Hello all....any experience on related subject to share here is much appreciated.
I am week 4 post treatment for HPV base of tongue SCC....and now in recovery which I am finding as difficult as treatment. I have PEG tube still as my throat is still burning and too sore to swallow solid food. I can drink water but that is about it. I also still have so much phlegm I have to carry a cup to spit in and a napkin to wipe every where I go.
I am getting very impatient with the recovery process and not being able to eat by mouth. Anyone with similar issues/experience and thoughts or suggestions I would really appreciate. Maybe just slow down and give it more time?
I guess it took 7 weeks of radiation to kill the tumor so maybe it takes about the same for the healthy remaining tissue to heal?
Thank you for all of the information. I have a question that might seem trivial but were you able to get yourself to the hospital for treatment or did that become difficult with regards to fatigue. My husband is on day 4 of radiation and did have the chemo on day one.
Wendym that's not the least bit trivial I wouldn't suggest driving yourself to treatment. Just my opinion. My fiance had too much fatigue and was unable to drive. Some people do. BUT I would recommend it.
Yes, unfortunately the recovery is a slow process and where it seems like it is taking forever for improvements the months start to pass and soon enough you will look back and say, wow it's so much better now than what it was. Now appreciate I am saying that after 18 months.
The radiation does take a toll on your body. I still have big issues with my mouth being so dry. Hopefully that improves with some more time.
This is not a gratuitous plug for Coursera, nor is it to discount other sources of information or learning. When I was diagnosed with breast cancer, I took the "Intro to Breast Cancer" offered by Yale through Coursera, and I got a lot out of it.
I believe that knowledge is power and wanted to share!
I hope you (or your loved ones) are doing well in their journey with this disease.