Hi there. I have recently joined the cancer community - I was diagnosed last week with a malignant Phyllodes breast tumour (cystosarcoma). It's a rare breast cancer that behaves differently than other breast cancers. I'm looking for some help and support on how to navigate this new world, especially with a rare cancer. The medical folks don’t seem to know what to do with me. I feel like I’m falling through the cracks. Anyone out there with malignant Phyllodes? Or have experience navigating the medical system with a rare cancer?
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