Posted by MCoaster on Nov 13, 2020 5:18 pm
May I ask what treatment you referred to? A good starting place might be to get in contact with the person who carried out the treatment or their office. Often cancer centres and most hospitals have staff who can deal with questions which patients have. If you had surgery, chemo or radiation you should be able to get a copy of what treatment etc. you received.
The CCS also has a helpline where you can often get help and suggestions. I was diagnosed with dcis and subsequently had a bilateral mastectomy about a year ago and I found the helpline was amazing with really kind, knowledgeable and caring people who helped me a lot. Have you browsed any of the forums here? I would suggest the Breast which you can access through the Types of Cancer forum as a good place to start and perhaps also look at the Groups. You are very welcome to post and if you wish to start a new topic.
You are certainly not alone because we are a safe place for you to share knowledge and experiences and we are very good listeners if you wish to rant.
Let me know if I can help. If you wish to reply to a post first click @ and then without a space start typing in the person's name. A blue box should appear and when you see the person's name click on it and it should appear in blue where you are posting.
Posted by CatherineS on Nov 13, 2020 9:59 pm
Posted by JustJan on Nov 14, 2020 9:08 am
Perhaps calling the place that performs your mammogram may help. The staff might be able to assist and provide you with some direction. I might also try calling the oncologist’s office and see if they can get your mammogram booked. You may have tried this already but if not, this may help. I know that scheduling tests, surgeries and appointments is a challenge with Covid for those booking the appointments. Things can get misplaced or waylaid so it never hurts to followup.
Hopefully, you can get this all sorted soon so you can put your mind at ease.
Posted by Whitelilies on Nov 14, 2020 11:37 am
As was mentioned earlier....I too agree: Why not call the mammogram "office"? Booking desk? I did that myself.
Be nice...be a bug.....have your pick! (lol)
I like to give the "human touch" on any call.....say....you are feeling nervous.....say.....please help me.....say.....please book me so I can sleep! (even humour them)
Say......you will accept a cancellation too.
I have heard their outbound message too! It said "do not leave more than 1 message"......"we will return calls within 48 - 72 hours".
They are busy.
We get it.
Please call......why not......
And: today......self care Saturday.......soak in tub......bubbles......hot tea after....brisk walk outdoors....crunch the remaining leaves.......
Please keep posting and sharing.....we are listening.
Posted by Whitelilies on Nov 15, 2020 4:56 pm
However.....if you could reach a "human person" (not voicemail) at mammo booking, then simply ask/request/demand/ an appointment...
They are backed up; fine.
What is first open and available date?Is it Dec 1? Is it Jan 1?
Ask to be on cancellation list. Give your cell number.
Tell surgeon office, you need a mammo "date".
How backwards....things are....that the patient is "booking"......
Just to make you chuckle.....my GP, literally has NO office space any longer !!.....The entire medical building, 6 floors, has been demolished. She was given notice, and sent out a mass email to all her patients, stating she has NO office....if we wish to leave her services, we can.....or we can stay.....and she is reachable, virtually. I chose to stay......am with my GP for 29 years......
I am wondering.......How on this earth, she will perform a PAP Test???? Through the phone? Please Laugh.....though not funny.
My GP said she is "farming out" these tests......I too am thrown to the wolves.....and yet another "stranger" is doing another test......grrrrrrr.......
I am calling on my own accord Ob-Gyn Drs to literally "beg" for a PAP test.....am not really going to be their patient....what care will I receive?
I found 1 Dr who said yes...and 3 others said no.....
Gotta laugh.......already cried.
Please share, when you finally get your mammo appt.
Posted by CatherineS on Nov 16, 2020 1:49 pm
Posted by Runner Girl on Nov 16, 2020 3:23 pm
I am sorry you are having such a hard time getting your follow up mammogram. Would your GP be able to perform a breast exam and would that give you a little peace of mind until the backlog allows for you to get in for the mammogram?
If you don't mind, what was the nature of your breast cancer? What treatment have you had?
I was diagnosed with IDC, ER+ and HER2+ in May, 2018. I had a lumpectomy (right breast), chemo, radiation and a year of Herceptin. I've been on Tamoxifen for nearly 2 years. I will be having a bone density scan tomorrow afternoon (it was booked in February). I'm to meet my oncologist in December to determine if they can switch me to Anastrozole for the next 3 years. My first follow up mammogram showed 2 lesions in my other breast. The radiologist was freaking out and told me I needed a biopsy right away. My oncologist said they were too small to biopsy and I'd need to wait 6 months for the next mammogram to see if there was any change. Since then I have a mammogram/ultrasound every 6 months as I'm on the radiology clinic's high risk list. Thus far these two lesions haven't made a move so they are classed as benign.
I hope your GP can give you a little peace of mind.
Posted by CatherineS on Nov 16, 2020 5:49 pm
I made an appointment with my GP for tomorrow and will have to accept that for now, as breast imaging is backed up by a couple of months. God help those whose cancer won't be found without a mammogram. That's how mine was discovered, because I had some pain in the opposite breast and pushed for an early test. If I had waited the two months longer as planned who knows what my situation would have been?
I had a lumpectomy, 6 months of chemo and 16 radiation treatments. No drugs.
I'm so glad your lesions proved to be benign - maybe that radiologist needs a lesson in bedside manner? I wouldn't have appreciated the panic.
Posted by Whitelilies on Nov 17, 2020 3:56 pm
Did I forget any "group" of folks?
A polite, respectful, bedside manner, goes a long way.......
Posted by CatherineS on Nov 17, 2020 6:36 pm
Posted by MCoaster on Nov 17, 2020 7:06 pm
Sorry if this is a bit off topic but I think it is important to think about in the COVID and lack of staff and resources fuelled time we live in.
We really do need to advocate for ourselves and for others and doing it with understanding is what I have found to work. (Most of the time! There was one awful nurse right after my mastectomies who brought me to tears and then asked why I was upset, but enough of that.)
Hope that you get your mammogram appointment soon and fingers crossed that the results are good.
Posted by MCoaster on Nov 17, 2020 8:11 pm
Posted by Kuching on Nov 18, 2020 7:56 am
I'm not sure if any of this is relevant, or even true, but that’s what I was told. Good Luck!
Posted by MCoaster on Nov 19, 2020 12:45 am
So many aspects of cancer diagnosis and treatment appear to be dependent on where one lives. I think you are also an expat Brit. so you may have read the recent article in The Guardian written by a woman who has cancer. (If you wish I can pm the link for it.) The problem of accessing treatment is scary there too.
Posted by Nicky01 on Nov 22, 2020 6:39 am
Posted by JayRay on Nov 23, 2020 12:08 pm
Hang in there!
Search all discussions