertakesflight on Feb 10, 2019 10:22 am

Morgan1951‍ Yes, you've come to the right spot. I"m so glad that you've found this site. There are lot of great people here who can help. You'll also find that although there will be experiences unique to your type of cancer, there will also be other elements of the cancer experience that are common, regardless of the cancer type. JamesT‍ and Aly‍ have posted on some previous posts about Oral Cancer in the past; maybe they can help you find the information that you need.

Welcome!

cancertakesflight

Re: Oral Cancer

Posted by JamesT on Feb 10, 2019 1:18 pm

Hello Morgan1951‍ 

This is a great site to hear about other peoples experiences with what you are going through.

I would suggest that you look under the heading "forums" at the top, then choose cancers types and to the right scroll down to head and neck.  I'll send you a note from there so that you see.

Sincerely,


James

Re: Oral Cancer

Posted by Aly on Feb 13, 2019 12:54 am

Hey Morgan1951‍ ,

Welcome to CancerConnection. I unfortunately do not have experience with oral cancer, JamesT‍, however; is the man with the experience.

If you need suggestions for soft or liquid foods, or how to add nutritional value to meals - I can definitely help with that.

If you have any questions, please let me know 😊

Re: Oral Cancer

Posted by Morgan1951 on Feb 15, 2019 6:13 pm

Thanks Aly. I definately need help with soft food recipes and keeping my calories and protein up. 
I'm a very thin woman to start with, who has been under weight for years - probably by 20 - 25lbs. I just can seem to gain weight.
I was at the dietician this week, and I've lost four pounds!

I was in a lot of mouth pain all last week and most of this, but I've now got pain medication which is really helping.

I just finished my third week of radiation - three more to go!

Morgan

Re: Oral Cancer

Posted by ashcon on Feb 16, 2019 11:19 am

Hi Morgan1951‍ 

Congratulations on reaching the halfway mark of your radiation!
You may want to join the group, Eating Well When You Have Cancer, if you haven't done so already.  There are some great discussions and tips from others who have experience with coming up with ideas for soft food recipes, while maintaining caloric and protein intake!

Wishing you health, wellness, and happiness.

Re: Oral Cancer

Posted by Aly on Feb 17, 2019 1:04 am

Hey Morgan1951‍ .

Three more to go? That's awesome!

I'll leave this link to my post on soft / liquid and extra calorie foods for you. I hope it helps!!

Re: Oral Cancer

Posted by JamesT on Feb 17, 2019 1:22 am

Congrats Morgan1951‍ on completing your 3rd week.

How is your pain?  If you haven't heard of it Resource is a great drink that has just under 500 calories per serving...I think it's 477 or so.

What pain medication do they have you on?

Sincerely,


James

 

Re: Oral Cancer

Posted by Morgan1951 on Feb 17, 2019 10:09 am

Thanks James, I will look for Resource, but I don't think I've seen it at the drug store. Where else might I look for it?
Right now I'm drinking Ensure Calorie+ and making shakes with it.
The pain meds are morphin 1 - low dose.
I'll explore the eating well group that was supplied as a link too.

I appreciate everyone's comments and offer of help.
Morgan

Re: Oral Cancer

Posted by Brighty on Feb 17, 2019 11:38 am

Morgan1951‍  hi.  My fiance was on resource.   We used to get it for free.  The dietician  at the oncology  dept.. Had tons of them so she gave us samples.   Check the dietician and see if they have any.   

Re: Oral Cancer

Posted by JamesT on Feb 17, 2019 1:06 pm

Hello Morgan1951‍ 

I used to buy it from Shoppers Drug Mart by the case.

I used to ask for it at the prescription counter....and I used to buy it on Thursday's and enjoy a 20% discount.

A suggestion for your pain meds....make sure you keep track of how many pills your have going into a weekend.  I have been caught before, that as the weeks went on with radiation and the pain increased I found I didn't have enough pills to get through the weekend...yikes!!

Two suggestions on this for you....make sure if you are running low, to ask to see your pain doctor on Friday and get a prescription.  And the other suggestion is to make sure you fill one of the prescriptions at the hospital pharmacy....which in my case was a Pharmasave.  Then if something happens and you run out on a weekend, then you can call the doctor on call and they can write a refill for you at the pharmacy at the hospital...

Some some tips that I got caught with and I wouldn't want to see anyone else get caught without enough pain meds on a weekend.

Also at the pharmasave they had these medicated lollipops that were FANTASTIC.....I went through quite a few of them as they provide instant relief and they were a god send to touch up against any particularly painful spots...in my case...i had an awful, very nasty cancer sore on my tongue, right from the beginning that was soooo painful.

Hope this all helps....

Sincerely,


James

Re: Oral Cancer

Posted by Morgan1951 on Feb 17, 2019 6:33 pm

Thanks for the update on where to purchase Resource - I'll check it out and discuss with the dietician.
I have swabs that I use for my sores - medicated mouth wash that I apply and it really helps
I have lots of pain meds right now, but I'll be sure that I don't run out.
I have a really bad sore on the inside of my lower lip - it sticks to everything - glasses, cups, etc. I swab that all the time. Medicated mouth cream is helping too. I use at night when I go to bed.
I'm really hoping next week goes quickly with nothing worse happening to the inside of my mouth..... always hopeful.
Morgan

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