Posted by Elsie13 on May 16, 2020 11:11 pm
Then after a couple of weeks I was back at the family doctor, who said there would be more tests, to see if it was cancer. In any case I would need surgery to remove large ovarian cysts. So over the next couple of months I had a CT, another ultrasound and then a second CT. They said only with surgery would they know if it was cancer.
I had the surgery in mid November. They told me once I was opened up, a sample from the cyst(s) would be tested and if it was cancer, I would have a complete hysterectomy done. So I woke up in recovery and they told me I'd had the hysterectomy, due to ovarian cancer.
Posted by Kuching on May 17, 2020 7:59 am
Posted by Iggy331 on May 17, 2020 10:35 am
Posted by Nesseva on May 17, 2020 1:14 pm
Posted by Nightowl on May 17, 2020 2:18 pm
I looked up on the net what a BI-RADS score was, and found out a score of 5 was 95%+ likely to be cancer. Although I did not officially receive the news from my family doctor until two weeks later, after a biopsy, I knew then.
Posted by supersu on May 17, 2020 4:56 pm
my story: i basically dx'd my own
i am a medical radiation technologist, (tho i don't do mammagrams)
i knew by the look on my colleagues face that it was 'something'
within an hour of my routine mammo, i knew i had breast cancer - biopsy just a formality
navigating the COVID system & being a new cancer patient - NOT fun
thank you for everyone who contributes to these posts - makes this crazy process less isolating for me
Posted by WestCoastSailor on May 17, 2020 9:24 pm
I finally got some time in my schedule to get a lump in my breast looked at. GP referred me to the Jim Pattison Breast Clinic and pointed out that I had a second lump in my other breast that I had been unaware of. I pretty much knew as my mom had died of breast cancer and my brother is also a twelve year survivor. There were some delays initially. When I went in and asked if the ultrasound could be done at the same time as the mammogram. I was told that they would look into it after I had the mammogram done. The tech came around the corner a few minutes after the mammogram and asked if I could wait an hour they would fit me in. The next morning I got another call booking me for a biopsy a few days later.
The actual telling was a bit of a gong show. I had an intern come in, shuffling a handful of papers and then tell me I was going to be scheduled for a biopsy. When I said "No" her head came snapping around prepared to convince me to get it done. I smiled and told her that I was actually there to get results. She hustled out of the room and two minutes later I met the lady who would become my fast friend, my breast surgeon. She had the pathology report in hand with a nurse navigator in tow. After gently breaking the news that indeed it was breast cancer the whirlwind started. Bone scan and CT before I left that day and preliminary discussions about surgery. I was alone (something I would never recommend in hindsight.) Getting down to the parking lot, I called my wife and then my brother. Still I was pretty sure this was survivable and while it might disrupt my schedule for a few weeks probably not a big deal.
The next day I returned to get the results of the CT scan with a close friend. The surgeon pulled me out into the hallway to show me the scan showing a massive lump in my lung. Another round of biopsy to determine if it was metastatic or another cancer. In my polyanna haze I was thinking scarring from a round of tuberculosis while I was working in Panama or maybe a fungal infection... Denial. I got a followup call saying the were having trouble getting a specialist lined up for the fine wire biopsy so would I accept an ultrasound guided endoscopy? I said yes not really understanding how invasive that would be. When I came to and saw cups of bloody samples I was kind of amazed at the quantity and tried to make a joke wondering if there was anything left. I could hardly speak and everyone looked pretty grim.
A call a few days later from the nurse navigator suggesting I might want to contact the Cancer Clinic directly and see if my oncology appointment could be moved up was a clue. I had already made arrangements for my caregiver/stepmother to come down so I declined. So I waited an extra few days knowing that the news would not be good. The oncologist was direct. You have breast cancer (something I already knew) but you also have another primary cancer. Lung cancer. Not a smoker. Fit and active, how could this be? Through the fog I heard, "This is bad. 10% of people diagnosed with this type of cancer at this stage make it five years. And only 50% make it to 17 months." That was the one that hit me hard. And the telling while direct was gentle. I met with support staff, social workers, nurses and a clinical study specialist before I left that day.
I can't imagine getting that news over a phone call or a video connection. There is a lung cancer specialist from San Diego who talks about "learning web side manner as being as important as bedside manner." Be gentle with the folks making these calls. They are learning as quickly as they can but this is a new world for them too.
