Posted by Essjay on May 13, 2020 7:58 am
When I saw my family doctor, she gave me the report from the biopsy and told me straight out ‘you’ve had a mammogram, ultrasound and a biopsy, and now we have the results which show you have breast cancer’. I’d come from work (ironically, wed just presented some research to the minister on cancer in our province) and I went straight back to work.
Posted by Marsh on May 13, 2020 9:29 am
Posted by Cobble223 on May 13, 2020 9:43 am
I went and got one of them and they printed out the report with it, which said that I had a large lesion in my spleen (where I had had a dull pain for months) and that lymphoma "could not be ruled out."
Then I went for a CT scan and within 24h I received a call from my family doctor's office saying that I needed to come in urgently for something very important. So I knew for sure then even though I hadn't yet heard the words in a solid way. The disease was pretty widespread and followed a "pattern of findings that most likely represented lymphoma"... and then I of course had a biopsy that confirmed that.
I got the official news (preliminary results that it was definitely some sort of lymphoma) over the phone one business day after my biopsy, which still blows me away. So quick.
Posted by Buffythevampire on May 13, 2020 10:19 am
But then he sent me for an MRI because he said he wanted another image rather then cutting me open again. Had the follow-up appointment with the Surgeon about the MRI results and was told that I had another lump that was bigger then the first lump that he had removed. Lumpectomy was 1 cm lump second lump was 2.5 cm. Surgeon told me that anything over 2 cm's meant a mastectomy and he referred me to a Plastic Surgeon. During the follow-up appointment for the mastectomy/expander placement surgery I was told that I had IDC. My mom had been with me for this appointment but (I am not sure why) she wasn't in the room with me when I was told the results she was in the waiting room.
I don't understand why the bigger lump wasn't seen first. Must have been hiding, I guess.
Posted by Carjac87 on May 13, 2020 11:33 am
I was home alone, & didn't tell anyone until I picked up my husband from work 8 hours later.
Posted by law on May 13, 2020 3:06 pm
That was that....it didn't't freak me out, as I knew it was not good from the start a year ago.... It was a weird sort of soreness and was getting worse.
My friends were freaked out and surprised at me for not making a big deal out of the diagnosis. THEY were freaked out, not I.
After the cancer was confirmed, I knew I would be cured with radiation, because the ENT told me so. I was still not freaked out. I was very cavalier.
Following radiation, during the recovery period, I freaked out from the pain, the inability to eat or swallow, and the horrid constipation reaction to opiates. My fatigue, coupled with depression was no picnic either.
I have been cancer free for almost 1-1/2 years now ---- and once again I am not freaked out
Perhaps my fears would have escalated had I not been told that radiation could cure me of the tongue cancer.
Posted by Runner Girl on May 13, 2020 3:46 pm
Posted by Mof4 on May 13, 2020 5:37 pm
In November 2019, I was travelling and on the last week when I noticed something in my right breast. It was softer than the end of my nose and it didn't hurt. I thought that I might have twisted something because I had been hauling my carry on around for 3 weeks over 2 countries already. I came home for my 6 months-later mammogram and they found a lump, verified by a second mammogram and ultrasound. The radiologist reassured me that I wouldn't be lost and that my name was in the system. It was suspicious so I would be scheduled for a biopsy. Done January 7, 2020. Had to wait for pathology results. Dr's office called a week later wanting me to come in. He went on and on about the results until I blurted, so you are saying that it's cancer?
Posted by Ecr on May 14, 2020 7:55 am
it was only 2 weeks until I saw the haematologist. At our first meeting, she ordered another biopsy because the first was too small to do more testing, and a whole ream of tests. Two weeks after that, we sat in her office and started off our discussion of the outcome of all the testing by hearing that it was DLBCL, stage 3b and that the 5 year survival rate was 50%. I wasn’t too shocked - I had been doing some reading but my poor spouse was so freaked out by the survival odds that she didn’t hear much after that. That was probably the worst part of the whole diagnosis process. The whole process was very fast. Six weeks after my first medical contact, I was sitting in the Barcalounger having my first R-CHOP.
