I am a 61 year old male and otherwise in pretty good health (including no history of GERD prior to this year). Live in North Vancouver with my wife. Two young adult daughters away at university in Germany/Halifax. Busy winding down my business before I am incapacitated by the disease and/or treatment. Avid sailor (both coastal and offshore),
Value quality of life over quantity, and concerned about the impact of surgery.
Hoping to connect with people who have gone through this, so I have more information to base my decisions on (while recognizing that it is all probably a bit of a crapshoot).
like you,my fiance had trouble eating and drinking and ended up having to get a feeding tube to gain calories,strength and muscles mass for the surgery. He consulted with the oncology dietician who was able to work out a plan with him...foods rich in calories, easy to swallow and foods that made him gain weight. In his case once he got the tube....they found various formulas to put through the tube with the correct amount of calories. You can even put meds through the tube. The most important thing is you must have strength in order to endure this type of surgery... so keeping your weight and strength up are key.
most people I hear about seem to do quite well after the surgery and i will connect you with 2 people I know off hand...and look up a few others for you to chat with. My fiance also did well with the surgery and was able to eat agsin. You can chat with @caregiverCal and @CD@traveller
I'm having trouble tagging on my phone so I will you transfer to my computer and try again from there.
My heart goes out to you and your family.
You sound very organized and proactive.
I value quality over quantity as well. This is something to discuss with your doctors.
Let them know you concerns at the start. They are there to support you.
I do not have this type of cancer, so I am hoping other are able to reach out to you.
The beginning I think is always the hardest.
Sending you best wishes as you begin treatment.
@KismetII Good morning I’m sure you are feeling all kinds of things. Esophageal cancer was nothing I thought I’d be facing. I was diagnosed with stage 4. Had a stent put in this meant I could eat! I’ve had three rounds of chemo and today go for my 4th. I had two spots on my liver but with chemo one has totally shrunk the other is smaller now and my main mass is maintaining. this will buy me more time and to be honest I’m feeling quite good! There are days I struggle but this community sends me positivity . Keep reaching out take all the help offered. Write to me anytime we are in this together!!!
I see a couple of people have connected with you already.
Some information on esophageal cancer can be found at this link:
It sounds like you are getting all your ducks in a row so you can tackle your treatment head on. I hope your love of sailing can be healing for you. Although not a sailor, being in, on, or around the water has an enormous therapeutic effect on me.
Keep us updated as you feel comfortable.
My first cancer diagnosis my son almost flunked out of university he was so stressed.
When I was diagnosed with metastatic breast cancer my daughter flew home from Australia for a few weeks. But that was before we were in a pandemic.
You will have to msg the kids more frequently to reassure them.
some of my recent experiences with you.
I was diagnosed with adenocarcinoma on my esophagus in late November. Like you
I was surprised at how quickly the "system" moved once the diagnosis was made.
We live in Nelson, BC so my treatment was provided in Kelowna. After a CT scan at
our local hospital I had a PET scan in Kelowna. The thoracic surgeons proposed
5 weeks of chemo and radiation followed by surgery.
I started the chemo and radiation on January 4th and had surgery on March 15th.
I was discharged on March 23rd. Tube feeding started to be reduced on April 9th
and was discontinued completely on April 16th.
My current challenges include fatigue, lack of stamina and gaining back weight.
I'm making progress on all of these but it's going to take a bit of time.
If you would like more details regarding any or all of the aspects of the experience
I've had so far, please contact me via the Cancer Society mail system.