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Awaiting a Breast Cancer treatment plan...

Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 7, 2020 9:11 pm

Hi All... I'm 42 and newly diagnosed (Oct. 14) and still waiting for some results and treatment plan.  What I know so far... IDC, 3cm lump and at least one lymph node involved.  This process has been very frustrating starting from finding a lump in July to today still not having a treatment plan (I don't have a family doctor). The oncologist I met once last Friday said I'm "either ER or PR +, I can't remember which one, but it doesn't really matter, it's about 40% +, and negative for the other" and I'm still awaiting my HER2 results (were sent in Oct. 23).  He said the plan was to start me on chemo the week of Nov. 9 after getting the HER2 result to see what kind of chemo I'll get.  A letter in the mail informed me of a phone appointment with him Friday at 2:30 and it's now Saturday evening and still no call (I called the cancer center and was directed to leave a message on his voicemail at 4pm Friday, and was reassured that phone appointments always run late and to just keep waiting, he starts vacation Monday so he'll probably finish up all his appointments this weekend).  So now I keep waiting I guess (...until after his vacation???) reading stories on here to help try to inform myself of what treatment might entail... so thank you everyone for sharing your stories, I look forward to keep reading!

Re: Awaiting a Breast Cancer treatment plan...

Posted by Wendy Tea on Nov 7, 2020 9:26 pm

Rowena‍  Welcome.  I am so sorry you find yourself in this situation.  Were you assigned a social worker or do you have access to a patient advocate? This is a situation where you need help to advocate for treatment in a timely manner.  In my case there was an oncologist who filled in for my oncologist when he was away. Please politely push for the treatment you deserve.  
ashcon‍  Kims1961‍  Cynthia Mac‍  Ladies,  do you have any suggestions? 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Kims1961 on Nov 8, 2020 12:18 am


Rowena‍  So glad you posted.  The waiting....for results, for treatment plans for PHONE CALL!

I was also diagnosed with IDC, ( ER+ and HER2+ ).  I had a similar situation with a surgeon who was to call me on a Friday and did not call and then its the WEEKEND....how long weekends would drive me crazy as it always seemed i was waiting for big news just after a long weekend.

I wonder if its possible to get the treatment plan from a covering oncologist, if your oncologist is going away on Monday?  I had situations like that where I would meet or have a consultation with someone covering.  I see that Wendy Tea‍  has also suggested this. It is definitely worth checking into seeing if this is possible.  My cancer centre also had a nurse on call, so i have called and spoken to her/him and explained my worries/stress/anxiety about a delay in treatment.  

I found some distraction techniques helpful with the waiting game.  I cleaned out junk drawers, sorted clothes - anything that kept my mind and body busy, seemed to help.  Also going outdoors and exercise.

So glad you posted.  Please feel free to reach out and if you can, let us know how you make out.

Take care - it does get easier once you have the treatment plan!!  Kim
Her2+, ER+ Bilateral mastectomy in 2017, followed by chemo and radiation. Mack and Hannah's mom

Re: Awaiting a Breast Cancer treatment plan...

Posted by Lala74 on Nov 8, 2020 9:41 am

Hi Rowena‍ welcome. I’m also newly diagnosed October 8.  My lump was 2,3 cms and scans for lymph nodes were clear.  I having surgery first but but the date has been pushed later after we got plastics involved.  It’s been very frustrating and stressful waiting.  Every ache or change in my body gives me huge anxiety as I imagine the cancer spreading.  I understand your frustration.  My surgery is Nov 17 so I have another 10 days left.  I would try and track down the Drs admin and ask for another Dr to call you.  I hope you aren’t waiting much longer.  For myself I’ve realized I have to advocate for me - no one cares as much as I do about a positive outcome for my own body.  Good luck and please update on your situation 

Re: Awaiting a Breast Cancer treatment plan...

