Posted by MCoaster on Jul 17, 2020 6:17 pm
Best wishes for a lovely summer.
Posted by kioma on Jul 17, 2020 7:21 pm
Posted by MCoaster on Jul 17, 2020 8:09 pm
Posted by Doug58 on Jul 18, 2020 12:57 am
The referral was to a Dental instructor who explained that he had cancer twice. He took a swab of my mouth with what looked like a q-tip. Took an xray and referred my to a specialist to take a biopsy. After seeing the surgeon he informed me it did not look good and booked a day surgery for me. Just before Christmas he gave me a general anasthetic and did the biopsy. He saw me January of this year in bluntly told me I had cancer. I asked for a copy of biopsy report and received it from the receptionist. It said I had Squamous cell carcinoma on floor of mouth. If only it was so simple?
Posted by ashcon on Jul 18, 2020 3:02 pm
What an ordeal you went through! And then not to hear that it was cancer until a week after your surgery!
When are your next tests and next surgery?
Tell us how you are doing now, and what you find to be helpful to you at this time.
Let me introduce you to others who have experience with neuro endocrine tumours (NETs) : Traveler Colin11 as well as Lianne_adminCCS (who's sister dealt with neurondicrine tumour (NET)).
Posted by kioma on Jul 18, 2020 4:13 pm
Posted by Lianne_Moderator on Jul 20, 2020 12:06 pm
I myself had a breast cancer diagnosis, but as ashcon mentioned, my sister was diagnosed almost 4 years ago with a neuroendocrine cancer in her stomach. Hers was found with a scope. She was initially told it was stomach cancer, then told she had no cancer, then eventually they settled on the neuroendocrine cancer. She had a very large surgery to remove the tumour and part of her stomach. She had no further treatment..
How are you managing since your surgery? You mentioned you may need further surgery. Do you know what that implies and when that might be?
Posted by Hazewind on Jul 21, 2020 10:36 am
I personally have volunteered in dog rescue for 30 years and came across numerous examples of pets with different kinds of lumps and bumps on their bodies to recognize possible cancerous lumps so as i had mentioned, I already suspected. I was glad that at the cancer screening clinic they had done Mammogram, then Ultrasound and immediately after viewing those they had asked me to have three biopsies. I agreed right away without hesitation. Get it done to positively know what im dealing with. Through this all, i must say right off the start when finding my lump, the "waiting" was the worst. Waiting 7-10 days for my initial doctors appt, then another 7-10 for my cancer screening appointment, then waiting for the doctors results for them to book surgeon etc...Though at the screening, they had a doctor there to tell me confirmation of news. Biopsies was only to see what kind and part of biopsy would be sent for genetic exam. I just wanted it out of me before it has a chance to spread. They said it was caught early. Mine was a very aggressive and fast growing. I found in April and by July had surgery for lumpectomy. The surgeon warned me he might have to to mastectomy. I was fortunate.
Posted by Clarke on Jul 22, 2020 12:37 pm
Subsequent tests confirmed that it was cancerous and growing quickly. Now I knew it was cancer and serious!
After appointments with two oncologists at our local hospital, Southlake in Newmarket, I was encouraged to see Dr Kulkarni at Princess Margaret. More detailed information led me to choose total bladder removal.
I am pleased to say that I was never panicked or rushed or left waiting, but given facts as they came up. The surgery was done 4 months after the initial finding.
A success story!
Posted by Nicky01 on Aug 30, 2020 10:42 am
Posted by Dragonelle on Sep 9, 2020 12:41 pm
Posted by Lacey_Moderator on Sep 9, 2020 12:51 pm
Dragonelle - I imagine that was the last thing you expected when you went to emergency. I'm glad you got things checked out and that you had surgery quickly. Wishing you well with follow ups. Have you found our Liver cancer forums here:https://cancerconnection.ca/discussions/viewcategory/12220
Posted by Dragonelle on Sep 9, 2020 1:00 pm
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