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New diagnosed cancer

New diagnosed cancer

Posted by hamtam on Feb 6, 2020 7:46 pm

Went from  single spot on top of left lung September 30th. Surgery should get it all. January 11th surgery and chemo ruled out because of heart problems. January 29th  found out metastasized to lymph nodes and kidney. January 30th my cardiologist told he didn't need to see me anymore and go home and sign a DNR. Bone scan today  oncologist tomatoes head CT nex

Re: New diagnosed cancer

Posted by Wendy Tea on Feb 6, 2020 9:36 pm

hamtam‍  Welcome, and what a nasty experience you have had. It is wrong that your oncologist has forgotten he is dealing with a human being who deserves respect and compassion. Do you have support in your community? Can you discuss your diagnosis with your family doctor, a psychologist or a social worker? My hope is you find comfort and guidance. We are here to support you.
Healing takes time and opportunity. Wendy Tea

Re: New diagnosed cancer

Posted by Essjay on Feb 6, 2020 10:34 pm

hamtam‍ Wow - your cardiologist is a piece of work!

You have landed in a truly supportive community here. I am sure you are reeling from the news and uncertainty.

when you catch your breath, there’s someone here listening.

Essjay
Triple Negative Breast Cancer survivor since July 2018

Re: New diagnosed cancer

Posted by WestCoastSailor on Feb 7, 2020 12:50 am

hamtam‍ 

Your description of doctor meetings brought back a flood of memories from my first appointments. I don't really remember much. Crowds of people. Someone handed me an estate planning workbook and said get your affairs in order. That and the "5% make it to five years" were parts that I do remember. So I did. And though I haven't had surgery and I don't have heart issues, I'm still here almost two years later. And I had someone earlier today say "but you don't look sick."

It sounds like the first order of business is to find out how far the metastasis has gone. Pretty standard to check for brain mets with a head CT as soon as they find them elsewhere.

So let me ask the hard questions. Is that what you want? DNR I mean? Have they offered a palliative specialist? If your cardiologist is out does that mean they are thinking about chemo and he doesn't want to be part of it? Lots of questions here. Is the heart issue an known long term thing? Is anyone talking about a program of exercise? Physio? Are you going on this journey? Or are looking for a quiet end to it all? Or is there just confusion?

We're here to listen. Is there anything specific we can help with?

Angus
My story: http://journey.anguspratt.ca

Re: New diagnosed cancer

Posted by Cynthia Mac on Feb 7, 2020 10:11 am

hamtam‍ , I am so sorry for the circumstances that bring you here, but I’m glad you’ve sought additional support.

Sometimes there is no gentle way to administer bad news. (I’m recalling the events surrounding my grandmother’s death when I say that, so it comes from a personal experience.) Before Dad’s cancer metastasized, he was alternating his follow-up checks between his surgeon and his oncologist, but after they found the Mets, the surgeon said there was no point in Dad seeing him anymore. It’s tough news to get, knowing that surgery is no longer an option.

I agree with the others that you could benefit from a long, frank discussion with your family doctor (he will have all of your reports) to go over everything once you’ve reached the point where the news isn’t so fresh, and you feel you’ll be able to process it. 

One of the things I think you’ll want to know is what type of lung cancer it is, and how aggressive it is. The oncologist might be able to try medications that will be less impactful on your heart. 

As you’ve read, some lung cancer patients are able to survive a length of time, even if their cancer is stage 4. My Dad’s had it now since last July (but he is having treatments.) His lung cancer is a quite aggressive, but it’s also only diagnosed in .1 to .4 percent of all lung cancer cases.

Please write down all your questions you have to share with the oncologist, and let us know how your upcoming tests and appointments go. My Dad has a wonderful oncologist, and I hope yours is, too.
“When the root is deep, there is no reason to fear the wind.” - Japanese saying

Re: New diagnosed cancer

Posted by jorola on Feb 8, 2020 12:19 am

@hamtam I echo what others have already said. I also suggest maybe following up with your cardiologist to see what they have to say about chemo or any kind of treatment for you cancer. In saying that, Cynthia Mac‍ is right; you would need to give them specifics of the type of cancer and as many details as possible. Maybe your cardiologist and oncologist could talk and see if there are any options for you before that door is just closed?
Live, Laugh, Love

Re: New diagnosed cancer

Posted by hamtam on Feb 9, 2020 1:59 am

Cardiologist (a new one) and surgeon already consulted with oncologist and ruled out surgery and chemo. New cardiologist going to see me and explain the heart problems as that may affect my decisions. Really glad I found this site, but I'm not very computer literate so having a little trouble finding my way around.

Re: New diagnosed cancer

Posted by hamtam on Feb 9, 2020 2:24 am

I'm in PEI so cancer treatment center is attached to the hospital. My old cardiologist had his on office, but the hospital has 3 others and 2 of the three have already seen me. I passed out at home January 7th and ended up in the ICU for 4 days. Atrial flutter, Afib, Atrial tachycardia, and bradycardia. Heart rate below 50 so pacemaker kicked in, then rapid and regular to a high of 207 and finally irregular and as high as 188. They called me the mystery lady. Then to top it off throw in aortic stenosis. My ejection fraction improved from 35 to 40 to 45 to 50. Took me off one med and added 4 more. After the initial shock, I'm remaining positive. I have a friend who always has what  I have, but worse of course. I think I've finally won that battle.

Re: New diagnosed cancer

Posted by jorola on Feb 9, 2020 2:59 pm

I hope the new cardiologist can help to explain things hamtam‍ It always help when you understand the rationale behind decisions.
Here's a link to frequently asked questions about the site. I hope it helps you with navigating around. Also don't be shy about asking for help ok?
https://cancerconnection.ca/faq
Live, Laugh, Love

Re: New diagnosed cancer

Posted by Mammabear on Feb 10, 2020 12:32 pm

hamtam‍ you made me laugh with the friend who has what you have only worse. So true. Glad you can keep your sense of humour. You are in a good place. We are all here to support. Many of us are past our 'best before'' dates. Treatments and options are changing every day. hang in there.

Re: New diagnosed cancer

Posted by hamtam on Feb 10, 2020 10:16 pm

Good evening all, another glorious day to be above ground. Got my appointment for markings for radiation next Tuesday so things are moving along. As I don't drive, the cancer treatment center is arranging for transportation for treatments. That will be a big help.
“If you're reading this...
Congratulations, you're alive.
If that's not something to smile about,
then I don't know what is.” “
 

Re: New diagnosed cancer

Posted by WestCoastSailor on Feb 11, 2020 12:08 am

hamtam‍ 

One day at a time. One day at a time. Happy that things are getting worked out.

Angus
My story: http://journey.anguspratt.ca

Re: New diagnosed cancer

Posted by hamtam on Feb 15, 2020 11:58 pm

Head CT last Thursday, results next Tuesday. Also markings for radiation. At least bone scan was clear. Hopefully on Thursday I should have complete picture and a plan to move forward. Prayers for all.
Hamtan