Posted by Lealea on Jul 14, 2020 10:21 am
Day two for found three today. So far little nausea if any...I think it hits more towards end of today. No allergic reaction either...so thinking Grastofil might be culprit which I start tomorrow ☹️
Being proactive in meds and trying to drink more liquids this time. Still feel like I got my brain...but that usually goes too soon. Hate how “I” disappeared for a while. Took longer last round too. Oh well! One more round after this! 😊 end in site!
Posted by edd on Jul 14, 2020 11:19 am
Posted by ashcon on Jul 15, 2020 5:18 pm
What a great explanation of what you went through. And great advice about the feeding tube.
My cousin's wife underwent surgery and radiation for cancer on her tongue. This was about 5 years ago. I don't think she was diligent in staying on top of what she needed to do to recover and to this day, can only take down fluids. And they're not the healthiest type of fluids (a fair amount of alcohol is part of her daily diet!) Needless to say, she's lost a lot of weight that I don;t think she'll ever recover.
So glad you are staying hydrated and keeping your weight consistent.
What will be your first meal when you can eat normally again?
Posted by edd on Jul 16, 2020 9:56 am
What will be my first meal when I recover? Funny you say that. You know, when you watch television there is at least one food commercial at every break throughout a show! I only know this for I am starving for real food and low and behold what's playing in front of my face every 8-10 min. Lol. That being said, I would really like to sink my teeth into a medium rare prime rib from the Keg. But, right now during Covid, they're closed and no one else is getting one either, so I feel better.
Sorry to hear about your cousin's wife. I wonder if there are other professionals that can help her? I just had an appointment with my radiation doctor last Tuesday and explained to him about my difficulty swallowing. He put me in touch with a Speech Therapist immediately who came to visit me during our appointment. She gave me a throat exercise to do temporarily until a full assessment can be done on me. She was quite assuring that I can overcome this. Yeah. I just have to wait and be patient. Can't say enough of the hospital staff at Princess Margaret, they are a God's send.
Posted by Lacey_Moderator on Jul 16, 2020 10:30 am
This made me think of a friend's Dad who had Nasopharangeal cancer. He was eating by feeding tube and would watch the food network during his feeding times. For my Dad he didn't like to look at food or watch people eat,when he was on a feeding tube, it really bothered him.
It makes you realize how many of our rituals involve food when someone you love can't eat!
Posted by User1987 on Jul 28, 2020 9:55 pm
Posted by Cynthia Mac on Aug 1, 2020 8:30 am
How is your mom’s pain level over the last day or two? Has it subsided at all?
If it hasn’t, I encourage you to call the hospital to get some medical opinion and advice.
Posted by Nightowl on Aug 5, 2020 7:13 pm
Posted by ashcon on Aug 6, 2020 9:05 am
I remember being very happy to be done treatment, but was also surprised that I felt quite discombobulated (at least initially) when there was no longer the routine of trips to the hospital and visits with doctors!
Did you get to "ring the bell" at your cancer centre?
If not, feel free to ring this site's Virtual Bell and share your success story there!
Congratulations again, and I hope you fill your days with healing thoughts and activities now. ❤️😁
Posted by Dodbob on Aug 21, 2020 5:38 pm
Posted by Lianne_Moderato on Aug 21, 2020 6:15 pm
I can't guarantee you will find someone with the exact same diagnosis and treatment but i am going to tag a few members from this post to have them share their experience post radiation and what they found helpful. If you read further up in this discussion you may find some nuggets of information that could help you.
starshine1ca KerriKerri ashcon . Would you be able to share how your skin reacted to radiation and what if anything , you did to calm the type of side effects that Dodbob is experiencing? Any member is welcome to join in and share as well.
Posted by ashcon on Aug 22, 2020 11:47 am
How are you?
Like, you I used the saline soaks as a way to soothe the skin, both during and after radiation. Unlike you, I had breast cancer, but perhaps radiation is radiation, regardless of the type of cancer, yes?