Posted by CCC888 on Nov 8, 2020 4:31 pm

Hi Rowena‍ ,
I have similar experience. If times could go  back, I would definitely escalate.
On a Thursday 2 years ago, I attended the chemo teach which was arranged by my onco. "DURING" the teach, I was told I had been booked for a chemo appointment on the next Monday. I was shocked. No one told me about my treatment plan before.
On the next day Friday, I had an appointment with my onco. She told me she had cancelled the chemo and was still waiting for the biopsy (which was done 4 days before) formal report. Without the report, she didn't know my receptor status ie. ER+?? HER2+?? and she couldn't decide my treatment plan and probably I didn't need chemo. She told me she would be on vacation for 3 weeks starting "Monday next week". I immediately asked what was the arrangement when she was away and the biopsy report should come in couple days. She said she had a partner and he/she would call me if anything. I waited for 3 weeks. No one called me and I even silly thought might be I had no cancer. Finally, she came back and confirmed met to bone triple positive and chemo started in 2 days. 
My family doctor though just retired but he helped me to check my records and found the biopsy report came back just 1 day after her vacation-"Monday next week". My family doctor told me in general  it should be my own onco to discuss with me when a new treatment plan starts and not any substitute onco.
 
 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Buffythevampire on Nov 8, 2020 5:42 pm

Rowena‍ Pre-Covid 19 when I first had my appointment with my Oncologist she did a exam and found a lump that she wanted tested on my right breast. I had a mastectomy/expander surgery on my left breast. She freaked me out when she said she wanted to have my right side mammogram/ultrasound and biopsied and then possibly a lumpectomy. Turns out my Oncologist had not thoroughly looked at my charts because the lump was already known to be a cyst. Anyway my treatment had been put on hold until all the results were in. I had the mammogram and ultrasound and everything was ok, so biopsy was not needed. I found out my results from my family Doctor. When I phoned my Oncologist and spoke to her office assistant and asked when treatment would start, was told "we are waiting for a biopsy". I am the one that told them that I don't need a biopsy, so when does the treatment start. 

Because of what happened to me, I would keep calling the Oncologist's office, even if you have to speak to the office assistant. And I thought that when a Doctor was away, someone took over for them. Keep calling.

Re: Awaiting a Breast Cancer treatment plan...

Posted by CCC888 on Nov 8, 2020 7:18 pm

Typo again.....😅 
My family doctor though just retired but he helped me to check my records and found the biopsy report came back just 1 day after her vacation- on the 1st day of her vacation  "Monday next week". 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 9, 2020 10:35 pm

Hi All... thank you to everyone for the warm welcome! A good update... Got up early today and called cancer center, transferred to oncologist’s office voicemail, left another (stern?) message; called surgeon’s office and left a message that the oncologist he referred me to stood me up on Friday and I still didn’t have results the surgeon ordered Oct. 23 (his office is amazing so I figured this would get a quick reply - I was right)... but what got me a quick reply from the cancer center was a friend who works at the hospital who has been fighting for me the whole time (checking/expediting my scans, ultrasounds, etc.).  This morning he was so mad he went to the cancer center and talked to a friend there and I received a phone call from a cancer center nurse within 10mins!! I don’t know how far along any of this would be without him.

So, HER2- and bone scan clear 😊.  Nurse seemed shocked I was told I was supposed to start chemo this week but said she’d get my bloodwork scheduled and see if I could still start this week! 🤞

As I said above, the surgeon’s office called me back quickly... within an hour of leaving a message and the nurse told me if I ever have trouble with the cancer center again to call her and she’ll get ahold of them (she sounded angry and disappointed when I explained what happened so it’ll be good to have them in my side now as well). 

Thanks again for the advice and support... I’ll continue to fight for myself! 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 9, 2020 10:43 pm

Lala74:
Hi Rowena‍ welcome. I’m also newly diagnosed October 8.  My lump was 2,3 cms and scans for lymph nodes were clear.  I having surgery first but but the date has been pushed later after we got plastics involved.  It’s been very frustrating and stressful waiting.  Every ache or change in my body gives me huge anxiety as I imagine the cancer spreading.  I understand your frustration.  My surgery is Nov 17 so I have another 10 days left.  I would try and track down the Drs admin and ask for another Dr to call you.  I hope you aren’t waiting much longer.  For myself I’ve realized I have to advocate for me - no one cares as much as I do about a positive outcome for my own body.  Good luck and please update on your situation 

So true about the ‘every ache or change’... especially during a pandemic... is it Covid?!? Or Cancer?!? Or anxiety?!? Or a cold?!? Or a headache because I didn’t have my coffee today?!? Or the weather changing?!? Or PMS?!? Or? Or? Or? Lol.  I’m not generally and anxious person (luckily) and have just been keeping my same routine and ‘sleeping it off’ whenever I can. 

