Posted by Cynthia Mac on Sep 17, 2020 9:19 am
I had many surgeries in that area when I was a teen, the last of which left some long-term numbness. I’m not sure those nerves ever reconnected, but to be honest, I’m also unsure whether there was any need for that to happen. If I can inject some humour here, I’m not too concerned about the amount dexterity I need in that area!
Definitely, though, talk to your medical team. My surgeon (the last one, who finally fixed the problem for good), told me up front that there could be some nerve damage.
Posted by Cherbear on Sep 20, 2020 5:03 pm
Posted by Essjay on Sep 20, 2020 8:55 pm
I can only try to imagine what you are going through. Do you have support from the psychosocial team, or a palliative care team? They are there for you and your family to help you navigate the ups and downs and the different needs you may have at this stage in your journey. It sounds like you could do with some help to manage your anxiety just now, whether it’s talk therapy ( and it can be so helpful to talk to non family members about your worries about them), or medications to take the edge off your symptoms or to help you sleep. Have you talked to your team about your anxiety? For me I know that when I feel my anxiety overwhelming me, I need to do take action. That can be as simple as making an appointment with a therapist. Knowing I’m doing something to deal with it calms me a bit.
How are your children coping?
best wishes, Essjay
Posted by Cherbear on Sep 20, 2020 9:37 pm
Posted by Lacey_Moderator on Sep 21, 2020 11:45 am
I'm glad you reached out. Thank you for trusting us with your feelings. Connecting with others who are going through something similar can be so helpful. I'd like to connect you with Boby1511.
We have a great book Advanced Cancer that you can download or read online here:https://www.cancer.ca/~/media/cancer.ca/CW/publications/Advanced%20cancer/32043-1-NO.pdf. It has some really good information about moving forward. Also a palliative care team for emotional support is so important. Do you have a palliative care team?
You may also want to join our Living with Advanced cancer group here: https://cancerconnection.ca/groups/home/75.
For additional help finding support give our Cancer Information Helpline a call at 1-888-939-3333. They are so knowledgeable and understanding.
Feel free to continue to reach out to us here,
Posted by moplanb on Sep 22, 2020 8:43 am
I was recently diagnosed with stage IV colorectal cancer. I had my first appointment with my oncologist yesterday, to discuss the possible course of treatment/goals.
A quick backstory of my diagnoses:
First indication that something was amiss was on July 12th. Contacted my GP on the 13th.Was referred to a gastroenterologist and waited for my virtual appointment. After speaking with him on the phone, he scheduled a colonoscopy. Immediately after the procedure I was told I had a sizeable tumor which was likely cancerous and would require emergency surgery. While waiting for my appointment with the surgeon, I was sent for a CT scan and an ultrasound. I saw the surgeon on September 8th, when he informed me that surgery was not an option as my cancer had metastasized to my lymph nodes and liver. He then said he would refer me to an oncologist and chemo would be the only treatment suitable at this time.
Wow! Could this be really happening? I had absolutely no indication that anything was wrong prior to August 12th!
Yesterday, I finally saw the oncologist. She spent a fair bit of time discussing the treatment plan with me, and I immediately felt comfortable with her. She seemed to think that surgery might be a possibility for my liver, or ablation , if not. She seemed very proactive, aggressive (in a good way) and optimistic. She is hoping to have a port inserted from the start (she did mention that this was going to be a very lengthy/ongoing process), but said that I might have a temporary tube in my arm if that doesn't happen quickly enough.
She wants an MRI of my liver done to run it by the surgeons specializing in this, but indicated that chemo would begin regardless. I expect to start my treatment within the next two weeks.
This has happened so very quickly, and there is just so much information to digest. I continue to remain optimistic and hopeful.
In the meantime, I will spend as much time as I am able, reading the posts here and trying to gather information. I may not post much at this time, until I get my bearings, as it were.
I wish you all the very best, and thank you all for sharing your journey.
Posted by Whitelilies on Sep 22, 2020 12:03 pm
You have a lot on your plate.....YES stay positive, and this oncologist sounds skilled and kind and caring. Write down any questions you may have, at your next virtual appt.
The appointments will be coming! Get your dance card ready! It will fill up !
When you have "free time" (lol !!), that is the time to 'do stuff'.....clean the house....vacuum, get your mind OFF things....stock up the pantry....think ahead.....Covid may around....get your canned goods now.....buy masks now....get the car tuned up now....etc......AND care for yourself......try to walk...Fall Colours are HERE....the leaves are falling and crunchy! stomp stomp stomp!
