Posted by Lealea on Jul 14, 2020 10:21 am
Day two for found three today. So far little nausea if any...I think it hits more towards end of today. No allergic reaction either...so thinking Grastofil might be culprit which I start tomorrow ☹️
Being proactive in meds and trying to drink more liquids this time. Still feel like I got my brain...but that usually goes too soon. Hate how “I” disappeared for a while. Took longer last round too. Oh well! One more round after this! 😊 end in site!
Posted by edd on Jul 14, 2020 11:19 am
Posted by ashcon on Jul 15, 2020 5:18 pm
What a great explanation of what you went through. And great advice about the feeding tube.
My cousin's wife underwent surgery and radiation for cancer on her tongue. This was about 5 years ago. I don't think she was diligent in staying on top of what she needed to do to recover and to this day, can only take down fluids. And they're not the healthiest type of fluids (a fair amount of alcohol is part of her daily diet!) Needless to say, she's lost a lot of weight that I don;t think she'll ever recover.
So glad you are staying hydrated and keeping your weight consistent.
What will be your first meal when you can eat normally again?
Posted by edd on Jul 16, 2020 9:56 am
What will be my first meal when I recover? Funny you say that. You know, when you watch television there is at least one food commercial at every break throughout a show! I only know this for I am starving for real food and low and behold what's playing in front of my face every 8-10 min. Lol. That being said, I would really like to sink my teeth into a medium rare prime rib from the Keg. But, right now during Covid, they're closed and no one else is getting one either, so I feel better.
Sorry to hear about your cousin's wife. I wonder if there are other professionals that can help her? I just had an appointment with my radiation doctor last Tuesday and explained to him about my difficulty swallowing. He put me in touch with a Speech Therapist immediately who came to visit me during our appointment. She gave me a throat exercise to do temporarily until a full assessment can be done on me. She was quite assuring that I can overcome this. Yeah. I just have to wait and be patient. Can't say enough of the hospital staff at Princess Margaret, they are a God's send.
Posted by Lacey_adminCCS on Jul 16, 2020 10:30 am
This made me think of a friend's Dad who had Nasopharangeal cancer. He was eating by feeding tube and would watch the food network during his feeding times. For my Dad he didn't like to look at food or watch people eat,when he was on a feeding tube, it really bothered him.
It makes you realize how many of our rituals involve food when someone you love can't eat!
Posted by User1987 on Jul 28, 2020 9:55 pm
Posted by Cynthia Mac on Aug 1, 2020 8:30 am
How is your mom’s pain level over the last day or two? Has it subsided at all?
If it hasn’t, I encourage you to call the hospital to get some medical opinion and advice.
Posted by Nightowl on Aug 5, 2020 7:13 pm
Posted by ashcon on Aug 6, 2020 9:05 am
I remember being very happy to be done treatment, but was also surprised that I felt quite discombobulated (at least initially) when there was no longer the routine of trips to the hospital and visits with doctors!
Did you get to "ring the bell" at your cancer centre?
If not, feel free to ring this site's Virtual Bell and share your success story there!
Congratulations again, and I hope you fill your days with healing thoughts and activities now. ❤️😁
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