Good luck with your surgery! 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 9, 2020 10:50 pm

CCC888:
Hi Rowena‍ ,
I have similar experience. If times could go  back, I would definitely escalate.
On a Thursday 2 years ago, I attended the chemo teach which was arranged by my onco. "DURING" the teach, I was told I had been booked for a chemo appointment on the next Monday. I was shocked. No one told me about my treatment plan before.
On the next day Friday, I had an appointment with my onco. She told me she had cancelled the chemo and was still waiting for the biopsy (which was done 4 days before) formal report. Without the report, she didn't know my receptor status ie. ER+?? HER2+?? and she couldn't decide my treatment plan and probably I didn't need chemo. She told me she would be on vacation for 3 weeks starting "Monday next week". I immediately asked what was the arrangement when she was away and the biopsy report should come in couple days. She said she had a partner and he/she would call me if anything. I waited for 3 weeks. No one called me and I even silly thought might be I had no cancer. Finally, she came back and confirmed met to bone triple positive and chemo started in 2 days. 
My family doctor though just retired but he helped me to check my records and found the biopsy report came back just 1 day after her vacation-"Monday next week". My family doctor told me in general  it should be my own onco to discuss with me when a new treatment plan starts and not any substitute onco.
 
 

I will definitely be fighting for myself now... during my original onco appt I had to tell the oncologist that the CT scan results were back (the nurse had already mentioned it) as he kept saying ‘when we get the scans back’.  And today with the cancer center nurse she gave me my HER2 results but I had to ask about the bone scan results and starting chemo this week and getting bloodwork... she was ready to end the call after telling me the results... nothing about what happens next.   I’m going into every phone call with notes now and not hanging up until I have answers. 

It’s so terrible you had to wait that long but thank you for sharing so that the rest of us know to keep pushing! 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 9, 2020 10:53 pm

Buffythevampire:
Rowena‍ Pre-Covid 19 when I first had my appointment with my Oncologist she did a exam and found a lump that she wanted tested on my right breast. I had a mastectomy/expander surgery on my left breast. She freaked me out when she said she wanted to have my right side mammogram/ultrasound and biopsied and then possibly a lumpectomy. Turns out my Oncologist had not thoroughly looked at my charts because the lump was already known to be a cyst. Anyway my treatment had been put on hold until all the results were in. I had the mammogram and ultrasound and everything was ok, so biopsy was not needed. I found out my results from my family Doctor. When I phoned my Oncologist and spoke to her office assistant and asked when treatment would start, was told "we are waiting for a biopsy". I am the one that told them that I don't need a biopsy, so when does the treatment start. 

Because of what happened to me, I would keep calling the Oncologist's office, even if you have to speak to the office assistant. And I thought that when a Doctor was away, someone took over for them. Keep calling.

I called everyone I could today... at first I felt like I should just wait and stop worrying and give them time to respond but after reading all of your comments I just kept calling! 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 10, 2020 8:07 pm

Chemo starts Thursday!!!  All my calls and pushing worked (based off my phone call Monday I don't think there was any plan to actually start me this week... but here we go!)

Re: Awaiting a Breast Cancer treatment plan...

Posted by Lacey_Moderator on Nov 11, 2020 9:42 am

Rowena‍ 

Congrats on advocating for yourself! I will never forget someone once shared here 'You are the most important member of your medical team'. I truly truly believe that. 

Here is some info about Chemo: Chemotherapy and Other drugs

Feel free to ask any questions you have to our wonderful community! This is a great forum: Treatment and Side Effects. Any plans for the next few days to get ready?

Lacey

Re: Awaiting a Breast Cancer treatment plan...

Posted by Lucy77 on Nov 12, 2020 8:31 am

Hi,
No wonder you are frustrated!  Are you going to a Breast Cancer Clinic?  
Ask them for your lab results and start keeping notes and copies of every test they have done.
Keep advocating for yourself. I know it’s difficult to do in this situation but it’s important.
My cancer is/ was like yours.
I had a lumpectomy on Oct. 1  My surgeon was able to get most of the cancer except for 1 tiny spot. I saw a radiologist oncologist and a medical oncologist last week to discuss my plan.  We talked about the benefits of each treatment, chemo & radiation.  I have refused chemo ......lots of reasons. The main one being it does not give me enough benefits compared to radiation and hormone therapy. 

