Posted by Lacey_adminCCS on Nov 6, 2019 12:05 pm
Did you experience fatigue? If so, at what point was it the most challenging?
What helped you manage your fatigue?
Posted by princessmaura on Nov 6, 2019 12:30 pm
Posted by Wendy Tea on Nov 6, 2019 12:30 pm
Fatigue has so many aspects and so many causes. Yes, I experienced fatigue. I experienced it pre-diagnosis (my body was fighting something), then after diagnosis but pre-surgery (my mind was spinning a 1000 miles a minute), then after surgery (my body was healing), then when I thought I should be up and about, I wasn't. That was when we checked my ferritin-iron levels and found them extremely low. Just when I was starting to feel better, I again experienced more fatigue. This time it was from depression which was a direct result of my trial drug Letrozole.
Today I am 6 months out from my date of surgery, I have more energy, more positivity, and I am a happy camper.
My main comment is, if you experience fatigue, rest, but also look for an underlying cause because if you find the cause, you can deal with it and your fatigue can be managed.
Posted by Nan1 on Nov 6, 2019 12:34 pm
Day 3 started off a bit rough but I had some breakfast..took my meds and am starting to feel a bit more alive. I think I may have done a bit too much yesterday. It is a learning curve but I just have to learn to take it slow which is going to be a tough one for me because I like to stay busy!!
Posted by Mammabear on Nov 6, 2019 12:38 pm
Posted by Elsie13 on Nov 6, 2019 12:44 pm
Anyway it was cold and quite windy, and I wasn't especially tired - kept walking to avoid freezing? - So then we were lost in the woods. The snow and ice had recently melted, and instead of being on a trail, we were in a large 6" deep pond. Anyway, we found our way back and had lunch at an Italian restaurant with a big fireplace. So I'm thinking, when there's Adrenalin involved, your fatigue will hold off for a while?
Posted by law on Nov 6, 2019 12:52 pm
It seems to come with the recovery territory.
If I can lay down for a nap, it helps a bit, or, since I am retired, I have more free time so I can be lazy, nap, read, and just wait for the spell to pass. It lasts for an indeterminate time so I just accept it.
I know resting is a luxury which I do appreciate, although my social life is often reduced when I go thru bouts of fatigue.
Posted by MyrlaneB on Nov 6, 2019 12:56 pm
Posted by Marcell on Nov 6, 2019 1:07 pm
my fatigue is overwhelming me. I can lay on the bed for just one minute with my doggy and it sets in hard. I’m almost dizzy and off-balance to stand up. I went from only sleeping maybe three or four hours a night, to now sleeping all night and probably five or six more hours during the day between a couple naps, and I are always having to push myself to get things done with no energy at all.I don’t know if it’s my depression or the cancer. I do find that sometimes I can fight through it and keeping it from becoming too strong, though sometimes it is so overwhelming I have no choice but to sleep.
Posted by JustJan on Nov 6, 2019 1:11 pm
Posted by Mystiquewolf on Nov 6, 2019 1:19 pm
Posted by Chichimus on Nov 6, 2019 2:05 pm
When i first got out I could barely make it up a flight of stairs. My first outside expedition I made it half a block. Took me a month before I felt 'sturdy' enough to drive.
It has certainly improved but at 7 months out of treatment there are definite days when the batteries just run out. Frustrating at times but try to not let it get to me as that would make it worse. Some is physical and some mental.
All I can really offer in way of advice is to keep trooping along. Don't let it get you down on one hand and don't use it as an excuse on the other - as attractive as that may be at times :) You know yourself.
Posted by Hadrian on Nov 6, 2019 2:33 pm
After diagnosis I stopped any exercise since I was quite disappointed with the news.
After the initial dizzying shock I decided to learn about the condition and new research in the field so I took some after-work courses for months.
Since I recovered my compass, I never had major problems or fatigue. Of course c is hanging in my mind constantly but does not unbalance me for now. I guess the fact that I'm doing something to fight it keeps me motivated and out of depression.
Of course I have some minor issues. They could or could not be related and do not affect significantly the quality of life.
