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Just diagnosed

Just diagnosed

Posted by Scottish Lass on Oct 28, 2020 8:33 pm

Hi my name is Ann

I am 58 years old and just been told I have ovarian cancer. It all started in May when I thought I had a bladder problem, got an appointment for specialist but could
not get appointment till end of oct 2020
I persevered but on August 7 had to go to emergency with pain and after CT scan was told I had a mass of 16.5 cm that was pushing on my bladder . I then got an appointment to see the gynaecologist oncologist on August 27th and surgery scheduled for end of Oct but 2nd emergency visit mass getting bigger surgery brought forward and everything removed full hysterectomy and some other debulking completed . Dr told
my husband and I it was ovarian cancer stage 2
we both felt the shock wave of the “Cancer” word

Kind of feel like I am in a daze, so
many question and why’s, someday I can’t think straight. At home recovering from surgery!
Appointment tomorrow to find out about what
happens now.

I was on Cancer.Ca site and seen this connection and thought it would give me an outlet to talk!!


Re: Just diagnosed

Posted by MCoaster on Oct 28, 2020 9:49 pm

Scottish Lass‍    

Welcome again Ann.

I am so glad that you have posted here as your post will reach more members.   Elsie13‍  is very knowledgeable I am sure will have much to share with you.   ( Elsie 13, I think that you also have a good handle on what literature etc is available for Ann).    There are quite a few other members who will I am sure jump in with support.   If you wish to contact another member  enter @ and then, without a space, start typing in their name and when their name appears in the blue box hit that and their name, again in blue, will appear in your post as mine has for Elsie13.   That person will then receive a notification that you have reached out to them.

There is also a forum for caregivers which your husband might wish to browse at some time.  

Thinking of of you tomorrow.

We are here when you need us.

M.Coaster   Breast cancer diagnosed Oct. 2019 

Re: Just diagnosed

Posted by Elsie13 on Oct 28, 2020 10:50 pm

Hi again, Scottish Lass‍ .   Have you had a chance to look around the ovarian discussion?  https://cancerconnection.ca/discussions/viewcategory/72

Glad to see you have met MCoaster‍ .  Perhaps KathiR‍  and JustJan‍  will join in this conversation. 

I hope you'll report back to us in a day or two and let us know what's happening next!
In 2016: diagnosed with stage 2 ovarian cancer. Treatment: hysterectomy, chemo, radiation. Afterwards: No Evidence of Disease!

Re: Just diagnosed

Posted by JustJan on Oct 29, 2020 8:58 am

Scottish Lass‍ 

I am sorry to hear of your diagnosis but glad you found this site. I hope you find it welcoming and supportive. 

A little history on me. I was diagnosed with Stage 1 triple negative breast cancer in January 2019 at 59. I had surgery and radiation. Just a few months later I was also diagnosed with stage 1 ovarian cancer which was caught on a baseline CT scan. I too had a total hysterectomy and recovered well from surgery.  It was followed by 6 rounds of chemotherapy (1 round every 3 weeks). Although I dreaded chemo, it wasn’t as bad as I imagined it would be. 

One of the things you may want to discuss with your oncologist is doing genetic testing. There are some good maintenance medications (PARP Inhibitors) if you test positive for certain gene mutations. 

You may also want to see if your cancer centre offers counselling and take advantage of it. At my centre the counselling is available to the patient and their family (or significant others). 

Also know that although the treatment may be somewhat standard, each patient responds and reacts differently. Be prepared for some unexpected twists and turns along the way. They may not happen but being somewhat prepared for them will

I also encourage you to join the Ovarian Cancer forum. There is lots of great support and good information there. 

Keep us posted about your appointment and please feel free to message me if you would like to chat.

Strength doesn't come from what you can do, it comes from overcoming the things you once thought you couldn't. - Rikki Rogers

Re: Just diagnosed

Posted by Wendy Tea on Oct 29, 2020 10:22 am

Scottish Lass‍  Welcome. I am so pleased you were proactive and kept pushing for the help you needed. Takevthis time to heal now and look after yourself. When is your next appointment?  It helped me to keep a record of dates, tests, and procedures as it all was such a whirlwind.  Hugs from a half Scottish lass!

Re: Just diagnosed

Posted by KathiR on Oct 29, 2020 10:59 am

Scottish Lass‍   I am so sorry to hear of your diagnosis but glad you have connected with these women.  The Cancerconnection site is a good source of peer support.  However, I'd also like to suggest, if you haven't already, that you explore the Ovarian Cancer Canada website. 

Ovarian Cancer Canada is  focused strictly on creating awareness, fostering advocacy, and supporting women with our disease.  The website is an amazing source of information and resources. Particularly, I recommend ordering their booklet By Your Side that is a very helpful guide for women in first-line treatment and the beginning of their journey. There are also some awesome videos on topics that should be interest to you. The OCC website can be found at http://ovariancanada.org

And finally, OCC has their own peer support group OVdialogue that is specific to women with all types of ovarian cancer. Our membership is Canada-wide and comprises about 600 currently.  You can join OVdialogue through the OCC website or at http://OVdialogue.ovariancanada.org

Always available here but hoping to see you at OVdialogue too.  BTW, I am a survivor (high grade serous Stage 3C)...surprisingly diagnosed in early 2017.  Surgery, chemo and over a year clear but experienced a recurrence caught in late 2018 and have been on a clinical trial ever since that has kept my recurrence at bay.  I know how scary this diagnosis is but I can assure you our community has many many survivors, some over 30 years.  And in the more recent years there have been so many new developments in treatment that are enabling us to live longer, happier and more productive lives than ever before.

Elsie13‍ Thanks for flagging me to Scottish Lass's post

Re: Just diagnosed

Posted by Cynthia Mac on Oct 30, 2020 7:53 am

Scottish Lass‍ , I’m chiming in to welcome you to the site. You’ve got good support from others already, and I’ve no experience with your type of cancer, so I’ve little to add.  However, you’ll note that I’m a “Mac” and I just wanted to chime in to offer “heritage based” support.
“When the root is deep, there is no reason to fear the wind.” - Japanese saying