If you are not getting the answers keep calling and advocating until you do!
Thinking of you .....
 

Re: Awaiting a Breast Cancer treatment plan...

Posted by elle29 on Nov 13, 2020 6:28 pm

Hi Rowena  So ....Glad to hear you pushed through and got good supports here .How did u get an Oncologist so soon ? I was unsure how to respond not knowing the stage especially he grade . Definitely you need supports u can rely on there . Amazed to read everyone got Oncologist right away . Either you had known one or referred .
Now that I am waiting for my next plan post surgery Oct 29 from partial mastectomy removing  the IBC cance high grade &  lump tissue felt so good .relief . and went well on high anxiety to not panic . For me having an idea relieves that which both my FP and surgeon did taking my daughter in case being anxious going blank .
I read on my pathology report , Nov 3rd they received back that this is urgent and surgeon has released me to Camcer Centre . Not waiting I went to my FPS  office to ask for copies YOU HAVE that RIGHT to receive all documents copies about your health care treatment plan etc . My hardest is waiting being obstructed to get through my FP reception / Bcuz of realized covid quotas my doc said . And telling front desk  reception I spoke to my doctor for this or that now too only there 2 days a week . She has pushed this through immediately palpitating the lump to diagnositics as I did calling her of the schedule completed by me and leaving call back messages to main office . 
Since Tues. when surgeon called I think I have interpreted my surgical Pathology report enough to understand . Really do not want burning Radiation ☢️ nor sickening chemo with out Diabetic Specialist staff direction during this .If carefully gaged monitored as I will be away form home and family . Nor unsure if I can be strong through a short intense radiotherapy 5 - 10 day treatment being diabetic with spine issues. 
Will have to read again research all those seems like a lot . But the surgeon here did give me stepping stones of the direction this could go , radiation and tomaxofen . 
You are so brave and I feel too for me this is not as bad from previous rural doctors treatment with awful symptoms bleeding wanting o have my baby conceived and born who healed that .Now a nurse fighting in kindness to heal others at hospital . 
You got this ! Your in control too to work with them asking what you choose if possible listening .
Now I have to persist few hours left, care Cancer Counsellor in that location register , foolowup  if consult went through to cancer centre . 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 16, 2020 11:17 am

Lacey_Moderator:
Rowena‍ 

Congrats on advocating for yourself! I will never forget someone once shared here 'You are the most important member of your medical team'. I truly truly believe that. 

Here is some info about Chemo: Chemotherapy and Other drugs

Feel free to ask any questions you have to our wonderful community! This is a great forum: Treatment and Side Effects. Any plans for the next few days to get ready?

Lacey

Thanks for the links... I've been reading everything I can (within reason of course lol) :) 
I tried to keep a normal routing (which without work is difficult since I have no one to really look after on a schedule other than feeding my animals) but I also had some family to still tell so I used the time to do that.  Now to try to find a new routine before becoming a total couch potato while I'm still feeling okay. 

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 16, 2020 11:36 am

Lucy77:
Hi,
No wonder you are frustrated!  Are you going to a Breast Cancer Clinic?  
Ask them for your lab results and start keeping notes and copies of every test they have done.
Keep advocating for yourself. I know it’s difficult to do in this situation but it’s important.
My cancer is/ was like yours.
I had a lumpectomy on Oct. 1  My surgeon was able to get most of the cancer except for 1 tiny spot. I saw a radiologist oncologist and a medical oncologist last week to discuss my plan.  We talked about the benefits of each treatment, chemo & radiation.  I have refused chemo ......lots of reasons. The main one being it does not give me enough benefits compared to radiation and hormone therapy. 

If you are not getting the answers keep calling and advocating until you do!
Thinking of you .....
 

