I've had cancer twice since I was very young at twelve, but recently had ablation surgery on my liver twice and it was very painful, doctors are telling me that I will need a transplant some time down the road, so now going through a series of tests to see if I'm a candidate, I'm still working and not feeling bad at all, but am worried about whats coming ahead.
welcome to this community. this is a place for sharing stories, experiences and wisdom.
of course you are worried. liver transplant is BIG stuff. but you have done such hard stuff already!
2X cancer!!! at such a young age…. wow!
how old are you now? glad to hear that you have been living a good life since your childhood cancers.
what sort of work-up testing & diagnostics do you need to become a transplant recipient?
I hope for you, that things go smoothly and that your appointments are not affected by the very sad upswing in COVID cases.
thanks again for your post
always so lovely to welcome a new community member.
Hello Dano @Av201. I want to offer you a warm welcome too! Wow, you have had your share of cancer over your life. So sorry it has visited you again recently. I searched but could not find anyone with a liver transplant experience on the forum so you may be the first. I did, however, find a possible peer support program for you. From the Canadian Liver Foundation here is the info:
Support and services provided by the Canadian Liver Foundation
National Help Line:
This support resource gives you and your loved one somewhere to turn for answers after diagnosis, helps you understand your disease, and provides you with the resources you need. Please call 1 (800) 563-5483 Monday to Friday from 9 AM to 5 PM EST.
The Peer Support Network:
This is a national network of people living with liver disease who have offered to share their experiences with others. It was developed by the Canadian Liver Foundation to link Canadians like you who have a family member who has liver disease, who care for someone who suffers from liver disease, or who have been diagnosed with a liver disease, to talk about your concerns with a peer in a similar situation.
If you would like to be connected with a Peer Supporter in your area, or would like to join the Peer Support Network, please fill out the Peer Support Network Sign-up Form.
Living with Liver Disease Program:
A forum for people living with liver disease and their families to connect in person, learn about their disease and discover how to cope. The program consists of sessions covering topics ranging from nutrition and exercise to treatments and transplantation. Guest speakers include liver specialists, social workers, nutritionists, psychotherapists, liver transplant nurses and kinesiologists. To find a program in your area, click here.
Holy Moley, @Av201, you are one brave young lady who has already experienced so much of life. I admire your tenacity and energy to face your diagnoses and treatments for so many years. A liver transplant in your future must weigh heavily upon you, so I hope you are deemed a recipient as it will change your life for the better. I send you strength.