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New member

New member

Posted by Doris on Sep 9, 2020 12:58 pm

Still learning to navigate this website.  I guess I am supposed to say hello & introduce myself.   I am 63, I had breast cancer in 2009, stage 3C, I had my right breast &17 lymph nodes removed, then chemo, then radiation.  I had died flap reconstruction done in 2010. Now 11 years out I have been diagnosed with breast cancer which has metastasized to my lungs & a small 8 mm on my T4.  I have started on Clodronate for my bones & on the 15th I start IBRANCE  & Fulvestrant.  I have a PleurX  to drain my pleural effusion twice a week.  I have gone from being a very active person to gasping for air when I do a flight of stairs.  But I am taking it day by day, hoping my meds work to give me as many years as I can get.  I guess that’s what we all hope for.  Bye for now.

Re: New member

Posted by WestCoastSailor on Sep 12, 2020 8:56 pm

Doris‍ 

This place can get messy and complicated to understand but that is part of the joy. Kinda like life. Welcome here.

Some thoughts on place to explore...

There is an Advanced Cancer group that dives into some of the challenges of living with advanced disease - https://cancerconnection.ca/groups/home/75

The Treatments and side effects forum has some information on the specific treatments - the joy here is that it is a patient perspective and the little things that have helped or worked. Sometimes things are uncovered that are worth exploring with your oncologist. https://cancerconnection.ca/discussions/viewcategory/48

Many of us find that the mental part of this journey isn't talked about much my our oncologists. The emotional roller coaster section addresses that. https://cancerconnection.ca/discussions/viewcategory/79

Have fun and again welcome.

Angus
My story: http://journey.anguspratt.ca

Re: New member

Posted by Doris on Sep 14, 2020 12:13 am

WestCoastSailor‍ 
Thank you, are you having to deal with the smoke?  We can’t even go outside the smoke is so thick!  I hope the smoke will go away soon & they get those fires under control!

Re: New member

Posted by Faye on Sep 15, 2020 10:44 am

Hi Doris‍ 
Coming to terms with new diagnosis when we think we have beat the original is hard to accept. I think we all carry at the back of our minds the question of if or when we may have to deal with metastasis.
I am so sorry you are having to deal with your new diagnosis during this time of Covid when you may not have the same kind of support from your family or friends. It definitely is a different and trying time but I think you will find the cancer care is still excellent and although it may have different restrictions you will be have excellent care.
I wish you successful treatment and don’t hesitate to post here if you are needing some support 

Faye 

Re: New member

Posted by Lacey_Moderator on Sep 15, 2020 11:09 am

Welcome Doris‍ 

You are off to a great start on the site- thanks for posting. You have already met some great folks above.

When replying to a member you can tag them so they are notified by typing the @ symbol and their username. If I can help you get acquainted with the site at all please let me know.

Thanks,
Lacey