Hormonal therapy is a treatment that adds, blocks or removes hormones to slow or stop the growth of cancer cells that need hormones to grow. Hormonal therapy is also called hormone withdrawal therapy, hormone manipulation or endocrine therapy.
Hormonal therapy may be used alone as the main treatment or with other treatments. It may be used before surgery to shrink the tumour and make it easier to remove or before radiation therapy to shrink the tumour so radiation can be given to a smaller area. Hormonal therapy may be given in addition to main treatments such as surgery, radiation therapy or chemotherapy to lower the risk that the cancer will come back
Are you currently on hormonal therapy?
What has your experience been?
What do you wish you had known before you started?
After some consideration, I started taking Tamoxifen May 7,2020 and have experienced a few side effects. The first week in the afternoons I was nauseous, that feeling lasted about 6-8 hours per day. I did get a headache a couple of different days too, I very rarely get headaches so I know this was a side effect. Those 2 side effects seem to have subsided, fingers crossed and now I’m working on finding the balance between constipation and diahrea, lol. Also I’m experiencing the immediate feeling of wanting to peel off all my clothes when a hot flash hits. I wear layers and have a fan Close by so I can cool myself down.
Overall, it’s been about 3 weeks now, and I think everything is starting to settle a bit as my body has learned to adjust. I said I’d give this option a months try to see how severe the side effects were with me and I’m happy to say, with a little time they’ve gotten better and I feel confident I can get the last 2 things on track as well. Good thing it’s almost summer, less clothes required!
Although I’m considered triple negative, ER 40%+, my Medical Oncologist felt I may benefit from Hormone Therapy. My cancer is a very very rare type of breast cancer, Secretory Carcinoma NRTK Fusion3, only a few hundred people in the world have this, so there aren’t any randomized studies, scientific evidence or clear recommendations to follow for treatment plans.
I shall see how this works, although who knows if they can truly tell the benefit or not?
Hugs Without Bugs,
I had a lumpectomy in april and starting radiation on the 10th. I was diagnosed with DCIS at my age of 25...still pretty shocking and scared about the side effects, how will the future look like regards having a baby..and so on, it has been very overwhelming.
I am very glad to be here and have lots of support and opinion from all the pink sisters out there..
Here is a link to discussions about tamoxifen:https://cancerconnection.ca/search?query=tamoxifen
May I ask did you meet with a Fertility Specialist before treatment?
thank you for the link....
my oncologist said there wont be any fertility treatment needed, and due to the covid they are not doing any fertility treatments other then if cancer patients are going through chemotherapie.... should I have any concerns?
Each of our bodies is different and each of us will react differently to the tamoxifen. I would highly recommend trying acupuncture for relief of symptoms.
I'm so glad you posted.
I'm sorry to hear about the dizziness you are experiencing- that is an awful feeling. Have you reported it to your healthcare team?
Check out our prostate cancer forums here. I'd like to introduce you to Charles, Roy L. CBinBC.
Have you had any dizzy spells since you last posted?
It's nice to meet you!
Have you seen our uterine cancer discussion forum? Here is a link. Try posting your question there also! Click here and then click start new topic to write your own post.
Here are some discussions about Megace. I'd like to introduce you to Anxious33 and Reinne who may have experience with the drug to share.
When are you suppose to start this med?
I've had the opportunity to speak with a few retired professionals re my questions around Megace, which has been helpful. I'd still love to connect with someone who has actually taken it, however - I'll likely post something after I've met with my oncologist next week.
I hear ya Roy. My combo of Zoladex Implant (goserelin) and apo-bicalutamide have me heating the house. I tend to have significant fatigue and muscle aches as well. What is attributed to meds and what is from radiation therapy is hard (impossible) to determine.
Just wondering if there are other women here that are not taking any hormonal treatments after BC.
Hugs to all,
I think a second opinion is very important in your case. You need to be comfortable with your treatments (or non-treatments) !
Traveler - Thank you for sharing your experience. So glad you are feeling well with the injections, fingers crossed they are doing their job.
Second opinions are a great way to get more information and feel confident in your treatment decisions. Were you able to have a conversation with your Oncologist about the recommendation from the second opinion?
Kimmy0222, Hollykins have shared experience with Zoladex. Here is a link to discussions about the drug: https://cancerconnection.ca/search?query=Zoladex
You can also contact our Cancer Information Helpline for help finding more information about the drug and what it is used for. You can contact them by calling 1-888-939-3333.
How are you feeling about this treatment change?
Are you able to find out what the benefits of hormone therapy are for you? Can you have this discussion with your medical team? It would be best to know the facts for you specifically so you can make an informed decision. What are the numbers? I am so glad you found us here.