I’m now NED for almost two years. I was off work for almost two years and still struggle with peripheral neuropathy and fatigue but I’m still here. I returned to work 6 weeks before I was sent to work from home because of COVID. It helps not having the worry of going to work everyday on public transit (about a 80 minute trip)!
Posted by Catlover on May 14, 2020 10:39 am
Posted by Jomilks on May 14, 2020 6:16 pm
Posted by dmarie on May 14, 2020 11:05 pm
I went for my regular 6 month appointment with my diabetes doctor and mentioned that I had been feeling really tired all the time and had lost some weight (without wanting to). She suggested I stop by the lab for some bloodworm before going home. The next morning I got an early phone call from a woman at Cancer Care saying "We have set up an appointment for you at clinic 5 tomorrow morning at 8:30. Can you come down to Cancer Care this afternoon for some more blood work?" I was in total shock but managed to say OK I can do that. I had just hung up the phone when my Doctor called to tell me that she thought I might have Leukaemia and that she had managed to get me an appointment with a hematologist at Cancer Care. She had hoped to get ahold of me before they did but the line was busy.
Round 2: Breast Cancer
After finding a lump that did not seem normal (in spite of a clear mammogram a few months before) I went to the doctor who said " Hmm I'm a bit concerned about that. Let's see if we can get you in for an ultrasound today. " I guess I kind of knew at that point that it was not good. I did not find out officially until three weeks later after I had a biopsy. I had an appointment with the surgeon who gave my the results and discussed surgery options. My husband came with me to that appointment and helped me make the mastectomy decision.
Let's hope there isn't a Round 3 :)
Posted by Rayline on May 14, 2020 11:05 pm
Posted by QuarantineAndMe on May 15, 2020 6:20 am
But the truth was I knew it was already bad news because after my ultrasound, the tech, the admin and another tech were looking at me as I was leaving the clinic. There was just something in the way they were looking at me that gave me the gut feeling that they knew something I didn't and they were all a bit sad for me.
Posted by Minus2 on May 15, 2020 8:30 am
Round 1: Went for a regular mammogram in April 2016 which led to ultrasounds, MRI's and and an MRI guided biopsy. Based on my imaging, my family doc knew I would need surgery, even if the mass was benign, so he made a referral to a breast cancer surgeon before the biopsy was performed. The biopsy results were available the same day as my appointment with the surgeon, so on May 9th, 2016 my surgeon was the one to officially tell me I had DCIS and IDC, Stage 1, Grade 1, ER+, PR+, HER2- and recommended bilateral mastectomies followed by immediate implant reconstruction (no expanders - one trip to the OR and done). Surgery was May 31st. Like QuarantineAndMe , I already knew in my heart before my appointment; when I was sitting up from the MRI guided biopsy, I was upset because I was frightened and one of the technicians tried to reassure me by sharing that at least it wasn't in the chest wall and that was a good thing. So, I knew.
Round 2: At the cancer centre for a follow up appointment in December 2019. All good with the breast cancer but the oncologist saw a spot on my arm and asked how long it had been there and had it always looked like that. She said it was probably nothing but recommended I have it looked at. My dermatologist performed the biopsy on Dec. 23rd and my family doc (new one, my original Dr. left his practice in 2018) provided the results on January 7th, 2020 - Nodular Melanoma, Stage 1b. Re-excision was performed Feb. 5th.
Delivery of the DCIS & IDC diagnoses was so much better than the Melanoma because I had the experts there so I could ask questions. With the Melanoma, my Dr. was really only able to hand me a copy of the pathology but could not answer questions about the cancer's characteristics etc. I did a lot of research on my own.
Posted by ng_minus1 on May 15, 2020 8:56 am
At work I tried to calm myself and continue working - I wasn't successful. I ended up taking the rest of the day off. Much better to be told in person and have somebody with you for support.
