Has anyone had the experience of their peripheral neuropathy continuing to get worse after chemo? I did 6 treatments of R-CHOP and then 2 high dose methotrexate treatments doe diffuse large B cell lymphoma stage 3b. My neuropathy started with the third treatment and just kept slowly getting worse. I am almost 2 years from my last chemo (and NED) and it still seems to be slowly getting worse. I know the heat seems to make it worse and we have had plenty of that in southern Ontario!! I am currently taking Cymbalta and Lyrica and medical cannabis for it and have tried acupuncture but it still isn’t working well. I am going to talk to the palliative care specialist again in a month but I know I need more than this so that my life doesn’t become all about the pain. Mercifully, I am working from home so the amount of walking I have to do is more controlled. Anyone have any other suggestions for things that works? Anyone else have a similar pattern?
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