I too am on this journey. GI dr found 3 cm "down town", on my FIRST colonoscopy. I had NO CLUE, dr can "see" it?? Dr took 3 polaroid shots in COLOR, and advised me to TAKE these photos with me, and hand over to oncologist! (Shall I put them in a photo album too? make titles: My Caboose !! grrrrr)
I too had CT scans....MRIs.....another colonoscopy.
My treatment was radiation, 2 surgeries, and now heal.
All treatment plans are different and made to measure, so to speak, for each patient.
Share with us, we all care....when you catch your breath......if you have a concern, there are many folks who can respond and guide.
Posted by Lacey_Moderator on Sep 22, 2020 12:26 pm
A lot has happened these last few months. I'm glad you broke the ice and wrote your first post. This is a safe place to vent, ask questions, share, and connect.
I'm so glad to hear that you have confidence in your Oncologist. She does sound very proactive and like you're in good hands. I'm glad to hear she was also optimistic about treatments available to you. Each diagnosis is different even when it's the same stage, there are many factors that come into play.
I'd like to connect you with Michelle_MB, Marigold, JoTry, Danielle518, Pinto, Cherbear who have experience with stage 4 colon cancer themselves or as a caregiver. Can you guys share a bit about your diagnosis and treatment?
You can post here with or without your bearings. We are here to help you navigate through this. 😊
Do you have support at home?
Posted by moplanb on Sep 22, 2020 3:01 pm
Thank you for your response! I have been keeping busy, organizing and going through old papers, photographs and clothing. I have managed to declutter a lot of unnecessary stuff! Was already well prepared with masks, nitrile gloves and sanitizer before the quarantine even began. I am a full-time caregiver for my Dad (who recently turned 90), so that keeps me going.
My oncologist's office already called me this morning for a follow up appointment and am waiting for a call for my MRI. The oncologist also wants to send me for an echo prior to starting my chemo.
In the meantime, I have been reading as much as I am able (before my brain starts to hurt) and trying to prepare myself (mentally) for what is yet to come.
Thank you for your support,
Posted by moplanb on Sep 22, 2020 3:11 pm
Hi and thanks for your post. As I mentioned in my previous entry to Whitelilies, I am a full-time caregiver for my Dad (who is 90 years old). My Dad lives with my husband and me, so that leaves my husband as soon to be "caregiver's assistant" (he'll take over what I am unable to manage) as well as caring for me. Fortunately my husband has a very good friend who has already begun supporting him, which , I believe, is every bit as important as support for me. His sister also has colorectal cancer and has been undergoing chemo and has had surgery, although her cancer is not as advanced as mine, he still has a very good understanding of what this entails.
I am feeling overwhelmed at all of the information being given to me! I will do my best to navigate this road, armed with as much information and support as is available to me.
Posted by Whitelilies on Sep 22, 2020 5:38 pm
Just wanted to share....to make you feel LESS alone.....my dad is turning 90 too! He and my mom, live nearby, but I do visit daily. I do understand the Caregiver-Role....intense and needed and 24 7 at times.
My dad was diagnosed, also, with Colon Cancer (as I)....about 6 months after me. (I am 58). My oncologist insisted to take him, too, as his patient.
My dad, then refused any treatment plans....he said "Leave Me Alone; I am 89 !".
Then, my oncologist urged me to get Genetic Testing......I did......all clear. (did not sleep for 83 nights.....zzzzzz......waiting for stressful results that can impact family and loved ones)
I am glad your husband is able to help and that he TOO has a special friend, for support and more, who truly gets it!
Stay strong.......keep posting....
Posted by Michelle_MB on Sep 25, 2020 8:25 am
Thank you for the link, Lacey_Moderator!Hi moplanb,
My husband was diagnosed with stage 4 colon cancer in February 2019. He was 47 at that time. Since then, he had 3 surgeries and many rounds of chemotherapy.
To be honest, we are still struggling with this new life: Instead of planning for the future, we are aiming for an uneventful day today. Sometimes we forgot about this and it would lead to sleepless nights with despair.
In addition to this wonderful forum, I also joined a few Facebook groups, e.g. 'TRUE NORTH CREW- A Local COLONTOWN Support Group' (for Canadians with colon cancer) and 'Liver Mets from CRC'. From this group and the Facebook groups, I met many people with similar experiences and some of them are doing very well. This gives me hope - one day we will be ok.
You are at the beginning of a long journey. One day at a time knowing you have our support and best wishes.
Posted by Skye1717 on Sep 27, 2020 1:18 pm
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