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mucinous adenocarcinoma of appendix
celticjoys
6 Posts

Hello all, I seem to like doing things backward so I thought I would introduce myself now that I've posted under cancer type.

I am 67 yrs. old woman living Vernon, BC and I am waiting on my first oncology appointment. I had surgery on the 20th of June and from reading the pathology report that I received on July 21st I have Mucinous appendiceal adenocarcinoma Stage IV grade 2 which it turns out is not colorectal cancer but a whole other ballgame. So far I have learned that I should be trying to find a appendix CA specialist because of the rarity of the cancer and I haven't had much luck so far. We'll see what the oncologist in Vernon says on the 9th of August. Fingers crossed!

8 Replies
supersu
1295 Posts

@celticjoys
good morning and welcome to the community.
there is no forwards or backwards ways around here….just post where & when you are moved to do so. glad you found this space.

I will guess that you are like me, and ask for receipt of all of your diagnostic reports, (here in Alberta it is called MyChart), and now have a pathology report that you are deciphering on your own. please be wary that DrGoogle may or may NOT be valid and up to date info.

I would refer you to the CANADIAN Cancer Information Specialists. they are available online or by phone: 1-888-939-3333.
of course, just like the rest of us they are on their long weekend. I doubt very much anyone will be answering till Tuesday; but give them a jingle. they have the most up to date Canadian information to share.

how are you feeling after the surgery then? are you able to enjoy the summer that we get so little of in this country??? I went on a fishing trip, (in my other life a very long time ago), in Vernon, BC and thought it was such a beautiful place. hot; but beautiful--ha ha.

please keep us in the loop now that you are ‘one of us’.

cheers and again welcome
su

#welcomenewmembers #mucinousappendicealadenocarcinoma #newdiagnosis #rarecancer

S2020
1193 Posts
@celticjoys

Welcome to Cancer Connection. I am sorry for the reason that brings you here, but glad you found us.

The unknown and waiting for oncology appointments is difficult!

Until your appointment on August 9, you may find useful information at the Mount Sinai Hospital website. The hospital is in Ontario so not close to you, at all, but in their information about appendix cancer, there is a blue Resources tab with three links that may be helpful:

https://www.mountsinai.on.ca/care/cancer/cancers-we-treat/peritoneal-surface-malignancy-program/appendix-cancer

I hope you have friends and/or family to support you while you heal from the surgery in June and wait for the appointment in August. The Cancer Connection community is here for you, too.

celticjoys
6 Posts

@S2020 Thank you for this! I have been working my way through the ACPMP (Appendiceal Cancer and Pseudomyxoma Peritonei) foundation website and joined their FB group and have found the site to be very helpful in general terms. Mt. Sinai should help with learning what is available in Canada!

celticjoys
6 Posts

@supersu Hello Su,

My recovery so far has been slow but good. My gut still doesn't like fiber and I haven't been able to eat much more than 1000 calories a day and that's relying on Ensure/Boost. I haven't lost any more weight. I suspect my low calorie intake explains my low energy level. I am now walking a little further (meters not kms!) and picking up more of my chores. The summer has been very hot here after a very wet June so my garden has run amok and I just can't manage any amount of time in the heat even to sit outside. It was 40 degrees here yesterday. And the fire season appears to have kicked off once again. Please, no repeat of last year!

supersu
1295 Posts

@celticjoys

good morning!

40 degrees! whewf……that may have something to do with your lack of energy also? I know when it's hot here, I do nothing.

wow, you are a superstar. after all the surgery your body had endured, that you even contemplate, (let alone do), ‘chores’ is amazing.

this being the last day of the last long weekend of the summer I hope you can enjoy it, and have some food that is easy on your system and that tastes delicious too!

cheers from AB
su

#postsurgicalrecovery #slowandsteadywinstherace

Survivor18
18 Posts

@supersu
Good luck with your cancer journe.

Wishing you a complete and speedy

recovery. Sending hugs.

🙏🙏💕💕🙏🙏

Survivor18
18 Posts

@Survivor18
Journey

supersu
1295 Posts

@Survivor18
will just tag @celticjoys so that they see this.

this program is a bit tricky…will not automatically ‘tag’ the originator of the post. keeps us all on our toes around here! ha ha ha

cheers and happy holiday Monday to you, @Survivor18! 😘
su

#tagging #cancerconnectioncommunitysmiles

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