We have a regional cancer center in my city, not breast specific (we have an excellent, organized and very helpful breast cancer screening program but once you're diagnosed and moved onto the cancer center, that's when the ball seems to get dropped).  They have excellent doctors and technology, but the administration seems a bit disorganized. The actual first chemo session was very well done by the nurse (no pre-chemo classes due to covid so my initial 'training' was during my first treatment) but a little stressful going in not knowing anything other than what I read on my own. I haven't seen copies of any of my results, only verbally been told things by the surgeon and oncologist (and I've written down all dates and results they've said), but I did manage to get an intake appointment with a Nurse Practitioner this week to hopefully get on as a permanent patient (that took some begging, then some 'knowing someone who knows someone' to actually get in though... my friend who applied at the same time as me who is pregnant got told they wouldn't be accepting patients for over a year). 

I hope your surgery recovery is going well.  As my lump is >3cm and already spread into at least one axillary lymph node (probably more according to the oncologist while he poked around in there) chemo seems like the best plan for me to ensure it stops there (since my CT/bone scans were clear so far).  

Re: Awaiting a Breast Cancer treatment plan...

Posted by Rowena on Nov 16, 2020 12:19 pm

elle29:
Hi Rowena  So ....Glad to hear you pushed through and got good supports here .How did u get an Oncologist so soon ? I was unsure how to respond not knowing the stage especially he grade . Definitely you need supports u can rely on there . Amazed to read everyone got Oncologist right away . Either you had known one or referred .
Now that I am waiting for my next plan post surgery Oct 29 from partial mastectomy removing  the IBC cance high grade &  lump tissue felt so good .relief . and went well on high anxiety to not panic . For me having an idea relieves that which both my FP and surgeon did taking my daughter in case being anxious going blank .
I read on my pathology report , Nov 3rd they received back that this is urgent and surgeon has released me to Camcer Centre . Not waiting I went to my FPS  office to ask for copies YOU HAVE that RIGHT to receive all documents copies about your health care treatment plan etc . My hardest is waiting being obstructed to get through my FP reception / Bcuz of realized covid quotas my doc said . And telling front desk  reception I spoke to my doctor for this or that now too only there 2 days a week . She has pushed this through immediately palpitating the lump to diagnositics as I did calling her of the schedule completed by me and leaving call back messages to main office . 
Since Tues. when surgeon called I think I have interpreted my surgical Pathology report enough to understand . Really do not want burning Radiation ☢️ nor sickening chemo with out Diabetic Specialist staff direction during this .If carefully gaged monitored as I will be away form home and family . Nor unsure if I can be strong through a short intense radiotherapy 5 - 10 day treatment being diabetic with spine issues. 
Will have to read again research all those seems like a lot . But the surgeon here did give me stepping stones of the direction this could go , radiation and tomaxofen . 
You are so brave and I feel too for me this is not as bad from previous rural doctors treatment with awful symptoms bleeding wanting o have my baby conceived and born who healed that .Now a nurse fighting in kindness to heal others at hospital . 
You got this ! Your in control too to work with them asking what you choose if possible listening .
Now I have to persist few hours left, care Cancer Counsellor in that location register , foolowup  if consult went through to cancer centre . 

Hi @elle29 ... your fight sounds complicated by many factors but you also sound like a fighter who is educating herself on what you need and pushing for yourself.  Although I am 'rural' by Ontario standards, I am still able to get treatment in my own city and my hospital is a 5 min drive from my house.  As for getting an oncologist so fast, when I was diagnosed and referred to a surgeon who heard I was referred by a walk-in doctor, had no family doctor and that my lump was already >3cm and confirmed in a lymph node, he knew chemo would most likely need to be my first step as he suspected that I 'had this lump growing for a long time, possibly years and it could have spread'... so he said he was texting an oncologist while on the phone with me to get me in with him ASAP.... and I received a call the next day with an oncology appointment 7 days later. I'm very lucky to have this surgeon as he and his office have been the most organized and helpful in this whole process... the cancer center is not so organized unfortunately.  I do feel anxiety and concern with the recommendation of chemo first and the actual 'cancer'/lump' being left in me for so long (not to be removed until after my 16wks of chemo) and possibly still be spreading but I've listened to the surgeon, oncologist and done some of my own research and am getting more comfortable with the process of the chemo killing any possible cancer cells that have managed to travel and not show up on any of the scans yet because they were too small and then removing the lump.  

I can't imagine having to leave my family to go through any of this alone, but during Covid everyone in the hospital seems to be alone, even if their family is right outside in a car waiting.  I hope you have some technology that allows you to see your family online and keep your spirits up.  I am an only child, have no children and my mother passed away 4 years ago but I do have a fiance and some other family in town to keep in contact with.  