The feeling of increased "hot and dry" is probably the result of the skin 'still cooking". I was told that would happen for about 2-3 weeks after radiation was done. So, in addition to the saline soaks, I used a water-based moisturizer like crazy on my skin. Like 4-5 times a day. It's been 2 years since I finished radiation and I still slater it on 2x/day. And I do everything I can to stay out of the sun!
Jojo4 , who went through radiation for soft tissue sarcoma, may have something to add to this conversation. 😁
Posted by orchid*lover* on Aug 22, 2020 1:16 pm
Posted by 2Awesomekids on Aug 27, 2020 8:17 am
Posted by Essjay on Aug 28, 2020 8:08 am
Its tough - our skin keeps cooking for a few weeks after treatment. I was very read and the skin was itchy and broken in a small place. I used a cortisone cream on the advice of the nurse, and a lathered the moisturizing cream on thick. It was sore, everything burned, clothes hurt, seatbelts hurt etc. Didn’t wear a bra for a couple of weeks. It did settle though, without significant issue.
if you have any worries, your oncologists nurse is the person to call, they will give you advice on what to do and get you seen by the oncologist if necessary.
Hope it feels more comfortable very soon. Essjay
Posted by supersu on Aug 28, 2020 10:16 am
YEAH! you are done radiation therapy - that is an accomplishment.
I thought I had gotten thru unscathed until.....red/hot/burning/BURNING/blisters/open wounds/ -- cripes---worst about 2 weeks after my last zap--took about 3 weeks to resolve. At one point I never thought I would have a normal looking breast again - it was SO RED, SO SORE I honestly couldn't believe it! I have shed at least twice completely.
Now, approx 6 weeks later, I am left with a 'tanned' breast and no lasting marks etc.
The radiation therapists gave me some gel called Intrasite Gel to apply to any open sores - this stuff was magic. I was told to be 'very careful' and if I felt like it was ever infected, to act on that. I did have a tele consult at one point, but never felt the need to go to hospital, (deep in the middle of COVID may have influenced me also.) ;)
Mine was very painful, but not VERY painful. If you think it might be infected get an RN to examine you - last thing you need is more trouble.
Hang in there girl......our bodies are amazing and somehow come back from this crazy!!!
Take good care, and call in the troops if you need to. They are the experts and may have something to help you along.
Posted by ChildofGod1 on Aug 28, 2020 10:52 am
Not really super reassuring to me. Is there not a way for them to say i am cancer free right now. Well i decided to say and believe i am now Cancer free and enjoy that feeling.
The last treatment was the worse for me as i turned bright red and have more pain and that i did on previous times. Am super itchy I did the once a week for 5 weeks with a higher
dose of radiation and used Cavilon spray 3x a week throughout the 5 weeks and have to continue for another 2 weeks. I believe it has helped me a lot in keeping
my skin. I was told that it could get worse 2-3 weeks after last treatment so i am praying that i will not break out into sores or anything like that, but only time will tell. oh and also
told to wear loose tops and no bra for the next 3 weeks or until i feel healed n better.
For all going or will be going through radiation...Luv Hugs and Blessings for quick healing and recovery.
Posted by Lacey_Moderator on Aug 28, 2020 11:16 am
Congrats on finishing radiation! I hope the redness subsides soon.
Finishing treatment can sometimes come with a mix of emotions. Often times thoughts like you mentioned creep in. Some people find it helpful to focus on what they know to be true today. As of now you have completed all of the necessary treatment to be cancer free. Going forward you will have your follow ups and will be aware of your body.
We have a great booklet you can download it or read it online here: Life After Cancer Treatment
Thanks for sharing your news with us! Please feel free to share your experiences it really helps others on the site.
Posted by triplepos on Sep 10, 2020 11:16 am
Posted by Faithnstrong on Oct 6, 2020 10:44 pm
I read about it's important to keep hydrated and put lotion on. I keep putting aquaphor and Glaxal cream on her. I am really worried about the side effect, as mom is 80 years old already. I am hoping to support her as much as possible, as I know it's not easy for her.
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