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Is no Chemo a possibility after a Oncologist type / Genomic test?
Viva
37 Posts

Anyone out there find out they did not need Chemo after these test results came back? I’m stage 2 /3 node involvement BC . I meet with my Oncologist Wednesday after a very long wait and am curious .

23 Replies
supersu
577 Posts

@Viva

good question!

my experience: yes.
I was on the path to chemo till my OncoDX test came back indicating very little benefit. chemo was then taken off the table and I went to radiation next.

let us know how things move along for you. are you waiting for an OncoDX result? it seems that not every sample is tested..I am sure your health care team will be able to clarify all the criteria for you.

cheers
su

#OncotypeDx #chemotherapy #breastcancer

Kuching
350 Posts
Viva‍ I’m no expert, and I have lung cancer, not breast cancer, but I would say yes. Thanks to genomic testing, the only treatment I have ever had is targeted therapy, a pill a day and that’s it. And even if you do need chemo, the test will help determine which particular chemo drugs will work best for you.

Wishing you good good luck for tomorrow!
Cairo
8 Posts

My OncoDx came back indicating that there was only a 1% benefit to having chemo and the same for radiation. I am Stage 2, DCIS with 3 nodes removed and not involved. I am on endocrine therapy for the next 5 years, perhaps more. I'm sorry to hear it's such a long wait! The waiting was the worst for me.

MissKitty
44 Posts

@Viva I hope your appointment today goes well!! I have my appointment tomorrow (Thursday). Fingers crossed for no chemo… I don't know if you were able to catch it but Wellspring had an info webinar today on the latest advances in breast cancer treatment. It was quite interesting. It should be posted to their website in a couple of weeks if you missed it.

MAP1
8 Posts

Yes, the Wellspring webinar was very informative. Good luck tomorrow. Hopefully you won’t need chemo. 🤞

Viva
37 Posts

Todays Oncologist apt was canceled, I’m so disappointed! They offered no explanation and said for me to wait for a rebook. They did however tell me the Radiologist Oncology apt for Dec 1 st is still a go. This leads me to think no chemo , but don’t want to get my hopes up. I have been researching and they did 3 trials on Genomic testing and the outcome was post menopausal women with early stage estrogen fed breast cancer did not benefit from chemo. I have yet to be told what stage I am as I have not heard from a dr since surgery sept 27 , but I don’t feel I’m at all early stage but who knows? 3.2 centimetre tumour and 3 positive nodes .

MissKitty
44 Posts

@Viva That is so disappointing! I get so angry when I hear about this sort of thing. I'm sorry you're in this situation Viva. I'm surprised your surgeon hasn't had a follow-up appointment with you yet (also disappointing!!). If you haven't already done so, might be helpful to get a copy of your post-op pathology report and discuss those results with your radiation oncologist. Or call the patient records department of your hospital to confirm that the report has been sent to your radiation oncologist.

One thing that I found helpful post-op that I came across partly by accident is to see a physiotherapist to help break up scar tissue (I had a lumpectomy). I think massage therapists can do this sort of thing too. The physiotherapist I saw was specialized in breast cancer rehabilitation.

#breastcancersurgery #navigation #breastcanceremotions

MAP1
8 Posts

I’m so sorry that your Oncologist appointment was cancelled. I also had the same size tumour and had tests done and they found that Chemo would not benefit me. I got lucky. I only had 20 rounds of Radiation.

You need to be your own advocate and call the doctors office until you get another appointment. They are so busy, they don’t mean too, but they may forget to call you back.

Good luck, fingers crossed. Let me know the outcome.

MissKitty
44 Posts

@Viva Met with my med oncologist yesterday, he thought that chemo would not particularly benefit me. I was diagnosed with stage 1, no lymph nodes involved, my oncoscore was 19 (indicating moderately aggressive cancer cells). As usual after my appointments, once I've had some time to reflect, I wished I had asked more details around chemo/no chemo. I am going to call his office today. Also, he recommended tamoxifen (I think 5 years) and if I'm tolerating that well then some monthly injections to suppress my ovaries from producing estrogen. If that goes well, then maybe consider removing my ovaries at some point down the road. I imagine swearing is not permitted on this site but I'm pissed off and having “I don't want cancer and cancer treatment” days lately. I've already had a significant health problem throughout most of adulthood prior to cancer.