Thank you for story and advice... I may be getting a family physician soon and whether I do or don't get in, I'll be asking for copies of all of my results going forward!

Keep pushing!! 

Re: Awaiting a Breast Cancer treatment plan...

Posted by elle29 on Nov 17, 2020 12:02 am

Hi Rowena we havsomethings in common being the only sibling , and rural ON I came from to live here missing that small town ife and community Even sounds like our cancer similar . Maybe I can glean something from you in this together . How is your fiancé taking this ❓Elle29

Re: Awaiting a Breast Cancer treatment plan...

Posted by Mammabear on Nov 17, 2020 11:41 am

Waiting... with a pandemic in full swing this waiting becomes much longer and seemingly with less information on how long the in-between waiting is.

Cancer teaches us to wait.
Wait for a diagnosis
Wait for a test
Wait for a result
Wait for a treatment plan
Wait for treatment to start
Wait for it to end
Wait to see what side effects will be
Wait for the side effects to pass
Wait to hear you are in remission
Wait to feel normal
Wait for a cure
 

Re: Awaiting a Breast Cancer treatment plan...

Posted by CCC888 on Nov 17, 2020 8:11 pm

Hi Rowena‍  , may I ask which province you are from.
I am from BC. My family doctor retired in 2018, just in time to refer me to BC cancer agency. I am still looking for a family doctor. Two of them had already rejected me saying my situation is too complicated - cancer and diabetes. I usually go to the local walk in clinics for any drugs side effects ie. sore toes , UTI, etc, but very often they would say "I don't know the drugs. Check with your oncologist". When I told my oncologist, she mumbled something like "...there are so many side effects, how we to manage all..."
Like you, I am going to engage the primary care nurse practitioner in my area.

Hi Mammabear‍  or other BC ladies,  please PM me if you know any (preferred younger <50 yo)  family doctors in Vancouver , Burnaby or Surrey who are accepting new patients - for me, my husband  and our two teenager kids (1 boy, 1 girl)
 

Re: Awaiting a Breast Cancer treatment plan...

Posted by MCoaster on Nov 17, 2020 8:58 pm

CCC888‍  

I can understand how stressful and frustrating it is for you to find a doctor for your family who also is knowledgeable in working with your complex needs.    I did a quick net search using "how to find a family doctor in BC" and this was one of the sites which came up https://bccfp.bc.ca/for-the-public/find-a-family-doctor/ which is a BC College of Family Physicians site which have some suggestions.  You may have already tried the College.  There were also other organizations listed.   I also wonder if the Canadian Cancer Society 1 888 939 3333 may also have some ideas.    The Cancer Connection site has a policy of not suggesting doctors and therapists etc. on the Discussions or other public pages as different people may have different experiences  but if you wish to find more info. from a particular poster  I suggest you use our Private Message section.

Now is a pretty scary time to need medical help but this community is a good place to a member of.   I see you are already active here and hope you find it helpful.

Good luck and healing thoughts.

MCoaster 

 



 

Re: Awaiting a Breast Cancer treatment plan...

Posted by CCC888 on Nov 17, 2020 9:28 pm

Hi MCoaster‍ , thanks for your quick reply.
I am aware of the link but there is no age specified. I don't want to get an older family doctor who may retire in 10 years 😄. Other than the age, I think whether knowledgeable or whether having a nice bedside manner is very personal experience. I won't know until me and my family members really deal with him/her.  Honestly, I rather to have a family doctor who is socialable in such good at referral. 😄😄😄.So I still hope other BC ladies can PrivateMessage  me if they have in mind (not  suggest) an individual or a list of family dr. who is/are accepting new patient and under 50yo. Thanks in advance.
ps. I have no idea how to PM on this site.

Re: Awaiting a Breast Cancer treatment plan...

Posted by Lacey_Moderator on Nov 18, 2020 10:03 am

CCC888‍ 

Best of luck with finding a Family Doctor. It can be so challenging these days. 

I saw your note about private messaging. You can click on someone's name anywhere on the site and it will take you to their profile. From there under their profile pic is the 'user actions' options. Click 'send message' to send them a private message. 

