Good morning to all,
I have had MDS for a few months now and regular transfusions are required in order to keep my hemoglobin at a proper level. This overloads your iron level to a point where there is a risk of organ damage. The solution is to go through what is called chelation therapy. Is there anybody in the group who has been through this therapy and do you have some information on how it is and what are the side effects? Thanks.
@nadonou1 I did a search on the site and did not find any reference to it. In looking online, I see that it deals with heavy metal toxicity and that it might be considered alternative or complimentary medicine. As such I can't really comment on it. I also have not had this type of treatment.
I looked up the therapy on the internet and found this link for you:
The link talks about uses for the therapy, and side effects you may get during the process. It's always a good idea to talk to your medical team as well, to understand what side effects you may encounter and need to advise them of.
Hope this helps
I have certainly ‘heard’ of chelation therapy, and somewhere in the cobwebs of my mind I know that I have known someone in my friend circle who has received it…for the life of me cannot recall who, why or when exactly. not helpful I know! 🙄
can I suggest that you give the cancer information specialists a call during working hours tomorrow and ask them? they have all the up to date, Canadian information at their disposal.
1-888-939-3333 is the number to call, or you can connect virtually from this site.
good luck with it all….how interesting that the side effect from your MDS treatment produces this huge load in your body. it is fascinating to me how our various treatments behave and how our miracle bodies respond.
sending my best to you
@nadonou1 My mom had taken chelation in the late 70s and early 80s to supposedly treat hardening of the arteries. This treatment was being promoted from Washington state at the time as some fantastic new cure for artery issues. It wasn't covered by medical in B.C. so she needed to travel weekly to Bellingham for these treatments. My mom's results were totally ineffective for her issue, and she ended up dying of artery issues albeit much later in life. I honestly can't see how chelation would help you.
You are right about the treatment being unproven to treat hardening of the arteries, however it is proven to remove heavy metals such as iron from the blood. I am attaching a link that discusses proven and unproven benefits of chelation therapy:
As I suggested, try to get as much info from your medical team as you can for all treatment options. Since the excess iron condition is created by transfusions to keep your hemoglobin at the right level, removing blood from your body (which is another therapy to correct excess iron levels) is apparently not the answer for you.