#Breastcancer #breastcancertreatment #breastcanceremotions

supersu
577 Posts

@MissKitty

just reading your post to Viva, and I wanted to say that ALL of our emotions are valid here. you expressing your feelings so that others here can realize that they are not alone in theirs is the gift this community keeps on giving.

thank you for being part of this community and sharing so generously.

cheers
su
aka: #Impissedoffsomedaystoo

#cancerconnectioncommunity #allfeelingsareVALIDhere

Viva
37 Posts

@MissKitty , @maps1 @Cairo I have been rebooked with a different dr for tomorrow morning, a doctor from Vancouver via big screen in a room, that’s fine, my son , bless him,wants to take me ❤️ I have to say I’ve been depressed the last few days , just can’t take the waiting! 66 days since surgery! Ugg

I am noticing a lot of noises in my shoulder when I do my little workout , maybe I will try and find some physio , good idea. Also just discovered osteopenia from my bone density test so have to get that sorted. I do DR ZACHS 4 min workout 3 times a day and yoga. Plus the exercises post surgery that we’re given to me. I also walk around a lake down the rd a few times a week. I will have to include a few more calcium rich foods in my diet for sure.

thanks for the heads up on chemo/no chemo, I want to ask all the right questions and have a list. I will let you all know how my long long long awaited apt goes

Hugs to you all xo

Viva
37 Posts

@supersu Yes I’m waiting for my results, how did you feel when you first found out no chemo?

supersu
577 Posts

@Viva

what a question!
at first I was OVER THE MOON!

I had been the primary caregiver for my spouse as he worked thru a stage 4 diagnosis 25 years ago, and more recently, 10ish years ago, seen my dad go thru pancreatic ca….so I was freaked out! I DID NOT WANT CHEMO!

……but here is where my story gets weird.
once I got over the elation, read more & more posts here in this community, I started thinking: chemo doesn't sound so bad these days! ha ha

I am a worrier, so of course I worry constantly about a recurrence and I suppose I will always wonder if I ‘should have had chemo’

but, I decided I had to put trust into the medical professionals, asked my million questions and then just crossed my fingers and just went for it! all of the funds we collectively have helped to raise have been used for research and development of these protocols….would be silly to double think all of those super talented souls.

I am now 1.5 years past treatment and feel for the most part fine. I have some lingering issues that chemo would never had made a difference about, so I am mostly, (ha ha ha), happy with my outcome.

I hope for you that you are offered THE MOST EFFECTIVE treatment today. (66 days is ridiculous).
if that included chemotherapy, so be it. if it is determined that it would be of little benefit, that's swell too. waiting for your future to be told is the hard part.

good luck later today with your appointment. I/we would love to hear what the outcome is when you are comfortable sharing.

cheers/hugs
su

#chemotherapy #breastcancer #treatmentoptions

MAP1
8 Posts

@Viva

I was diagnosed with a Grade 3 tutor and had 2 sentinel lymph nodes removed. I also was on the path to chemo until my Oncotype test came back with a recurrence risk at 9 years with endocrine therapy alone at 3%. So I completed my radiation and started on Tamoxifen.

I’m sure there is a number you can call to contact your Oncology Team; so they answer any questions you think of, even after your appointment(s) are over.

Good luck! 🤗

Viva
37 Posts

Well the wait is over, a treatment plan is in order! No Chemo , which elates me .

My score was 15 and Will not benefit from chemo. I’ll find out about radiation on the first , and will be put on Letrozole for 5 yrs. Also I think once a month I’ll receive Zoledronic acid to help with the bones. I did find out I’m stage 2 as well. Dr Gelman said it was curable so that made me feel so good. I only slept 4 hours last night I was so worked up and at the end of my rope. Today I feel , I don’t even have words how I feel to be honest. Mostly happy and relieved and on such a rush from today. What a journey ! What a mind ——k as well. Hard on the old nerves that’s for sure .

Thanks for listening to me and all your help thus far. I know I’m far from over but I feel like the worst I’ve been through, hope I’m right.

MissKitty
44 Posts

@Viva Such great news for you and your family! yay! you're on your way!

Cairo
8 Posts

That's great news!! When I saw the oncology radiologist he also told me that the benefits of radiation would not give me much (2%) more longevity so I also opted out of radiation. I am on Exemestane 25 mg/day for 5 years. I sometimes wonder about not having radiation, especially when I feel the lumps/bumps/painful areas under my arm and along the incision line; but I trust my oncologist and if he says I'm doing very well, then I believe him:) Take good care of yourself!!

MAP1
8 Posts

Congratulations! That's amazing news. So happy for you!

MissKitty
44 Posts

@Cairo Hi Cairo, I'm curious to know more about the type of breast cancer you had, especially since you were given the option of no radiation. If you're willing to share!