You can access your inbox by clicking Dashboard- "My Messages". From your inbox you can click compose and search usernames to private message.

I hope this helps!
Lacey

Re: Awaiting a Breast Cancer treatment plan...

Posted by elle29 on Nov 20, 2020 12:46 am

Ok ball rolling quick again ,no time to gather much moss I guess I have to roll with it . I  got an oncologist appt call and radiologist call appt. by Dec 02 /
And all the more diagnostic tests,  to do at my local hospital for heart 💗 called MUGHA scans ❓Nuclear Medicine imaging department to check heart pumping my blood 🩸 etc . Anyone hear of this ❓
Why thes diagnostics are done and for what treatment, or is for is for what Radiation does to a person ❓I am now scared not feeling strong because I had done my fitness summer routine and not in best o fitness shape from little summer exercise , no vacation outings away bc of first COVId summer time to keep safe . Careful compromised with diabetes routine of care I was monitoring . And with work with contractors crews here not part of my bubble from spring lingering into fall and still undone . Did not walk either much , nor bike , bc it was broken . Oh but did garden prior for a year . I had planned a lot of work myself , post summer and self care appointments I needed . Oh but then cancer was discovered , then surgeries , then healing partial mastectomy . Now  all good but a dent in my muffin loaf . Lol  
Also now I have to have 3 more diagnostics of CT scans of abdomen , pelvis and something else . I need a link to understand or someone's experience here to connect the dots , chat  . Then blood lab tests . All in total 9 commitments for moi  , with 3 call appointments , one a nurse . Does this sound similar to anyone ❓
Parts of my Pathology reports also states "not determined ." 
Does any bodies breasts feel like they get full in the evening post surgery ,( from  partial masectomy or lumpectomy , ) almost similar to milk coming in for nursing effects .and was that oxytocin hormone ❓

I am scared cause I do not know if this scant medical approach, not seeing the doctors specialist even my Diabetic Doctor . IS for reasons of COVId ❓ Others cancer patients ,  said they got video training and educated on their cancer and approach . My surgeon did not even want to see , the incision how it was healing in a followup ❗️All I got were papers to read , those that said I would get a followup appointment but didn't . Or community care referral . 
Or is this related to private and different coverage or lack of no medical benefits I have ❓Nervous now bc COVId increases in spreading , who gets the vaccine, will we qualify as cancer patients or medical staff first or children ❓ My confidence once again waning but relieved moving forward . So it's worth it to go see your GP with your incision healing or removes some taped bandages left still . So they do know how you are doing seeing it . 
Meanwhile ,  I go see Oncologist Dec 8 th in Victoria BC Cancer Centre to examine my breast . Hope he is professional and lighthearted handsome or handy or genuinely caring as my surgeon was muscular lifting up to reposition me to sitting  on surgical skinny table .
I am allowed to bring one person . 🦩 All I know is they take patients for 5 days treatment time and uncertain still for what treatment regimen  . But if my IDC cancer growth 3-4 mm with one duct , was all removed and is optimistically all gone,  surgeon said. ....Then why bother with radiation ☢️ All this is quite amazing science , still a lot hypothetical , not exact .....
Always something Gilder Radner wrote with her cancer in ovaries . My first cancer adenocarcenoma diagnosis from TO University hospital Network  then the surgeon at Princess Margaret , left my ovaries in , she was saying they would dissolve . Others doctors questioned why that was done ✅ ❓
IDC diagnostics now to be done ;
Q: For this I wonder what if they find something wrong with my heart ❓Could radiation cause mini strokes ❓Will they decide what other treatment is possible,  to rid invasive cells gone astray ❓Or just give meds and palliative ❓OR - What if I do not like the Oncologist as some have said . 
Obviously don't they do the both breast when cancer found in one and no one bothered ,  to do diagnostics on the other breast . IDC breast cancers fo into the brain , bone and lungs . And again nor they did ask ,to check this . Like today  nor did I have time to tell secretary of other lumps in other breast.. I guess Inwill ask the Oncologist when he calls to speak to me . While I am waiting pending another Ultrasound, that my GP knows of and ordered . That's anxiety for you glad to know ❗️🤪, but still more left wondering ❗️, And taken I guess in stages they also have to discover. Such as what , or when treatments will be , how all before Christmas 🎄🌟🤪