How are you feeling? Where are you, on the journey?
I will tag other members, and hope they can soon chime in, and share their experiences, here, with you......I checked the site and found only a few members, some not as active as others...but I hope they will share their journey.
If had many mri done and soon pet scan and 3week ago had surgery threw my nose and they aim to do radiation and kemo after pet scan in the next 2 weeks or so and ya notice rest was a big thing after the nose surgery was done
Do they know what kind of tumour you have? I had 6 weeks of radiation and oral chemo every day for 6 weeks. After a month to recover (radiation is exhausting) I had a higher dose of the oral chemo once a month for 5 days. I did that for 6 months and then it was just MRIs to monitor things.
my hubby is on Dex as well , mostly some minor confusion and memory issues ' He just started having nerve pain in foot , MRI scans good for past year even thou they gave us 14 months prognosis Stay well and lets talk it out