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Triple Negative: Your Story, Survival, Treatment, Research..

Re: Triple Negative: Your Story, Survival, Treatment, Research..

Posted by Essjay on Sep 12, 2019 2:31 pm

Ooh thank chickadee‍ That’s really useful info ( I’m a 0% gal), although I’m almost 12 years post meno so past the worst symptoms...

Re: Triple Negative: Your Story, Survival, Treatment, Research..

Posted by Survived99 on Sep 16, 2019 7:10 pm

so_chickadee‍ 
My story: 5 cm tumour, Triple-negative (not known at the time though), 17/20 positive lymph nodes. Age: 42
Treatment:  Mastectomy (R breast) with axillary node dissection, 12 rounds of CEF (don't think they use that combo anymore), then 35 radiation treatments. I was thrown into menopause after the 2nd round of chemo with terrible hot flashes. Was recommended not to take HRT because there was no evidence that it was safe although I often wondered given my hormonal status.
Timing: I was diagnosed November 1999.
Genetics: lots of cancer in the family and I was tested for BRCA 1/2 and a ton of other potential defects and results were negative.
I attribute my 'addiction' to running as one of the reasons I have stayed healthy (other than a 'blip' in 2016)

Good luck with your surgery!