All the best,
Posted by TT53 on Nov 6, 2019 3:46 pm
I had two lumpectomies and I only had a hard time the day after the surgery and then I was able to bounce back. Since my mastectomy, I was down for about 3 days, just laying around and resting whenever I felt tired. On my fourth day I started my little walks outside. Didn't make it very far, but fresh air was wonderful. After a week I was able to return to my daily 40 min. walks. But I listen to my body and if I get tired, I rest. I do not feel guilty about taking the time for me. I think that is important to put yourself first, which is a new trend for me. I am learning in my old age. LOL
Posted by Marsh on Nov 6, 2019 4:32 pm
Posted by Missk on Nov 6, 2019 4:41 pm
Now in the " recovery" phase I am still not my usual self. Long walks wind me, short runs are slow and it's still early bedtimes. I take all of this in stride though. If feeling dejected about my progress I think of that day on the stairs or when I returned to work six months ago and could only work half-days. I am just happy to be making a little progress each day.
Posted by Warriorprincess on Nov 6, 2019 4:52 pm
Posted by Javier on Nov 6, 2019 5:02 pm
Cancer and fatigue
Do you know what the main problem that a cancer patient has is? It is fatigue. The exact cause is unknown. There are many reasons for this cancer fatigue, but doctors do not know how to treat it.
The normal fatigue that we have some days is different from the fatigue of cancer. This normal fatigue usually goes away very soon. Cancer fatigue can take months or years. In my case, it has continued after finishing my treatments. This cancer fatigue frustrates you and affects how you live each day. Some days are worse than others. And it appears at any time of your day. If it is severe, you cannot go back to work as you planned. You have to look for solutions like working part time.
Among the main causes of cancer fatigue we have are cancer itself, treatments against cancer, anemia, nutrition problems, emotional distress, sleep problems, lack of physical activity, and some others. Due to these many reasons, it may not be possible to know the exact cause of fatigue. It is recommended to get treatment for medical problems that may be adding to your cancer fatigue. Try it.
To help you with fatigue, I will give advice that I have read on online sites and pamphlets on fatigue. These online sites are from hospitals known as Sunnybrook, Mayo and Cleveland clinics, and the American Cancer Society. In addition to this information, I have included my own experience with fatigue. These are:
- Walking is a good exercise to help with fatigue. I practice it with excellent results. If you can go to a gym, it will help you too. I try to go to my gym three times a week.
- If you have ten things to do one day, reduce them to 2 or 3 and leave the others for another day. You will feel better for what you achieved, and the fatigue will be less. These activity reductions will help you conserve energy in your day. Good advice and I try to follow it every day. Ask your family members to help you with tasks that are heavy for you.
- Have a plan to rest at some times during your day. The recommended rest is 20 to 30 minutes. I apply this advice every time I feel tired. After my short nap, I feel better with energy to do any important task. Although experts say that fatigue does not go away with a nap, my experience and the experiences of some friends with cancer are different. A nap helps.
- Go to sleep when you're sleepy not before. Sleep about 8 hours each day, but no more than that. When I go sleepily to bed, it takes me 5 minutes to fall asleep. Practice and you will see.
- What you eat is very important. Get a cancer dietitian, and she will help you with the best food for you. Mainly your food must have grains, meat, milk, fruits, and vegetables. The amounts depend on each person.
- It is advisable to drink 8 cups of liquid per day. For me, this is difficult since I suffer from incontinence due to my surgery to the prostate. I do the best I can.
- Participate in a support group about fatigue. These groups are very useful. I have participated in some of them. The different experiences of the members give you a better perspective of your problem.
A lot of advice. If you can practice one by one in your daily life, you could improve your fatigue. Saying "improve" is important because fatigue sometimes takes years to go as experts say. Once again I ask you to share your experiences with these tips. By doing this, you are helping other people in similar situations. I hope you feel better. I'm better with my fatigue, but sometimes I need a nap to recover. If I take it, I'm fine. You try it.
Posted by Picasso’s mannequin on Nov 6, 2019 5:08 pm
Horrible, goes on for months, but it eases.
