I have a rare type on non-clear cell Renal Cell carcinoma. I had a radical nephrectomy at the end of April. I just started immunotherapy (Nivolumab) on Thursday. I encountered roadblocks along the way and treatment was delayed (in my eyes). Even though I volunteered to pay 3 weeks ago, they wanted to keep trying to get it funded. I am now paying $3500 a treatment and wondering if it is too little too late. I am really tired and in a lot more pain than I have ever been in the past. I am relatively healthy but the cancer has metastasized to more lymph nodes, my lungs, liver and spine - spine is the newest organ to get involved. Started with chemo, but the last CT scan showed that the cancer had spread so chemo was suspended a month ago. Oncologist wanted to continue chemo regardless but then changed his mind when taking quality of life into effect. Immunotherapy was discussed a couple of months ago, but idea was to see if the chemo worked. I am wondering if this kind of waffling over treatment is normal. Any thoughts? I am also wondering if I present too healthy for the doctor to recommend abandoning all treatment.
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