Posted by Wendy Tea on Mar 1, 2020 1:06 pm
Posted by Runner Girl on Mar 1, 2020 4:53 pm
Chemo affects everyone differently. His team needs to be made aware of his situation. I know this has been a very trying time for you and you just can't seem to catch a break. His health and well being are on the line. He really should be straight with them, but if he can't or won't you may have to step in.
I had 6 rounds of chemo. I worked and ran during treatment. My chemo was on Tuesday. By Thursday I was feeling the effects. Friday usually wasn't a great day, but I went to work. Saturday could be iffy but by Sunday I was on the uptick again.
To stave off fatigue one needs to keep as active as possible during treatment. Is he eating and drinking fluids?
Posted by Essjay on Mar 2, 2020 7:26 am
Everyone responds differently to chemo as Runner Girl says. My experience was different to hers for example, I had a dose dense regime which is hard on the body. I needed help to leave the hospital after chemo and would sleep all day after. I slept 12 hours a night plus 2 hour nap, and definitely couldn’t have worked through this time. Days 4-10 were the worst for me. I did exercise daily as much as I could, and I walked my dog - exercise beats fatigue.
Hubby’s team need to know what is happening because there are side effects to consider. Is he coping with the treatment or does he need a change in his medications. They also need to consider if the disease is getting worse and affecting him more. And then there are other complications like depression as you have identified as a potential.
i would call the nurse who works with his oncologist and have a chat about your concerns, they will be well placed to judge next steps.
Best wishes Essjay
Posted by WestCoastSailor on Mar 2, 2020 10:29 am
The regime that your husband is on is very similar to one that my wife used in the treatment of her pancreatic cancer. It created a great deal of fatigue. So that doesn't really surprise me. BUT it is critical that he be honest with his doctors. Given the track record here, I suspect that you will have the doctor's ear when you talk to them.
One suggestion I would make. Document what you are seeing. Get a notebook and record exactly what you are seeing. It sounds like sleep and activity levels would be the keys. Dates and times. How long, and if you have a sense the quality of sleep? Activity, like walked around the block through to got up to pee. That way the doctors will have an objective criteria to look at not just a subjective "I think he is depressed."
Personally I use the five questions from the book "Picking up the Pieces" daily.
- How is my body doing?
- What emotions am I experiencing?
- When my mind wanders what do I think about?
- Who have I connected with socially today?
- What I have I done to give myself a sense of peace?
This is a hard road that you are on and I for one admire your courage in walking it. Your husband is so fortunate to have someone so caring with him. Make sure too though that you look after yourself in the midst of this.
Posted by Laika57 on Mar 2, 2020 11:16 am
maybe this would be a good time to talk to his oncology nurse without him overhearing me :)
I quit writing every single symptom down because it was making me paranoid. But I guess I'll get back to it.
WestCoastSailor good point with those questions. I'll see if I can find a way for hubby to answer them (myself too, I suppose). he already gets mad at me for checking his temperature these days. (Or asking if he knows what day/year it is) So it can't make things worse.
Posted by pamnbella on Jun 28, 2020 11:36 am
When they weighed me at my second chemo they found out that I had lost 28 lbs in three weeks and I have been eating but I cut back on a lot of fried stuff, junk food and sugar so I think that coupled with drinking tons more water and the fluid build up shrinking helped that loss. I only have one more chemo before my hysterectomy and seriously I can't wait to get it done and over with.
Posted by VioletFlower on Jun 30, 2020 10:34 pm
So he was given an antibiotic for possible throat infection and he took it right after chemo in the car. An hour later he has chills and feels unwell. Luckily I carry a thermometer in my purse and have one at each of our homes. So he took his temp and it was 38.1. He really wanted to go home and have nothing to do with any of us until next Monday but after an hour of being home it hit 38.4 and we went to emerge. They have admitted him fir a day or two to monitor and started IV antibiotics.
Some good news! His MRI brain scan showed no change in his 11 mm lesion on the skull. Woohoo! But, the Dr wants to be sure and speak with the radiologist to get his opinion in more detail. He did say it would be extremely rare as this cancer does not spread there.
Wishing everyone a restful night.
Posted by MCoaster on Jun 30, 2020 11:46 pm
Sorry to hear about the latest challenges you are again facing. I hope that the antibiotics work quickly.
Very good news about the scull MRI and also that they are playing it safe by checking with radiologist.
ps. How is the painting going and what about the video games?
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