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Can pituitary tumor be treated by Radiotherapy?

My Radiation oncologist recommends surgery over radiation therapy without explaining details.

Patient's informed choice should be respected.

Why “patient centered” principal is not practiced at the hospital??

9 Replies
ACH2015
2301 Posts

@PituitaryTumor

I would suggest you request another consult to discuss the reasoning if none was given. Also, if surgery is recommended, you should have the opportunity to speak with a surgeon as well that should explain their reasoning for surgery over radiation.

It is never easy to be left out in the cold for answers, ask the questions that need to be asked, and BTW - There should be consult reports you can access from the hospital that detail the reasoning for one treatment over the other.

Of course you want to understand the reasoning for treatment decisions. Hope my post helps. And don't forget, after you get the recommendations from both the radiation oncologist and the surgeon - you can always seek a 2nd opinion if you still feel you need more information and clarification.

Keep well

ACH2015

Thanks for the reply.

I'm going to another ER today to be referred to another radiation oncologist.

Hope it will work well.

ACH2015
2301 Posts

@PituitaryTumor

It would be a good idea to get the reasoning from the first radiation oncologist as well. It may provide you with the answers you are looking for.

All the best

ACH2015

The oncologist is refusing to meet with me...
ACH2015
2301 Posts

@PituitaryTumor

If the radiation oncologist won't meet with you, I'd suggest you contact the head of oncology at the hospital to seek a new oncologist. Going to an ER is not the way to get another specialist.

I am sorry you are in this situation, and hope you can get another specialist, or have the one that won't meet with you do so through the head of oncology. This should not be this difficult to get dealt with, but I also only have the information you provided.

All the best

ACH2015

Cynthia Mac
3870 Posts

PituitaryTumor‍ , I just read your information this morning. I agree with ACH2015‍ that going to another ER may not be the best way to resolve your situation.

Most hospitals have a panel that review complex cancer cases, so there’s a probability that your case was discussed with more than just your radiation oncologist. You might reach out to the hospital’s patient ombudsman to see if you can obtain the information around that review.

In addition to reaching out to them, or the hospital’s head of oncology, you might reach out to your own GP. Your family doctor will have all the information from all your tests, and may be able to fill in some of the information for you. Alternatively, he could contact the oncologist and ask questions on your behalf.

#gettinganswers #tumourboard

Charles
123 Posts

ACH2015:

@PituitaryTumor

If the radiation oncologist won't meet with you, I'd suggest you contact the head of oncology at the hospital to seek a new oncologist. Going to an ER is not the way to get another specialist.

. . .

+1.

Emergency rooms are set up to deal with emergencies. That's not what you have.

The Canadian medical system (at least in BC) isn't set up for long consultations between patients and experts.

A family member was having problems, and thought that surgery would fix them. She never got a satisfying explanation of why the surgeon refused to operate --

. . . until she arranged for a private consultation (at considerable cost) with the surgeon.

He spent 45 minutes talking with her, explaining the diagnosis, and the possible risks and possible benefits of surgery, and the reasons for his refusal. After that consult, she said “OK – I understand”, and was happy to explore non-surgical treatments.

We could use a class of “medical intermediaries / explainers", whose job was to sit with patients, and translate their doc's thoughts and notes into plain English, and take enough time over that to have the patient really understand the “why?” of the doc's opinion.

. Charles

Nobody should blame patient's questions or choices.
ER doctors actually tried to have specialists to meet with me.
​​​Without ER doctor patient's eye may well get further deteriorated.
Most family doctors don't see patients so quickly.
Problem of my Radiation oncologist is that he didn't not explain the real reasons for surgery recommendation.
Everyone ought to have right or freedom to seek different hospital/oncologist.
ACH2015
2301 Posts

@Charles

The writer clearly stated they did not understand the reasons for surgery over radiation. To me, it is a basic responsibility of the specialist to explain the reasoning for one treatment over the other. It does not have to be a lengthy process - but the process should take place regardless.

I endured chemo, surgery x 4, radiation and immunotherapy. I had several questions and believe me, they were all answered by the specialist involved in the field before I consented to treatments.

A fellow or resident could explain the reasonings for the treatment choice, however the specialist is the one making the decision / recommendation and therefore has the ultimate responsibility to the patient.

ACH2015

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