Cairo
8 Posts

@Miss Kitty. I have Ductal Carcinoma In Situ, stage 2 with no lymph node involvement. Estrogen +/Progestrone +. My tumor of 1.3 cm was encapsulated in a 3.2 cm cyst in the upper left quadrant of my left breast. I could see the cyst and feel it; it felt like I could feel it ‘growing’ but that was my imagination. I was very fortunate because it was caught early and hadn't spread. I had a complete mastectomy and my margins after the mastectomy were clear. There was a 0.1 cm that the margin ‘may be questionable’ but my oncologist assured my that the Examestane would kill off any stray cancer cells. I'm coming up to one year since surgery (Dec 30/20) and I'm doing well, with only a few side effects from the Examestane :)

Viva
37 Posts

tomorrow I start Letrozole for 5 yrs . Then 15 rounds of radiation, won’t start until January. Bone scans and blood tests in the meantime. I guess I had C cells outside of one of my nodes ( not happy to hear that ) so they are checking my bones.

damn this is scary stuff 😳

elle29
782 Posts

I had been diagnosed IDC , all the diagnostic after Patrial Mass. / Lumpechtomy removal of mass one sentinel node fairly standard time of operation 1.6 hours .
With radiation treatment and Chemo taken off the table after finding more spread to MBC & put on a pill combo a day being successful reducing it so far 11 mths on . I thanked the Radiation Onco. who was eager to do me . Based on consult with Onco on the team board they usually meet together to discuss your case . ( sometimes I wish I had a hidden camera to listen ) But if you want the truth of their perspective and your cancer in all honesty, Cancer has Research pages you can read from on cancer prospects so far . And why they stop . My Onco put it well that 10% out of 💯 Will survive , live . They just do not know who ? Ask about or read on their own portfolio being Oncologists how long they have been doing this and their associations .
One thing I did learn it pretty Universal globally , no cure yet , same treatments. But at least the USA is pushing for better outcomes to be developed .
Read your self .

We are each different in our health status, even age they look at many factors related , weight , other health issues , even fitness but all qualify for treatment here none refused . And is there a greater chance of it returning for someone 30-40 yes . To receive the benefits bc their chances increase to die from it , is at a younger age . Then older adults a surgeon told me would have no need . Read on this CC site those at 70 + are getting chemo , radiation ☢️ . And a study I found they age out before the cancer .

You have to weight this with your consult Oncologist , speak openly here or with the specialist ,what you prefer /
There are studies, to check even they differ with many here who look at the whole person and threat , their fear of cancer spread . I did not know happened but had cancer before not need treatment except surgery had a baby prior . Who knows may her stems cells cured me as it did the several months bleeding that never stopped freaking me out . And switching to a female specialist who saved me to refer me to a group to have my babe That was years ago happily married with family . Are you hoping to return to work or retire and live ? Willing if one of the treatments does not work , have supports and extended benefits ? Or personal funds and time ?

..Some here who say ; take it all and go aggressive even if treatment is worse , more risk then the stage , spread to lymph confirmed , of cancer margins etc to other organs found later .
Mine was clear margins , no Hers , ++ jumped from stage 3 in 4 mnths to stage 4 having every scan & then some .And given a TP receiving a CKD 4-6 systemic treatment in less then 5 mnths I jumped at even though the prognosis given . But they are such champions here on CC they helped my mindset to feel the strength I had in me . Your just to busy to get through each step medically to do what you have to do . It can be overwhelming a roller coaster of ups and downs but support is here on CC .
On my oral TP , I get the same side effects , symptoms as those with IV ported Chemo but not concentrated to 6 days of weeks only . Done daily

... Being grateful I am “monitored monthly “ by blood labs / and CT still under a Primary Oncologist team with “every 3 mnths “ evaluation at my local hosp. Satellite 📡 cancer clinic team reviewing this. No crisis or adverse affects but gradual & caught a different protocol.

The Primary Oncologist I consulted has lots of board affiliations , had taught in UBC and so far has my confidence when he advised a treatment plan spoke factual but tenderly really admired by other physicians and patients . I lucked out even though he went on a sabbatical this is a 2 system cancer care seems to cover all the bases to fal” back on for myself as other cancer patients with 24 hour oncologist on call too fill those gaps .

. I know it is a difficult decision by try to find positives in this .

And there is a member here who has an excellent list of questions to ask your drs. @Runner Girl

Caught in time I guess . Take what u can but ask is it preventative , will it stop the other cancer not found yet in your system from growing ? Most of all is it a cure ?

MissKitty
44 Posts

@Cairo Thank for sharing. I'm glad to hear you're doing well!

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