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Introduction

Introduction

Posted by Dobergurl on Jun 11, 2019 11:59 am

Hello! I am a busy professional woman and mom with a great love for life. I have also recently been diagnosed with Stage 3 Ovarian Cancer. I have no other details yet, still waiting to see my gyno-oncologist, and the impending surgery/chemo/treatments. I admit I am scared, for myself, but also for my family (especially my children, who thank goodness are grown up), and my loved ones. I would love to hear from others who are in a similar position, whether with ovarian cancer or not. Sending positive energy and support to everyone on this site!

All the best....Catherine

Re: Introduction

Posted by Runner Girl on Jun 11, 2019 12:10 pm

Hi Dobergurl‍ , 

Catherine I'm so glad you've decided to join.  And as I said on Sunday, I'm so sorry you have been diagnosed with cancer.  You'll find a wonderful, welcoming community here.

Runner Girl - Gayle

Re: Introduction

Posted by Dobergurl on Jun 11, 2019 12:25 pm

Thank you Gayle for referring me to this site!  I hope to make many connections that will help me on my cancer journey.

Have a great day!

Dobergurl - Catherine

Re: Introduction

Posted by Brighty on Jun 11, 2019 1:53 pm

Dobergurl‍   welcome to cancer connection!!!!      sorry for your diagnoses.   I'm going g to connect  you with Elsie13‍  who had ovarian cancer and can speak about her experience.     

Re: Introduction

Posted by Dutchboy133 on Jun 11, 2019 2:57 pm

Hello,

I am new to a forum like this.  I tend to avoid most forms of social media, but I saw this and thought it might be good to get other people’s perspectives.  2 months ago, my wife Leslie had major surgery for the second time to remove a brain tumor.  Pathology came back and indicated it was GBM, progressed from Anaplastic Astrocytoma.  She was given a prognosis of 4 to 6 months to live.  Chemotherapy could double this outlook.  The chemo she is on seems to be tolerated pretty well, but it is making her extremely fatigued.  It is not uncommon for her to sleep 4 or 5 hours during the day and a full 7 to 8 at night.

I am unemployed.  I have been since 3 weeks before her initial diagnosis back in 2016.  We are doing OK financially.  I feel somewhat handcuffed in that I don’t want to leave my wife alone, but being stuck at home is driving me crazy.  A short 20 minute walk outside will almost certainly result in my wife taking a 2 hour nap later in the day.

I’m primarily interested in hearing from others in similar predicaments.

Re: Introduction

Posted by Brighty on Jun 11, 2019 6:18 pm

Dutchboy133‍  I just saw your post and wanted  to welcome  you to cancer connection .  I'm so sorry about your wife's diagnoses.       I don't know anyone on the forum with this type of cancer but you can find more info if you click on forums and types of cancer .   Click on the cancer type and join in one of the discussions.    You can also find many caregiver  discussions in the forums.      I was a caregiver  and can tell you that it is crucial  for you to also look after  yourself while caring for your wife.   I'm sure others will chime in as well to support you.       You will find the people on here wonderful  so welcome aboard  and free free to post  whenever you want or need .   There's always someone  listening.    

Re: Introduction

Posted by Elsie13 on Jun 11, 2019 6:22 pm

Hello  Dobergurl‍ .  I had a complete hysterectomy in Nov. 2016, due to large ovarian cysts. . A month later I got the official news, they had found ovarian cancer, stage 2.  I had 6 sessions of chemo, (Carbo/Taxol) and 25 sessions of radiation. My last radiation was  in June of 2017.  I was told there was a 40% chance of the cancer coming back.  Some of the cancer was clear cell, which is a very stubborn cancer. 
I didn't have a lot of problems with the chemo, mostly just extreme tiredness. The main problem with radiation is that you have to go there every day!
Now I'm going to the gym 3 times a week. My favourite thing is zumba class. I have lymphedema in my legs, presumably because they took out a lot of lymph nodes when I had my surgery.  My right leg has been swollen up for a few months, so what I'm doing is wearing my compression stockings, and then around 4 PM or so I take off the R stocking and bandage the leg.  The bandage stays on until about 7:30 the next morning, but the other stocking I take off at bedtime. 