Posted by Jeff M on May 16, 2020 6:21 am
My wife hadn’t shown up yet to pick me up, so when she got there I was still pretty much in shock.
Fast forward just over a year, successful surgery, only follow up screenings and to date still cancer free...
Posted by THawk on May 16, 2020 6:44 am
Posted by Peterpatch on May 16, 2020 8:04 am
Posted by Survived99 on May 16, 2020 10:21 am
I'll use the Round approach too.:
Round 1: Felt a lump one month after my first mammogram but dismissed it as a cyst. Went about my business for 2 months until I felt another tiny lump in my armpit. Uh oh. Referral, ultrasound, fine needle biopsy and 3 days later, in the surgeon's office I was told "we found cancer cells in the fluid we took out of the lump". Then the wheels were in motion.
Round 2: Felt a lump near my collar-bone in my neck. Hmm...weird...not showing up like return of BC...on to multiple ultrasound guided biopsies turning up weird cells to finally being told at the surgeon's office (coincidently the same surgeon who told me the first time) - 4 months later, on Christmas Eve! - that it was indeed a malignancy. Wheels turned slower that time.
Posted by Samiam on May 16, 2020 11:27 am
I was a little different. I had bi lateral medial canal fibrosis which results in the ear canal growing in on itself resulting in hearing loss and infections. Had surgery to repair the "ripe" ear with a plan to do the other in a year of two when it was not angry. Surgery went perfectly. Almost a month later I recieved a call directly from my surgeon that my pathology report was in and he needed to see me. Booked the first available appt 5 days later and googled pathology reports in the meantime as I didnt know what he was talking about...I hadn't had any tests.
At the appt he told me that as part of his regular routine he sends the tissue from surgery to the lab. He wasnt concerned as he hadn't seen anything however it came back showing SCC. They even had the lab check 2 times and had another pathologist review it. I was a bit blind sided, even after the Drs call. He said he was totally blindsided-they even checked to be sure there wasnt a sample mix up.
I had the 2nd ear surgery in March to restore hearing to the other ear in preperation for the next surgery which will result in hearing loss. Pathology from the last surgery came back clear...yay!!!
I feel badly for the Drs who have to deliver this news...would not want to be in thier shoes.
Posted by alexisrj on May 16, 2020 7:58 pm
Had my scope booked in March 2020, it was cancelled due to covid but it was getting worse so I called the surgeon’s office asking is there was anything I could do. They called back and said, he’s not worried but you are so we’ll put you on a list since we’re doing very limited procedures. Got an appointment for mid-April. Leading up to the scope I just knew it wasn’t going to be good and kept thinking about how the surgeon was going to feel really bad telling me it was cancer after reassuring me that it wasn’t.
Day of the scope, had to go in myself, husband and 3 kids dropped me off and planned to be back at the expected time. After the scope, I knew it was bad when the nurse asked if anyone was with me and then if my husband could leave the kids with anyone, then - since he was already waiting in the parking lot - she said for him to bring them in with him.... during covid, when no one was allowed in the hospital.... I also looked over to my chart and saw “biopsy” and “CT” written down... when my husband arrived, the nurse took my two older kids for juice and cookies and the surgeon was there within a second. I said, “is it really bad”. And he said, “it’s not good. I found a small cancer....” not sure what after that. Then I had a CT that afternoon and he told me those results before I left the hospital. He called with the biopsy results a few days later and got me booked in for surgery.
I don’t know if there’s a good way to be told.... In my case, I wasn’t actually upset because I already “knew” and at least felt like, FINALLY they believe me.... I’m not crazy!!
Posted by Elsie13 on May 16, 2020 10:52 pm
Do you want to look around some discussions specific to your type of cancer?
https://cancerconnection.ca/discussions/viewcategory/70 for Lymphoma Non Hodgkins
https://cancerconnection.ca/discussions/viewcategory/39 for breast cancer
Search all discussions