@MaryCatherine I'm so sorry for what you are going through. I have no experience of this to speak of but it bothers and disgusts me when oncologists or any doctors treat their patients the way you are being treated. I've said it before..I dont care how smart a doctor is, I have no respect for doctors who treat their patients like that. You are vulnerable and fighting for your life and should be able to feel comfortable asking questions and confiding your symptoms and side effects with him. Is there a patient ombudsman you can complain to? You have every right to ask for another doctor if you arent comfortable with this one. I'm sorry I butted my nose into this post but I dont like hearing any one being treated like that. In regards to your question…I'm going to tag @Sadie12 @DonnaL1959 and @Glory22 who may have the experience to share. Alternatively, you can also call thr cancer info line at 1888 939 3333. They can help you with your inquires as well as advise you on dealing this difficult oncologist. Wishing you the best.
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@MaryCatherine - I feel for you and your concerns about how you are feeling. My son also had Neutropenia and was hospitalized for a few days. It was one of the hardest times for me during his whole treatment.
We were lucky to have such a wonderful and kind doctor for him. I’m sorry that you don’t have the same comfort from your doctor. My son was on 3 chemo drugs but different from yours so I have no experience to share except that he did find it more exhausting at the end of his treatment.
You can always call the pharmacist that provided your meds and ask these questions. The oncology nurse could also answer your questions.
Let us know what you find out and if you are feeling really bad you can always go the emerge at your local hospital.
Healing hugs and a flower for you today❤️🩹🌼
Hi, I had 6 rounds of the same drugs (carbo taxol). I suffered from bone pain, muscle soreness, fatigue, and chemo brain (confusion) during and after the treatments. The side effects are cumulative, and it took several weeks after treatment ended to begin to feel better. My treatments were several years ago, and to tell you the truth, my endurance has never really gotten back to what it was, and I still believe I suffer from chemo brain effects as well. I can't speak to the other side effects you mentioned, but everyone's experience will be somewhat different.
Hope this helps
Keep well
ACH2015
@MaryCatherine
I'm on Taxol and Avastin (added every other week). The side effects of Avastin are harder for me to take than the Taxol. Each one gets harder, I agree. Mine are mostly fatigue, shortness of breath, nail bed damage, tingling hands and feet.
I am sorry that you are going through this.
I did have 6 rounds of Carboplatin and Paciltaxol, but did not take Avastin.
I did not suffer greatly, but remember that I had a harder time recovering after the 5th and 6th round…mostly fatigue, tingling,numb feet and muscle aches. I do remember for months after being concerned that I still had so much fatigue and my muscles didn't seem to carry me as far - like I walked the same route for exercise and the one steep hill seemed to just keep getting harder to climb as the time went by. It took me another year to recover to the point that I returned to work.
I am more concerned with your relationship with your oncologist and the stress it is causing you at a time where you should feel confidence in your healthcare team. Have you been offered a supportive care counsellor from your cancer centre? Perhaps they could help you with this.
It must be pretty stressful to be an oncologist…although, that doesn't excuse his behaviour. Regardless, you should feel comfortable with your oncologist. I did change oncologists right in the middle of my chemo treatments…not because I didn't love my oncologist who did my surgery and started my treatments, but for other reasons, I switched my cancer centre. I think it only went well, because I went with my 1st oncologist's blessing and ended up with another wonderful oncologist that I have now. Switching was extremely stressful for me though, as I felt completely untethered for a while.
I hope you find a solution. I wish you the best.
Sadie
@MaryCatherine I had 6 rounds of carbo/paclitaxol but no Avastin. I know it took me months to recover And my oncologist said it would take 6-12 months to recover following chemo. It took me about 15 months to get to a point where I felt I was close to my pre-diagnosis self. It was a definitely a gradual process and I did feel better some days than others. I was on a PARP inhibitor for two years following my chemo and that may have impacted my recovery as well.