Thanks for letting me tell my story.
Posted by princessmaura on May 18, 2020 7:53 am
Posted by Drscrs on May 18, 2020 9:33 pm
My second bout of cancer - lung, was found by the regular 3 month CT Scans and blood work that are done. I had found out in March 2017, that the CT Scan I had done in February had shown up that there were spots in both my left and right lungs. Surgery was done September 2017, and I have been cancer free since.
Take care and be safe
Posted by TorUkie on May 18, 2020 11:10 pm
1) Step one: after the surgery for what my surgeon believed was a benight fibroid, the pathology report was very very late. When I came in, she said, I was wrong, it is not a fibroid it is a PEComa, a very rare tumor that we all know very little about and it took a long time for the pathologist to check and verify it. The pathology showed PEComa with 'uncertain malignant potential'. I took it as "when it is uncertain, it is not cancer"
2) Step two: I got referred to the PMH Sarcoma clinic. After a long into converation I blurted out; "Can I ask a stupid question? Is it cancer?". The doctor looked at me and said: "Yes it is, why otherwise you would be in a sarcoma clinic. It is a sarcoma."
While facts of my case haven't changed - and the potential of recurrence is unknown - hearing 'yes, it is cancer' changed my life.
Currently on a quarterly follow up regime.
Posted by Ttjia on May 21, 2020 3:52 am
Posted by HermMar on May 22, 2020 9:09 pm
Heart was ok but was still bloated and my tummy looked like 6 months pregnant. Had an ultrasound and X-ray and was told by ER doc that there was nothing in my stomach. I INSISTED to do more testing as I was uncomfortable with the pain so he recommended a CT. Two hours later, doc told me there was a tumor in my large intestine and that it looked like cancer.
A surgeon came in and said I will not leave the hospital until surgery was done.
Had a colon resection and diagnosed with stage 2 colon cancer. Went on modified Folfox treatment for six months - 12 cycles but I refused the last one as I had enough.
One year has passed after my last chemo and feel great.
I learned to stay positive and have faith in God.
Posted by TT53 on May 23, 2020 11:31 am
My GP called me on the weekend when she got my results to make sure I was OK and if there was any questions I had. I had the most caring team.
Posted by dom12345 on May 28, 2020 4:23 am
Posted by ShinningLight on May 29, 2020 8:41 am
I'm shinning light and here's how I was told I had cancer,
It all started on A Thursday, I went into work and as usual I was experiencing alot of anxiety that day but It still didn't raise any flags that they're might have been something wrong with me, I truly thought I was just over worked, stressed and just needed some holiday time. Day ends and by that time I was feeling ok and made my way home to my good friend to have a few drinks and unwind a bit and we smoked a joint and right after that I had a cigarette and that's when it happened I had a seizure and luckily my good friend was there and she stopped me from falling off my bed and prevented me from banging my head all while calling 911,that's when things go blurry and just remember waking up at The Civic and that's when my doc came to see me and we had a chat, Doc was really cool about it and really reassured me that they where gonna help me all the way through and that my chances of going blind or loosing mobility and so many other things as well like possibly losing some consciousness , lose of abilities to do simple tasks like feeding myself was 5% or less so I went through the surgery 🙏 and Doc is a miracle Worker and I am forever grateful I have Doctor Moulton as my Neuro Specialist and Surgeon .
Yah It was very scary but with good friends , keeping positive and being around my nurses really helped me want to beat this so I guess you could say I just handled the cards I was dealt and rolling with it, Cancer lives with me and it's been evicted , I wasn't living with Cancer that is not our case, it lives with us and it's up to us to lick it in the Butt and Stand tall and Strong no matter how hard it may get, I believe in you as I do in I, remember this, I know how you feel, it's not an easy thing to hear , aceptence is key, start a journal, meditate, find your balance in life for this is our one and only life on this marvellous planet and you, we can control our own fate of we have been given the STRENGHT to fight , so don't give up , you are loved and matter .
I hope this story can help you all in staying positive and That you all Have a great and beautiful day, please protect yourself from the ⛅ Rays if you do sit outside today and drink lots of water. Please stay COOl 😎💪
Always here for you all just message me if you just want to talk and need a good ear that will listen .
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