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How were you told you have cancer?

Re: How were you told you have cancer?

Posted by MCoaster on Jul 17, 2020 6:17 pm

kioma‍     That is good news indeed.  You must be very relieved knowing that you do not  have to worry about cancer any more.  You were very wise to check your lump out and it is so important to continue checking your breasts regularly.

Best wishes for a lovely summer.


Re: How were you told you have cancer?

Posted by kioma on Jul 17, 2020 7:21 pm

Actually, it was my second ever mammogram I had that showed it.  They had queries on my first one but as they didn't have anything to refer back to, they left things 'as is'.   This second mammogram had shown even more calcifications than the 1st annual one.  As an aunt had a fast acting non palpable (can't feel it) cancer and mastectomy, I was very fortunate to have had the surgery right away...

Re: How were you told you have cancer?

Posted by MCoaster on Jul 17, 2020 8:09 pm

kioma‍   I can see why you are concerned because of your family history.  Have you been told when you should have your next mammo?  Good to make sure that they are regular and it is also good that they now have one to refer back to.


Re: How were you told you have cancer?

Posted by Doug58 on Jul 18, 2020 12:57 am

For myself it all started with peanuts.  I would eat them and once in awhile I would have a small piece fall into a hole behind my front teeth and I could not get it out with water or my tongue. After couple of months it would start to hurt from time to time. I could not decide if I should see a doctor or a dentist. I decided on the dentist that I went to the University of Alberta within the 1980's..In November he looked into my mouth and left the room.  Came back and handed me a piece of paper for a referral and took an xray to send with me. Explained that he could see the bottom of my tooth through the hole and it needed to be further investigated.

The referral was to a Dental instructor who explained that he had cancer twice. He took a swab of my mouth with what looked like a q-tip. Took an xray  and referred my to a specialist to take a biopsy.  After seeing the surgeon he informed me it did not look good and booked a day surgery for me.  Just before Christmas he gave me a general anasthetic  and did the biopsy. He saw me January of this year in bluntly told me I had cancer. I asked for a copy of biopsy report and received it from the receptionist. It said I had Squamous cell carcinoma on floor of mouth. If only it was so simple?

Re: How were you told you have cancer?

Posted by ashcon on Jul 18, 2020 3:02 pm

What an ordeal you went through! And then not to hear that it was cancer until a week after your surgery! 

When are your next tests and next surgery? 
Tell us how you are doing now, and what you find to be helpful to you at this time. 

Let me introduce you to others who have experience with neuro endocrine tumours (NETs) : TravelerColin11‍ as well as  Lianne_adminCCS‍ (who's sister dealt with neurondicrine tumour (NET)). 
---- "Nothing ever becomes real till it is experienced." ----

Re: How were you told you have cancer?

Posted by kioma on Jul 18, 2020 4:13 pm

The surgeon said to go get a mammo every two years, but think I'll continue going annually...  I just have to wait a couple months for the covid situation to get sorted out before the cancer clinic I go to can get the okay from the govt to reopen and book appts.  It would be nice to keep going in April as it's not too hot at this time of year (I won't stink from getting there in this awful heat and feel uncomfortable while getting the 'Squish'), and it won't be cold and my not wanting to freeze my tail off while getting it done either...

Re: How were you told you have cancer?

Posted by Lianne_Moderator on Jul 20, 2020 12:06 pm

Hello Wallas‍ and welcome to the site. Thank you for sharing with us. It sounds like it has been quite a challenging time.
I myself had a breast cancer diagnosis, but as ashcon‍  mentioned, my sister was diagnosed almost 4 years ago with a neuroendocrine cancer in her stomach. Hers was found with a scope. She was initially told it was stomach cancer, then told she had no cancer, then eventually they settled on the neuroendocrine cancer. She had a very large surgery to remove the tumour and part of her stomach. She had no further treatment..

How are you managing since your surgery? You mentioned you may need further surgery. Do you know what that implies and when that might be?

Take care

Re: How were you told you have cancer?