 It might seem to you now that everything is taking a long time.  With me, once I had my surgery, I waited 4 weeks for the pathology report. Then I think I started chemo about 3 weeks after that. Then after chemo was all done, I waited 4 weeks to start radiation. Part of it is that you need to rest up in between, and the other thing is of course, you're not going to get treatments until the doctors fully know what's going on. 

 

Re: Introduction

Posted by Elsie13 on Jun 11, 2019 6:31 pm

Also, Dobergurl‍ , there are some discussion you might want to have a look at, https://cancerconnection.ca/discussions/viewcategory/72, and  https://cancerconnection.ca/discussions/viewcategory/48 .
Perhaps Ingrid_CanOn‍ , bsblover4evercanada‍ and jacquieh‍ will share their stories with you. 

Re: Introduction

Posted by Elsie13 on Jun 11, 2019 10:38 pm

Dutchboy133‍ , so sorry that your wife is going through this.  I'm glad you have met Brighty‍   She knows that it's very important for you to take a little time for yourself now and then.  Are there friends and relatives who will stay with your wife while you go for a walk? Shopping? Take a half day off maybe? 
There are some brain cancer discussions you can look at, and you'll see on the right side of the page, there's an online booklet that you click on, to get information.       https://cancerconnection.ca/discussions/viewcategory/61

There's also Caring For Someone With Cancer: https://cancerconnection.ca/discussions/viewcategory/35   

Re: Introduction

Posted by Kims1961 on Jun 12, 2019 11:09 pm

Dobergurl‍   Welcome to this awesome community.  In 2016 on my 56th birthday - no less - I found my lump - diagnosed with breast cancer - had bilateral mastectomy, chemo and radiation.  It seems like a whirlwind now but at the time it was terrifying at times.

I also was a busy professional, our kids were off to university and my husband and I were planning some bike trips.  I felt healthy and well, no signs of breast cancer in my family and clear mammograms.

"Shock and awe" is how the first few weeks were like.  I had times of feeling positive, times of feeling lost and times i went to the "dark places".  I found this community so helpful during my journey.  I also spoke to a peer counsellor and the information specialists are awesome.  Just connecting with others was so reassuring. The waiting...limbo...initially can be challenging.  I find trying to keep myself distracted helpful - things like -cleaning out drawers/closets  - start up a project - EXERCISE!  - the outdoors was my "therapist" .  Know that your emotions are just that - your emotions - they are important for your wellbeing - cry if you feel like it, share as it is helpful and start building up your supports!

You are not alone...you've got this and we are here for you.

Kim

Re: Introduction

Posted by Kims1961 on Jun 12, 2019 11:17 pm

Dutchboy133‍  Welcome and am so glad you posted.

So sorry to hear about your wife's diagnosis.  Sounds like you have been providing her with loving care. A friend of mine in a similar situation started to contact family/friends that could give her a break during the day.  As a caregiver it is also so important for you to care for yourself as well.  I can appreciate not wanting to leave your wife alone though.  Is there a hospice organization where you live?  They sometimes have visiting relief programs so that caregivers can get a break as well.  Family/friends/neighbours sometimes don't know how to be helpful so maybe there is a way they can provide some relief.

You have some excellent advice from others. Please let us know how you're doing.

Kim

Re: Introduction

Posted by Cynthia Mac on Jun 13, 2019 8:40 am

Dutchboy133‍ , just piggy-backing on Kims1961‍ ‘S comment about seeking out respite care for a week or two. Also contact seniors’ homes in your area. Most have 1 or 2 respite care beds specifically for this purpose, and these are sometimes under utilized. It’s worth investigating.

Re: Introduction

Posted by Dobergurl on Jun 14, 2019 9:44 am

Thank you very much Elsie13‍ , Kims1961‍  and Brighty‍  for your support and information. It makes it easier knowing there are sites like this one where I can find information and hear about the journey others have been on.

All the best...Catherine