Good luck everyone. I had bad side effects and now I’m thinking of moving somewhere with more cancer treatment and support for triple neg breast cancer.
My side effectcts were apparently worse than usual, so don’t go by me. But I was wondering if there were any place in Canada that does immunotherapy and does it work?!
Posted by SpeedyStill on Nov 6, 2019 8:18 pm
When I was first diagnosed with Cancer in 2009 I was described by the Oncologist this way " G------ C------- is a young 62 year old gentleman with an excellent performing status". Written February 26, 2010 the day of my second cycle of Chemotherapy.
I experienced a lot of fatigue during and after the 6 chemotherapy treatments. Even in good health it took me 6 months and I was still not right.
What helped me with fatigue
Good support from my family
Spending time with my granddaughter playing all sorts of games with her even dolls. We would dress them in different cloths and then put them in bed for a little sleep. Which lasted all of 5 minutes a short night. Then we would dress them up and feed them breakfast. It was now time for a stroll to the grocery store. Now if your mind is so taken up by being a good parent to your doll you had little time for fatigue. I say that my granddaughter saved me from the Cancer.
When I was going through the treatments and I was pale and completly hairless she would come up to me and say "I love you Bumpy" What better gift than that to a person in shock. Bumpy is the name my grandchildren any other children call me.
What is your passion. Some of mine are:
Watching a good movie
Fatigue is real and our body can speaks to us. The secret is listening to our body and not from anyone else.
When are we most down or depressed. When our body is tired.
Defence is twofold either doing something we love or resting our body so we can enjoy doing what we love.
This is a bit of a mish mach of info but my defense as always "Chemo Brain "
Have a good night everyone it is 9 PM here and time for bed.
Early to bed early to rise makes Jack healthy, wealthy and wise. I don't think that's about me. No money, feel a bit sick and pretty dense at times.
Posted by WestCoastSailor on Nov 6, 2019 8:24 pm
Fatigue can be extremely dangerous. Some else mentioned thinking about underlying causes whether the cause is low iron or depression or something else. Fatigue is common to all cancers and to all treatments so we (and our oncologists) take for granted that it is going to happen. Looking beyond it though is important.
More importantly though fatigue can sap our will to live. I was writing about this yesterday in another thread. When we are low in energy it becomes a struggle to do the things that we live for. And it becomes a tight spiral.
So to keep it at bay we exercise - even when we don't feel like it. We eat well with variety and moderation. And we try and get enough good sleep using meditation as necessary.
Stay well my friends.
Posted by Aries on Nov 6, 2019 8:52 pm
Posted by Peanut on Nov 6, 2019 10:48 pm
Posted by Essjay on Nov 7, 2019 7:46 am
Yes, I suffered with fatigue. It took me by surprise and was something I had not really experienced before.
As an A-type personality, busy and driven, it was hard to find I had to take my time, pace myself, decide what we're my priorities each day and accept doing very little, napping every day. I found moving every day - a walk with the dog, exercising when I could, getting out snow shoeing (chemo occupied last winter) I was up to it, helped me cope with it. I was not going to let fatigue rule my life.
I found it really hard getting back to work. My insurance company gave me a 3 month gradual return after I finished active treatment, and since it was summer but I didn't get any vacation during that time, I was keen to comply. I found it was really difficult to judge what I could do, and I got it wrong frequently. I found it scary to hit the fatigue wall at work, knowing I had to drive an hour home.
My magic ’pill’ for fatigue has been exercise - it still is 5 months after finishing treatment. Like using a savings account, I invest energy in exercising and I get energy plus interest back. I was back in the gym routinely through radiation and three weeks after finishing radiation I started a couch to 5 k running program with the goal of running in the Cibc run for the cure. I hadn't run since I was in high school. I'm still running, 2-3 times a week, and working up to 10k. And yet, 5 months ago I had to rest after getting dressed, and was breathless after climbing more than 3 stairs!
I'm not back to my previous energy levels yet - I still have to prioritize my activity, and there are many occasions when the fatigue hits me hard, but it's much better, which is really encouraging. I feel like I have my life back!
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