I have no idea of quality of the life after removing an organ . I can’t decide it
Option 2/basic/simple surgery/leave some rectum there.....and 10% chance to recur - 10% is quite low as well.....can Dr offer ANY additional meds/treatment to bring down the 10%? This answer, would point "me" to option 2.
Please reach FILOMENA at CCRAN......she will offer her best advise......www.CCRAN.org
Tollfree number on contact page, of site.
What are you leaning to Narges? When must you decide? When is surgery booked for?
Please know that you WILL heal from aggressive surgery.....it may take a bit of time...lots of patience.....
If it is an Ostomy....there are many PRO, to this option.....if you choose second option......ask for MORE "help" to bring down the 10%....(I assume rectum is intact)
(I am still thinking, about this one!)
Congratulations on completing chemo and radiation, that is great to hear!
I will tag @Boby1511 , @Trish514 and @Haemish to share their experiences with these types of surgeries. Hopefully, they provide valuable information that helps you make this decision. Thank you in advance for sharing, all!
Keep well, Narges! Keep us updated on your choice, if you feel comfortable to do so :)
I am not going to have any perm ostomy its they told me quality of life will change with 15 times using washroom in a day and uncontrollable bowel movement.
In fact.....I am "glad" Dr said "the facts " to you.......(I was NOT told a thing, about any quality of life/frequent washroom needs)
Can you talk further with this Dr/
There are some meds, to "slow the washroom needs".....ie Lomotil.....Immodium (perhaps other meds)......
It does depend on how LOW the re-connect/tumour removal is?? The lower/closer to sphincter opening, the more difficult to control.....
I recall being told that if reconnect is ABOVE 5cm from opening, things are better, for control.
If the reconnect is BELOW 5cm towards opening, then things are more challenging, for control.
I know it is difficult to "choose" an option......when does Dr need your response by?
Wishing you the best!
@Narges Hi there and congrats on finishing chemo and radiation. I had stage 3 as well but was not given an option. I had to have a permanent ostomy. I had to have my anus, rectum and sigmoid colon removed because my tumour was right next to the anal sphincter. I was devastated by the news at first but seem to be coping with it well. I never have to rush to the bathroom and the amount of output is largely controlled by what I eat. I can even wear underwear multiple days in a row because I have no a** to get them dirty. Lol. Sorry just thought I’d throw that in there. If I can help in anyway please ask.
HI everyone, hopefully I decided to go with local removal of tumour and not the whole rectum . I will have my surgery on February 2 thank you for your support and caring. I will be in touch.
Ear plugs (2 sets).....lip balm, hand lotion, anti skid slippers.....dry shampoo....listerine in a mini spray....ditch robe; take a second Blue Trendy Gown....Flow Down Those Hallways!!....(your backside will be covered u p!!)... water bottle.....pen n paper/write down a terrifc Nurse's name/for thank you card....
@Narges Hello…..wishing you the best, for your upcoming Surgery on Feb 2nd…..sending positive vibes your way……
Dont forget to pack:
EAR PLUGS (2 sets)……lip balm, hand lotion, dry shampoo, listerine/scope in a mini spray…..anti skid slippers…..ditch the robe- wear a blue gown forward/back……very trendy!!, pen/paper to write down full name of kind medical staff for a thank you card later down the road….they say chewing gum helps move things along/heal….water bottle…..
When you catch your breath….let us know how you are feeling……