In June I had surgery to extract a sample for a biopsy from my spinal ependymoma (C6-T4 about 6 cm). Only about 10% was removed. Post-surgery I had little to no use or feeling in my body below the tumour site. I have since undergone 30 radiation treatments and am very slowly regaining some feeling (especially on my left side) and increased upper body dexterity.
I am still dealing with catheters and was wondering if any females in a similar situation may have tried indwelling (urethral or suprapubic catheters) or other options, and what the pros/cons may be? I feel it would provide me with more independence and freedom but want to know if there are downsides before committing. Any feedback is appreciated.
I had a catheter full time for about 4 months. Stuff hurts after a while.
Thinking they came to change it every couple weeks. Hurts.
They say you can get more UTIs, but I didn't get any. Mind you I was already taking IV antibiotics and pills, so maybe thats why.
I could always feel the thing. Even thou its in there snug, I would worry.
Always rearranging the line/bag at sleep time.
Given a choice I would have declined, but for the most part I had no choice. I wasn't able to pee on my own.
Although, full time, is an easier option than the in and out, several times a day. Way too painful that.
Sending you best wishes as you continue treatment.
yes - it's the stomach one I'm wondering about. 🤔Thank you though!