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Completed 6 cycles of Paciltaxol/Carboplatin
I had my last and final Paciltaxol/ Carboplatin infusion, plus starting dose of Avastin 6 weeks ago. After each dose the side effects were worse than the last. I never really recovered from the 5 dose before the 6th dose, but after the 6th dose I don’t seem to be doing well at all. I had Febrile Neutropenia and was hospitalized for 3 days, but I don’t seem to be getting any better in terms of fatigue, muscle soreness joint pain and neuropathy in my feet and fingertips. This is really starting to worry me. I have not had a CT scan since the first one done in emergency back in September. My oncologist seems to be ‘hot and cold’ and I never know how he is going to be. Sometimes he treats me like a child, and that just baffles me. This has to do with him and not me. I wish he was consistent and professional, but on several occasions he’s been neither. I just don’t understand him or what has precipitated his aggressive behaviour. He badgers me about ‘what am I afraid of’, and doesn’t back off until he has me in tears. Then he wants to give me a hug. At that point, that is the last thing I want, and I bristle. I just don’t get it. My husband accompanies me to these appts, and he doesn’t understand his behaviour on these occasions either. He just says to ignore him for the most part. I don’t feel comfortable talking to the dr about any concerns I have, nor do I ask anything from him. He’s a smart Dr, so I’m not concerned about his course of treatments. I am fully aware that my illness is terminal, but I want to live as normally as possible, and not dwell on dying. Anyway, the point of this post is to ask if anyone else has had this ongoing reaction to these particular chemo drugs, and if so, how long does it take to recover. I had the full strength of these drugs up until my 5th does when they were reduced by 15%
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8880 Posts

@MaryCatherine I'm so sorry for what you are going through. I have no experience of this to speak of but it bothers and disgusts me when oncologists or any doctors treat their patients the way you are being treated. I've said it before..I dont care how smart a doctor is, I have no respect for doctors who treat their patients like that. You are vulnerable and fighting for your life and should be able to feel comfortable asking questions and confiding your symptoms and side effects with him. Is there a patient ombudsman you can complain to? You have every right to ask for another doctor if you arent comfortable with this one. I'm sorry I butted my nose into this post but I dont like hearing any one being treated like that. In regards to your question…I'm going to tag @Sadie12 @DonnaL1959 and @Glory22 who may have the experience to share. Alternatively, you can also call thr cancer info line at 1888 939 3333. They can help you with your inquires as well as advise you on dealing this difficult oncologist. Wishing you the best.


Brighty‍ i did think about calling the cancer info line, and may do that. I just don’t understand what he is all about. Luckily I have a great GP, and I have an appt with him coming up, but he’s not an oncologist. I wish I did have an oncologist that was calm and consistent, but I’m sure changing Drs might be an issue. After 2 doses of the Avastin, I can opt to have my infusion in my home town, so maybe I won’t have a lot of contact with him, once I switch locations. Thank you for your concern, very much appreciated
2513 Posts

@MaryCatherine - I feel for you and your concerns about how you are feeling. My son also had Neutropenia and was hospitalized for a few days. It was one of the hardest times for me during his whole treatment.

We were lucky to have such a wonderful and kind doctor for him. I’m sorry that you don’t have the same comfort from your doctor. My son was on 3 chemo drugs but different from yours so I have no experience to share except that he did find it more exhausting at the end of his treatment.

You can always call the pharmacist that provided your meds and ask these questions. The oncology nurse could also answer your questions.

Let us know what you find out and if you are feeling really bad you can always go the emerge at your local hospital.

Healing hugs and a flower for you today❤️‍🩹🌼

2593 Posts


Hi, I had 6 rounds of the same drugs (carbo taxol). I suffered from bone pain, muscle soreness, fatigue, and chemo brain (confusion) during and after the treatments. The side effects are cumulative, and it took several weeks after treatment ended to begin to feel better. My treatments were several years ago, and to tell you the truth, my endurance has never really gotten back to what it was, and I still believe I suffer from chemo brain effects as well. I can't speak to the other side effects you mentioned, but everyone's experience will be somewhat different.

Hope this helps

Keep well


59 Posts

I'm on Taxol and Avastin (added every other week). The side effects of Avastin are harder for me to take than the Taxol. Each one gets harder, I agree. Mine are mostly fatigue, shortness of breath, nail bed damage, tingling hands and feet.

367 Posts


I am sorry that you are going through this.

I did have 6 rounds of Carboplatin and Paciltaxol, but did not take Avastin.

I did not suffer greatly, but remember that I had a harder time recovering after the 5th and 6th round…mostly fatigue, tingling,numb feet and muscle aches. I do remember for months after being concerned that I still had so much fatigue and my muscles didn't seem to carry me as far - like I walked the same route for exercise and the one steep hill seemed to just keep getting harder to climb as the time went by. It took me another year to recover to the point that I returned to work.

I am more concerned with your relationship with your oncologist and the stress it is causing you at a time where you should feel confidence in your healthcare team. Have you been offered a supportive care counsellor from your cancer centre? Perhaps they could help you with this.

It must be pretty stressful to be an oncologist…although, that doesn't excuse his behaviour. Regardless, you should feel comfortable with your oncologist. I did change oncologists right in the middle of my chemo treatments…not because I didn't love my oncologist who did my surgery and started my treatments, but for other reasons, I switched my cancer centre. I think it only went well, because I went with my 1st oncologist's blessing and ended up with another wonderful oncologist that I have now. Switching was extremely stressful for me though, as I felt completely untethered for a while.

I hope you find a solution. I wish you the best.


@Sadie12thanks Sadie for your support

375 Posts
@MaryCatherine. I am saddened to hear how your oncologists treats you, but I can't say mine was much better. Our list of questions were mainly ignored. I did go through the same cocktail as you 5 years ago for Stage 4 Uterine Cancer at age 67 and it did take me at least 6 months before I could do much. I delayed my last treatment for a week and took Round 6 at 80%. I did get an MRI at the end of treatment which declared me NED. Perhaps your husband can inquire about the CT scan, and why it's not being done. We did go for a short walk every day for 15-20 minutes and I gradually increased it. As far as tasks around the house, I would try to do one thing a day. Some days were better than others and I spent a lot of time reading and resting. I did do acupuncture twice a month and that helped me. As my energy increased, I would do a task, rest awhile and try another one. I started in on an exercise program after 2,5 years, gentle Yoga and chair exercises. I have to say it has been a slow recovery, but I have tried to keep myself busy and have enjoyed a lot of good books. I am very grateful for the treatment. Best Joan
2006 Posts

@MaryCatherine I had 6 rounds of carbo/paclitaxol but no Avastin. I know it took me months to recover And my oncologist said it would take 6-12 months to recover following chemo. It took me about 15 months to get to a point where I felt I was close to my pre-diagnosis self. It was a definitely a gradual process and I did feel better some days than others. I was on a PARP inhibitor for two years following my chemo and that may have impacted my recovery as well.

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