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PMBCL - awareness of primary mass post treatment

PMBCL - awareness of primary mass post treatment

Posted by McHammer on Oct 9, 2020 4:17 pm

two years ago, i was diagnosed with an advanced stage 4 pmbcl. The primary had 13 cm in diameter. I had 8 d.a. EPOCH-R and 3 high dose methotrexate treatments. Today, 15 months post treatment, I find myself struggling because of the discomfort and awareness of the primary in my chest... do any of you experience the same thing? Does it go away?

Thank you in advance for your valuable time 

Re: PMBCL - awareness of primary mass post treatment

Posted by ashcon on Oct 10, 2020 2:41 pm


Glad you found this site. Great to hear that you are this far out from active treatment.  I am 2years out from active treatment myself, and still find I get a lot of learning and sharing with others.  We are all but a village, aren't we?
You ask some good questions. At first glance, I did not find any posts from others with a similar problem, but there are some members like Jessa‍ ,  BarbaraG‍ , and Sand44‍ who have identified as receiving a diagnosis of PMBCL.  Some of these members have not been active recently, but perhaps check in once in awhile and may be able to get in touch with you.

Feel free to use the Search window at top of the main home page, or within a Discussion Forum to find discussions related to a particular topic or question you may have.

Also you can call the ever-so-helpful Cancer Information Helpline at 1-888-939-3333 as well.  They have access to credible information and resources, even for less common questions or situations. 

What has your doctor said about your concerns?  Perhaps what you can find out and share here would be helpful to others who are wondering the same thing, but haven't asked yet!

Wishing you many mornings of raising that "f*** cancer" mug!
---- "Nothing ever becomes real till it is experienced." ----