Posted by Hazewind on Jul 21, 2020 10:36 am

I already suspected and prepared myself for the worst news. I found my hard lump while showering one morning. Called the Doctor to make an appointment. During my appointment she mentioned she was referring me to the breast cancer clinic. She said they are the experts and will do the necessary screening. She also mentioned due to it being a hard lump and not soft and squishy, she was concerned about what it might be. 
I personally have volunteered in dog rescue for 30 years and came across numerous examples of pets with different kinds of lumps and bumps on their bodies to recognize possible cancerous lumps so as i had mentioned, I already suspected.  I was glad that at the cancer screening clinic they had done Mammogram, then Ultrasound and immediately after viewing those they had asked me to have three biopsies. I agreed right away without hesitation. Get it done to positively know what im dealing with. Through this all, i must say right off the start when finding my lump, the "waiting" was the worst. Waiting 7-10 days for my initial doctors appt, then another 7-10 for my cancer screening appointment, then waiting for the doctors results for them to book surgeon etc...Though at the screening, they had a doctor there to tell me confirmation of news. Biopsies was only to see what kind and part of biopsy would be sent for genetic exam. I just wanted it out of me before it has a chance to spread. They said it was caught early. Mine was a very aggressive and fast growing. I found in April and by July had surgery for lumpectomy. The surgeon warned me he might have to to mastectomy. I was fortunate. 

Re: How were you told you have cancer?

Posted by ShariM on Jul 22, 2020 10:15 am

I was told as soon as he was finished my Colonscopy. He seemed a bit rattled when he did. Found out later my Cancer looked very different than most as it is very rare. 

Re: How were you told you have cancer?

Posted by Clarke on Jul 22, 2020 12:37 pm

Very gently!   Blood in urine led to cystoscopy.   I had a large tumour in my bladder, requiring biopsy and more tests.  No mention of “the c word”.
Subsequent tests confirmed that it was cancerous and growing quickly.   Now I knew it was cancer and serious!
After appointments with two oncologists at our local hospital, Southlake in Newmarket, I was encouraged to see Dr Kulkarni at Princess Margaret.  More detailed information led me to choose total bladder removal.

I am pleased to say that I was never panicked or rushed or left waiting, but given facts as they came up.  The surgery was done 4 months after the initial finding.

A success story!
Clarke Edward

Re: How were you told you have cancer?

Posted by Nicky01 on Aug 30, 2020 10:42 am

Hi, Because of the Covid-19 I was told I had lung cancer by my pneumologist in a phone call and after over a month I still can’t recall everything she said because after the word lung cancer my brain stop listening to anything else she had to say! I had a pretty good idea that it would be cancer all along but to actually have a final diagnosis is still very shocking to say the least!
Resilience! Today is a new day...I will make the most of it!! Nicky

Re: How were you told you have cancer?

Posted by Dragonelle on Sep 9, 2020 12:41 pm

On April 6th 2020, my husband took me to emergency at TOH General Campus because I had abdominal pain. After a CT scan I was informed that I had liver cancer. I stayed overnight and met with specialists the next day. Over the next few weeks I went for tests, an MRI, a biopsy and a meeting with one of the team doctors. I chose to have surgery which took place on May 29th. I was very fortunate that because of COVID, resources were available very quickly: also the Ottawa General has one of the top if not the top team in the country for my surgery. All the cancer was removed but at my 3 month MRI a small spot was found so I now wait for the 6 month follow up to track the change. The recovery has been harder than expected (though I set my expectations quite high!) After surgery, I went through many tests to qualify for a trial and I'm disappointed that I couldn't contribute but they booted my butt out when the spot was found...I want to wish everyone participating in the study the best.

Re: How were you told you have cancer?

Posted by Lacey_Moderator on Sep 9, 2020 12:51 pm

Nicky01‍ - Being told over the phone can't be easy. This has definitely become a more common experience with the current times. Feeling shock makes complete sense. Has the shock warn off at all?

Dragonelle‍ - I imagine that was the last thing you expected when you went to emergency. I'm glad you got things checked out and that you had surgery quickly. Wishing you well with follow ups. Have you found our Liver cancer forums here:https://cancerconnection.ca/discussions/viewcategory/12220


Re: How were you told you have cancer?

Posted by Dragonelle on Sep 9, 2020 1:00 pm

I thought it was kidney stones so the cancer diagnosis was stunning. I was alone because no one is allowed in the hospital. I didn't want to tell my husband over the phone so I had a lot of time to think about it. In some ways, this was good because I could sort myself out before dealing with others.

Re: How were you told you have cancer?

Posted by Lacey_Moderator on Sep 14, 2020 9:58 am

Dragonelle‍ - Great to focus on the positive of the situation- you could sort yourself out before talking to him. This makes a lot of sense and shows how much you care about your husband. 

:) Lacey