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Let's Talk Immunotherapy

Re: Let's Talk Immunotherapy

Posted by Cynthia Mac on Aug 24, 2020 9:22 pm

Hi, User1987‍ , I, too, am sorry to hear about your Mom’s pain.

When my Dad was on Keytruda, he never complained our “outright” pain. But, since his passing, I have learned that he wasn’t the most forthcoming with me. It seems that he didn’t want me to worry.

I agree with Melanoma‍ , that you or she should contact the oncologist. They are your best resource for letting you know if this is a side effect of her Keytruda, or whether it could be something she needs to see her GP about.

Thanks, Elsie13‍ For the tag.

“When the root is deep, there is no reason to fear the wind.” - Japanese saying

Re: Let's Talk Immunotherapy

Posted by sgt. pepper on Aug 25, 2020 11:46 am

Hi everyone.
User1987‍ 1987 I am very familiar with Keytruda and nasty side effects.  My main issues were rashes, fatigue, headaches and two frozen shoulders from joint pain.  I also developed meningitis following which treatment was discontinued.  I had six months of treatment and the good news is I had a total response to treatment as my tumor (melanoma) was gone after two months and I've been cancer free ever since.  It was well worth it and I consider the treatment a miracle drug.  I was in a clinical trial with another drug which I suspect caused the meningitis, not the Keytruda. My advice for anyone undergoing this treatment, you just need to persist despite any discomfort for a possible successful outcome.  It is also important to follow up with the oncologist with regular appointments, blood work, scans etc.

Sgt. Pepper


Re: Let's Talk Immunotherapy

Posted by MarieSN on Oct 1, 2020 4:39 am

Hi guys,

Thank you for sharing your experiences. I've never had the first-hand experience with immunotherapy, but I found this article about cancer immunotherapy and vaccine recently and I really hope that they will develop the better version of it.

Btw, my mothers' doctor suggested her immunotherapy rather than chemotherapy. I believe that she will agree with him.

Best wishes,

Re: Let's Talk Immunotherapy

Posted by Wendy Tea on Oct 1, 2020 9:59 am

MarieSN‍  Welcome. Great first post! I am sorry your mom needs treatment.  Have you also found Cancer Types under Forums?  And the discussions for Caregivers? 
Healing takes time and opportunity. Wendy Tea

Re: Let's Talk Immunotherapy

Posted by MarieSN on Oct 5, 2020 2:50 am

Hi Wendy Tea, thank you so much. I haven't had time to check out other discussions yet, but I will, one of these days.