I got diagnosed with prostate cancer a few weeks ago and i am looking at my options. Does anyone know some one who had a Hifu treatment done?
@Twan there are many treatments for prostate cancer. You need to understand that the Oncologist is the one that recommends the type of treatment specific to you and your situation. There may be choices offered and that is when it is best to ask what the risks and benefits are of the options presented. I'd suggest you get some further information from your medical team, and I am including a publication from the CCS to help you ask the questions needed. https://cdn.cancer.ca/-/media/files/cancer-information/resources/publications/questions-to-ask/32099-questions-to-ask-en.pdf?rev=26f3c4a6d167438ca6180bab12fb0e91&hash=39C84E258A87131132C7205055DF449F&_ga=2.2395056.1606815316.1642371686-900701983.1642371684
Hope this helps you get some important questions answered.
@Twan Welcome from ON! So glad you connected here with us! Please meet @kcbpcst (Also from ON), thank you so much, if you could share your experiences here (Prostate), to support our new member (@Twan )….who is also from ONT…..on a similar path…..much appreciation……Kindly share Prostate Support Group Info/perhaps Twan will be interested to join in….ask questions….gain info…..thank you - Let's Connect in ONT!
Twan, if you wish to reach out/'tag' anyone, just type “@”screen name (no space after @) and a few names drop down; select name you wish; turns blue; they receive your message.
Also…..please meet @Roy L. Thank you so much, if you could share your experiences, here, (Prostate) to support our new member…..much appreciation.
We are all here to support you!
I am a member of Prostate Cancer Support Toronto. We have peer support group meetings on the 1st and 3rd Tuesday of every month on Zoom at 7PM Eastern Time.
Our next support group meeting is on the 18th of January, 2022 at 7PM Eastern Time. Here is the link to register for the meeting:
We have a couple of members who have undergone HIFU treatment. If you attend the meeting on Tuesday, one of them may show up.
Here is a link to a video of a presentation to our group on HIFU by Dr. Jack Barkin of Humber River Hospital.
You can find a lot of useful information on our website
If you would like to connect with a Support Group outside Toronto, you can find contact details for your nearest group at this site:
We have “Awareness Night” presentations on the last Wednesday of January, March, May, July, September and November at 7PM where we have guest speakers talk to our members on various topics related to Prostate Cancer as well as other related issues. The link to register for the presentations is posted on our website (pcstoronto.ca) a few days before the event.
You can view videos of past Awareness Night events at the link below.
If you would like to connect with a Prostate Cancer Survivor for ongoing one-on-one support, you can join the TrueNth program where you can be paired with a Peer Navigator to assist you along your journey. I am a Peer Navigator in this program. Your spouse, partner, family member or friend can join this program for support from a “CareGiver” Navigator who is a spouse, partner, family member or friend of a survivor. You can find more information and register for this program at this link:
I have personally undergone a Radical Prostatectomy (Robotic/laparoscopic) followed by External Beam Radiation Therapy (EBRT) and Androgen Deprivation Therapy (ADT). If you would like to connect with me directly by phone, FaceTime or Zoom let me know. I am based in Toronto.
Thanks for the information. I watched the video with dr Barkin and was very interested in talking to him. However today i talked to a radiologist and found out that my prostate has grown to 108 cc - what a shocker - so hifu is of the table. Most likely will have a radical prostatectomy. Gleason score is also high- 8 But i am feeling good.
Don't worry. My prostate weighed 126 grams. Removed by robotic surgery. I'm doing fine. You'll be fine too. Recommend you connect with kcbpcst above. I know him and he is a good man.