2 Posts
I’m newly diagnosed with DCIS. Had one lumpectomy and getting a second next week. Doctor has recommended both radiation and horomone therapy. I want to get my biopsy tested through Oncotype DX. I understand that this is not covered so I’d be paying for it myself. Has anyone had this done for DCIS and not invasive cancer ? If so, was it beneficial ?
7 Replies
764 Posts
Ckh I had both DCIS and IDC and I did not have an oncotype test done. I didn't know that such a test existed until I joined this site. I also had cancer in 2011 so I don't know if it was around then or as widely used. There also wasn't any question about whether or not I needed chemo because there was cancer found in two sentinel lymph nodes.
cancertakesflight
cancertakesflight
67 Posts
Ckh I am wondering the same thing. I had DCIS at biopsy but after surgery was upstaged to DCIS and IDC. I had my lumpectomy and SLNB January 22.
My surgeon referred me to a radiation oncologist and a medical oncologist - I have my first appointments with both of them next week.
I’ll be at Sunnybrook for radiation. I looked at the radiation team there online. There is a dr named Dr Eileen Rakovitch. She has done a lot of work with DCIS - a large study in Ontario that validated the Oncotype DX DCIS test. She has some videos online if you Google her. She talks about the importance of this test being used so women can know their individual risk of recurrence and make a decision about radiation and its benefits for them. This research was over 5 years ago. I’m not sure if the test is provincially funded though for DCIS? It is for IDC if you meet certain criteria.
I’m going to ask at my appts and will share what I learn.
My surgeon referred me to a radiation oncologist and a medical oncologist - I have my first appointments with both of them next week.
I’ll be at Sunnybrook for radiation. I looked at the radiation team there online. There is a dr named Dr Eileen Rakovitch. She has done a lot of work with DCIS - a large study in Ontario that validated the Oncotype DX DCIS test. She has some videos online if you Google her. She talks about the importance of this test being used so women can know their individual risk of recurrence and make a decision about radiation and its benefits for them. This research was over 5 years ago. I’m not sure if the test is provincially funded though for DCIS? It is for IDC if you meet certain criteria.
I’m going to ask at my appts and will share what I learn.
165 Posts
Try Lianne a moderator .I asked for this after al was done told it would had to be done prior at biopsy . Thanks for the revealing it is not covered . Elle 29
165 Posts
I was seen by a GPO at my hospital & gen surgeon who said I would have Radiation but he was not an Oncologist . I was then seen by the chief Medical Oncologists after I did all my 5 -1 diagnostic scans where I lived . At the same time a Radiologist Oncolgist was also speaking to me from the same Cancer Centre but not letting me ask her about radiation more asking me if I took the Pill . And where who & when I had previous cancer . I searched their names in their hospital menu but found nothing, But had a visit with the Med Oncologist to hear what treatment I could have . He advised I not have Radiation being prophylatic Chemo was worse could even cause death .
. I went from IDC to MBC in 3.5 months assessed by the Medical Oncologist who found spots on my lungs ordered by PET/CT from the Rad/Onco. I am on 2 oral anti cancer drugs living my normal life so far getting accustomed to be observant of side effects and diabetes . Stay connected here .
. I went from IDC to MBC in 3.5 months assessed by the Medical Oncologist who found spots on my lungs ordered by PET/CT from the Rad/Onco. I am on 2 oral anti cancer drugs living my normal life so far getting accustomed to be observant of side effects and diabetes . Stay connected here .